Undiagnosed auto immune disease

Posted by lisabeans @lisabeans, Feb 13, 2017

I have auto immune issues but am still undiagnosed. I have joint and muscle pains sometimes to the point that holding my son’s hand hurts. I have sensitivity to light and sun where I get very dizzy, nauseous and my face gets red on my cheeks and nose. I have an positive ana 1:160 homogenious. My rheumy started me on plaquanil and it worked okay but still has a lot of pain. Then tried sulfasalazine but my liver count went through the roof so we stopped that. Methotrexate made me very sick so now I am on Leflunomide. That has helped a bit but still have burning pains and my face is still red. I am seeing a new rheumotolgist in May while still seeing the guy I have been seeing. I do have ulcerative colitis which is in remission. I also have dry eye and get mouth sores. I am so confused (going on 2 years trying to get diagnosed). Any one else have similar symptoms and were diagnosed? I feel so lost.

@pjc820

I was diagnosed with Sjogren's syndrome it sounds very similar to a symptoms that I have right now. Ask your rheumatologist or your neurologist to have the test done on you it's very simple to have done. The Plaquenil is the drug that they have given me and it does only help a little bit. But have the test done. I'm surprised they haven't suggested that for you. Look it up and you'll see what I'm talking about.

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be very careful with plaquenil. it can cause very bad issues with your vision. have your vision checked every 3 months, with this drug….kozlo52

@pjc820

I was diagnosed with Sjogren's syndrome it sounds very similar to a symptoms that I have right now. Ask your rheumatologist or your neurologist to have the test done on you it's very simple to have done. The Plaquenil is the drug that they have given me and it does only help a little bit. But have the test done. I'm surprised they haven't suggested that for you. Look it up and you'll see what I'm talking about.

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Hello pjc…what tests please?

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