Unruptured Brain Aneurysm

Posted by badnaples @badnaples, Nov 22, 2021

Hello! I recently found out I have a 4mm ACOM during a CT scan, waiting CT angio appointment, question is....live life normally? OK, to travel (fly), exercise etc. Can't get answers from doc, they say all this will be covered during pre-op which is weeks away and in the meantime causing me anxiety not knowing what I should or should not do. Not sure if I have symptoms, various headaches, mild, dull, various areas of the head, but have those often and for long time, and stuffy nose so assume its sinus. Any help is appreciated, suppose to travel in 48 hours. I read all this about rupturing and frightens me. Is it something that would happen suddenly or gradually from a leak. Help! THank you.

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Profile picture for aigul29 @aigul29

If the aneurysm is an ophthalmic segment internal carotid artery (ICA) aneurysm in the C6 segment. What are the risks of that location?

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@aigul29: A neurosurgeon who specializes in aneurysms is your best friend and the one who will give you the correct answer to the question you are asking. I've had both an aneurysm and a meningioma taking up real estate in my brain. At the teaching university/hospital I go to one neurosurgeon who specializes in aneurysms did my coiling procedure, and a different neurosurgeon who specializes in meningiomas did that surgery. But while waiting for my aneurysm repair I was advised to not hang upside down and my keep blood pressure at 130 or below.

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If the aneurysm is an ophthalmic segment internal carotid artery (ICA) aneurysm in the C6 segment. What are the risks of that location?

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Profile picture for tressy @tressy

@minnmitzi hello, my mom has been recently diagnosed with 3 cerebral aneurysms and has been advised to have them surgically repaired. My question is at what size are aneurysms considered for surgery. My dad wants her to get a second opinion. Thanks!

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@tressy: The aneurysm I had coiled a year and a half ago was 5.5ish and the neurosurgeon I consulted with said that anything over 5 mm. is when you should look into having the aneurysm repaired. But as "minnmitzi" stated, location also plays a big part in deciding what to do, as well as one's age/state of health.

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Profile picture for tressy @tressy

@minnmitzi hello, my mom has been recently diagnosed with 3 cerebral aneurysms and has been advised to have them surgically repaired. My question is at what size are aneurysms considered for surgery. My dad wants her to get a second opinion. Thanks!

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@tressy Sorry to hear about your Mom's medical challenge. It will be a challenge for you and your Dad as well. I do not know at what point cerebral aneurysms are considered to be candidates for surgical repair. However, I do know that in addition to size, its location and position are factors, too. In my case, I was told because it is located in the boney "cavern" at the base of the skull it has lower risk for leakage. So, both size and location were important in deciding about surgical repair. Wishing your Mom and all your family well in this.

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Profile picture for minnmitzi @minnmitzi

I am a 77 yo female with previous heart attack 12 years ago, but always with good BP. I had an MRI finding in May 2024 that I have a 3.9mm x 3.9mm size aneurysm in my right cavernous carotid artery. Took me totally by surprise, though it probably shouldn’t have due to my father’s history of multiple cardiovascular disease. The purpose of the MRI was to evaluate me for mild but constant dizziness that had begun months earlier.
Consult with neurosurgery PA told me that it is considered a cerebral aneurysm, but that it is NOT a cause of my dizziness, that it is considered “benign” and that all they would do at this time is to watch me for symptoms and repeat the MRI annually to watch for increase in size. At 3.9mm I’m on the cusp of small to medium size aneurysm.
I’ve been able to, mostly, put this out of my mind - it may reappear in my thought only a few times a month. Part of that, I think, is due to having numerous other health issues to manage every day. I also have a regular social group with whom I engage weekly, belong to a Bible Study group and a book club and I do volunteer work. In other words, I’m just going about my life as usual. Disappointingly, my dizziness is still there and no one can figure that out - it’s another of my daily challenges.
I truly appreciate this forum to learn about others experiences which helps me to evaluate my own. Thanks to everyone!

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@minnmitzi hello, my mom has been recently diagnosed with 3 cerebral aneurysms and has been advised to have them surgically repaired. My question is at what size are aneurysms considered for surgery. My dad wants her to get a second opinion. Thanks!

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Profile picture for Lisa Lucier, Moderator @lisalucier

Hi @lisa930 - I moved your post here so you could return to where you were chatting with others such as @smilton @mkoch @srodriguez25 and others about your unruptured brain aneurysms.

How has your recovery gone since your surgery three weeks ago?

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@lisalucier thank you! I’m doing well. I have some after effects that will hopefully lessen or go away. Having the Dr up in my brain three times, well actually four bc he went into the left and right sides this past surgery. All within a nine month period was really tough. Thank you for asking and switching me over to the correct group! ❤️🧠

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Profile picture for lisa930 @lisa930

Hello Friends! I have five brain aneurysms. Long story about how they were all found (thankfully before one ruptured). I’ve had three surgeries to treat them. One coiled, one clamped and three with the pipeline embolism devices. I would really like to hear from someone that’s had this similar situation. And how they are doing. My last surgery was just three weeks ago. Thanks! Lisa

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Hi @lisa930 - I moved your post here so you could return to where you were chatting with others such as @smilton @mkoch @srodriguez25 and others about your unruptured brain aneurysms.

How has your recovery gone since your surgery three weeks ago?

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Hello Friends! I have five brain aneurysms. Long story about how they were all found (thankfully before one ruptured). I’ve had three surgeries to treat them. One coiled, one clamped and three with the pipeline embolism devices. I would really like to hear from someone that’s had this similar situation. And how they are doing. My last surgery was just three weeks ago. Thanks! Lisa

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Profile picture for smilton @smilton

Live life normal but don’t really over extend yourself with hard exercise/ but exercise and stay fit/ don’t hang upside down- or ride anything that twist or turns fast/ex . Six flags rides- don’t get over angry or stressed out- and smile a lot😊- life is short- be happy!!

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@smilton, I agree with your advise above. Adding one more: No smoking (even second-hand smoke exposure) vàping. Monitor blood pressure (with a wrist BP cuff or Apple health wristwatch), and yes, smile and ðon't let anyone or anything get inside your head and ness/stress you up. Safe travels, safe procedure, and smooth recovery!

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Profile picture for srodriguez25 @srodriguez25

Had an incidental finding of a a 4 mm superiorly directed aneurysm of the left paraclinoid ICA in March 2025 during an MRI, which the pain doctor was looking at the nerves, do to unsuccessful, jaw surgery. After the finding, I was sent to get a MRA, which pointed out that the aneurysm is 5.4 mm, not 4 mm. Was referred to a neurosurgeon and a phone call appointment was set, never met him in person. He called me, had a 5 minute phone call, which started with "do not Google your aneurysm", and dismissed every question I asked, he kept saying "not going to happen, don't worry about it". I noticed that his after visit notes did not reflect what we spoke about during our 5 minute call. He mentioned a page and a half of things we did not spoke about and/or he dismissed. I reached out to him, via email and pointed out his inaccurate notes, he called me back within a few of hours of me sending the email, to apologize and ask for a second chance to explain my aneurysm. I felt no confidence in him and got a second opinion. Second opinion is from an out of network neurosurgeon, which I had to pay out of pocket for the visit. I found out that the 2nd opinion neurosurgeon, also happened to be 1st opinion doctor's teacher/mentor (i was not aware of this). The 2nd opinion neurosurgeon, is offering a stent, since I am young healthy and pointed out the risks of doing this procedure. He also suggested surveillance, however, he said he couldn't predict how the aneurysm was going to behave if we just do surveillance. I am scared and don't know how to proceed.

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@srodriguez25: Please read my prior post on this thread and watch the video by Dr. Omar Chouddhri at the Univ. of Penn. Sometimes I wonder if he made that 35 minute video for people whose neurosurgeons don't offer a lot of information and shut down questions. I had a 5.5 aneurysm coiled 10 months ago at the Univ. of Calif. in San Francisco. At my 6 month post-procedure video visit (after learning everything looked good and asking a few follow-up visits) I said, "Ok. Thank you for your time. I know you're very busy so I'll let you go." Dr. Winkler's response ( a neurosurgeon who specializes in aneurysms) said, "No, no. That's what I'm here for. After we hang up if you remember something you forgot to ask call Sharon (his scheduler) and I'll get back to you." Given that back story I'll offer my opinion on what I would tell my sister should she be in your situation. First of all, your in-network doctor was a jerk. But he did ask for a second chance. It is encouraging that you found out that the neuro doc you saw for a second opinion was your in-network doctor's mentor. Probably "Doctor Jerk" is well trained and would feel a sense of doing his best knowing that you had consulted with his mentor. Secondly, after you watch the video by Dr. Chouddhri I think you'll be convinced that active surveillance (also called watch-and-wait) should not be a choice for you. Yours is not a miniscule aneurysm. The rule of thumb is about 5mm or more should be seriously considered for an intervention whether it be coiling, stenting, or clipping. I would suggest you go with the 2nd neurosurgeon but he's out of network and my coiling procedure was over $50,000 so do you really want to take that kind of debt on.

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