Unusual behavior with glioblastoma

I’m so sorry to hear of your son’s diagnosis, and I can only imagine how difficult this is for him! I know from my own experience of dealing with feeling extremely ill, and having neurological difficult neurological symptoms! At times it is so overwhelming, that I just can’t communicate well! So, I wouldn’t be surprised if, with your son, he is just so sick, and isn’t able to perform basic manners, such as saying ‘thank you’, and responding. It’s really hard on families to go through the difficult times, with a family member, suffering from an incurable, progressive, neurological disorder, that is life threatening! Wishing you, your son, and your family the best, during this tough, difficult time!

Yes. So incredibly hard for him. We are mindful of that and appreciate your reminder. We’re trying to figure out if what we are experiencing/observing is the progression of the disease with the tumor growing, the steroids, or both. His home life is not good. Left alone most of the time as his wife and 13 year old son have disengaged, have taken 2 vacations in the last 60 days.

We are not taking things personal. Just trying to understand what might be going on in him.

Thanks for responding/sharing. Best to you!

My husband was extremely depressed by the diagnosis and withdrew a lot. I might do the same as your son given that his wife is essentially AWOL plus he is aware that Glioblastoma is virtually always terminal by 24 months.

Don’t expect anything from him. Just love him.

If he allows touch, a wordless hug or rub of his back might comfort him in the moment. I bet he feels very alone. I’m so sorry.

So sorry for all of you. I am going to venture that while it could be from the physical tumor itself he probably is quite depressed also.
As a nurse and knowing some individuals who have been severely depressed he sounds as if it at least contributes to his behavior - how much each aspect plays a part is hard to know. I had a friend who was almost catatonic in that respect.

The thing is, I can personally say I understand - years ago I had about 10 years of a different problem altogether. I was angry, frustrated that no one would believe my level pain, nauseated from pain meds, my condition prevented me from eating normally. I just wanted to (and often did) stay in bed. It also didn’t help that I was in a deteriorating non supportive relationship.

OTOH, it’s his life and if he doesn’t feel like accepting help what can you do? It’s a horrible diagnosis with a poor outcome. I would just let him know you are there for him if he wants interaction or assistance.

Thanks for commenting. I believe you are correct and I know you speak from experience. Praying for the best outcome. Hope you are well now.

My sister just past from glioblastoma on sept 6. We went to two ER visits because she was having trouble walking and remembering things. Ct scans were done and showed nothing. Sent us home. Finally diagnosed on August 31 and went in for biopsy . Then died on sept 6. I feel the biopsy is what took her life. But at the same time I wonder if she didn’t have the biopsy what quality of life would she have had. They said it was aggressive. I also wonder how many people that have had this cancer took faucci jab. My sister did I’m sorry to say. Hurting

@ruthannray that’s exactly what we do. Your note encourages us to keep on doing what we’re doing.

@cherij52 so, so hard for you. This is a tough unforgiving disease. You have my prayers for your continued healing. We wondered about the jab as well. He had 2 or 3. Thank you for replying.

@cherij52 Anyone know of any clinical trials for this type of Cancer. My sympathies. I have a friend recently diagnosed with the same aggressive cancer

I pray you have a better outcome.