Unmanaged Pain

Posted by annie2 @annie2, Mar 26 2:21pm

Hi all, so, I have been in pain for two years now. Started as unresponsive Gerd. Recently the pain has been an 8-9. Pain mgt is giving me gabapentin as well as noritriptyline. I have also been given anti-depressants for pain and anxiety as well. Nothing is working. No suggestions from Doctor.Thoughts?

Came across this and thought of those who have experienced a burning pain in the stomach:
https://www.medicinenet.com/digestive_disorders_stomach_ulcers/article.htm?ecd=mnl_week_032621

REPLY
@ken82

annie2 Have you taken all the home remedy helps to minimize GERD as well as taking the Meds ? Mayo MN recommends the following:
Maintain a healthy weight. …
Stop smoking. …
Elevate the head of your bed. …
Don't lie down after a meal. …
Eat food slowly and chew thoroughly. …
Avoid foods and drinks that trigger reflux. …
Avoid tight-fitting clothing.

Jump to this post

@ken82 I do all that – as well as stop eating by 9:00 p.m.

REPLY
@jenatsky

Try Buprenorphine, THC/CBD, meditation, PT. I use all of these and my CP is fairly well tolerated but never gone.

Jump to this post

@jenatsky. In what medium do you take your buprenorphine? Is it buccal by chance?

REPLY

Patch on my upper arms every 7 days

REPLY
@rashida

@ken82 I do all that – as well as stop eating by 9:00 p.m.

Jump to this post

not all, but most. need to be stricter with myself.

REPLY
@faithgirl30

@annie2 i want you to know that I hear your frustration, confusion and pain. You have been on this road for 2 years and are now at an 8-9 pain level that makes your life miserable. None of us are doctors on here on Connect, but we are patients who have been in your shoes. One of the most frustrating things about being a pain patient for me is that what works for one patient often doesn’t work for another. So treating difficult cases is often trial and error.

I’ve had pain at that level off and on for 5 years due to spinal issues and undergone 5 neck surgeries in that time. So I can identify with your frustration. I’m glad they are doing an MRI Monday, and your doctor is trying injections to see if that helps with pain – a good sign that they are hearing you and taking your pain seriously. You mentioned concern with Tylenol 3 and if it will mess with your stomach. I would voice that concern to your doctor. Be honest and ask all the questions you can think of. In fact, I would write down all my questions and bring them with you to your appointments. Hopefully, other Gerd patients will have some suggestions as well. I too had wondered about CBD/THC as an option for you.

Is your pain continuous or does it come and go primarily with your gerd symptoms? Also, have you experienced any pain reduction at all with the injections?

Jump to this post

So, I had my MRI while I was in terrible pain. Thought that something might show up. No, everything came back normal. Grateful for that but still back to square one. Doctors still feel it is anxiety / gerd symptoms. Maybe, but pain seems too intense even for severe gerd. Have an appt. with Gastro on the twelfth. Starting to lose hope for a diagnosis. Saying a prayer for us all for health and healing.

REPLY

Assuming endoscopy procedure was performed prior? Discovered acute gastroenteritis. I was using home remedy drinking glass water -add lemon juice/turmeric/pepperoni. (Found on-line from number of wanna-be none- MD Health practitioners stating this will help adjust gastric juices in your stomach). Good Luck. (Yup, have follow relatively no -acid food diet)

REPLY

Hi Faith Girl! I had the same condition went through every test at Mayo Rochester. I was a totally healthy person diagnosed. What they did say was I had what is known as is a condition known as FD Functional Dispepsia. They have know cure,no known reason why this happens. The brain sends a signal that you are having stomach problems,anxiety and so on. Look up the condition you will be surprised. Learning how to control and live with it,is not easy but life changing doable. I recently bought some O Mega XL , never would I have thought this would be affective,but it was. Very expensive,but you can find deals. Good luck finding what works for you.

REPLY
@lvon

Hi Faith Girl! I had the same condition went through every test at Mayo Rochester. I was a totally healthy person diagnosed. What they did say was I had what is known as is a condition known as FD Functional Dispepsia. They have know cure,no known reason why this happens. The brain sends a signal that you are having stomach problems,anxiety and so on. Look up the condition you will be surprised. Learning how to control and live with it,is not easy but life changing doable. I recently bought some O Mega XL , never would I have thought this would be affective,but it was. Very expensive,but you can find deals. Good luck finding what works for you.

Jump to this post

Hi Ivon, Just curious. Did this work well for you? I know the pain of stomach problems as I have unresponsive gerd.. Anxiety as well..

REPLY
@iksuffolk

Assuming endoscopy procedure was performed prior? Discovered acute gastroenteritis. I was using home remedy drinking glass water -add lemon juice/turmeric/pepperoni. (Found on-line from number of wanna-be none- MD Health practitioners stating this will help adjust gastric juices in your stomach). Good Luck. (Yup, have follow relatively no -acid food diet)

Jump to this post

Several endoscopies. Some cell changes that they are watching. Stomach is not good but pain in the throat is horrible. Seeing ent next week. Seems the only time I get out is when I have a Dr's appt. So tired of Dr's and pills that are basically useless and cause too many side effects. Hoping if I calm down a bit things will be easier to handle. Be well.

REPLY
@annie2

Several endoscopies. Some cell changes that they are watching. Stomach is not good but pain in the throat is horrible. Seeing ent next week. Seems the only time I get out is when I have a Dr's appt. So tired of Dr's and pills that are basically useless and cause too many side effects. Hoping if I calm down a bit things will be easier to handle. Be well.

Jump to this post

@annie2 Oh I am the same in that the only time I go out now is for medical appointments. From raising children, working all my life and now a list of medical problems… the psychological toll of physical illness is something the medical doctors don't see and of course not there to deal with it… but is nice when we get a physician who acknowledges what we are going through; last week I had an ENT phone me after waiting months and months and he yelled at me for ten minutes saying he has a lot of patients with serious issues like cancer, operations etc. I wont go into detail but I have had cancer and operations…. but pain is pain and I waited my turn just to get a bit of help. Wishing you the best… I too have throat pain so every mouthful of food or even swallowing spit is a reminder! Take care. Lacy

REPLY
@lacy2

@annie2 Oh I am the same in that the only time I go out now is for medical appointments. From raising children, working all my life and now a list of medical problems… the psychological toll of physical illness is something the medical doctors don't see and of course not there to deal with it… but is nice when we get a physician who acknowledges what we are going through; last week I had an ENT phone me after waiting months and months and he yelled at me for ten minutes saying he has a lot of patients with serious issues like cancer, operations etc. I wont go into detail but I have had cancer and operations…. but pain is pain and I waited my turn just to get a bit of help. Wishing you the best… I too have throat pain so every mouthful of food or even swallowing spit is a reminder! Take care. Lacy

Jump to this post

So sorry you had to go through that. I can't tell you how angry I get with some of these arrogant doctors. They are not gods and do not know everything. If they did, we would not be in so much pain. Pain is a serious issue. It affects every part of our lives. Sadly, not all dr's have compassion. I say a prayer for all who go through this. Be well.

REPLY
Please sign in or register to post a reply.