Severe stomach pain

Posted by tyjacob @tyjacob, Sep 18, 2011

I have had several years of pain in my stomach and not sure what to do. i have had ibs, acid reflux, gastritis, internal hemorrhoids. A few months ago I had a slighly irregular Z line, mildly erythematous found in the antrum and nodules were found in the ascendingn colon.
I have taken xypaxin for pain but it no longer helps. I throw up daily and have diarrhea, I have headaches. My stomach cramps so badly that I can go anywhere because of the pain. What should I do?

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Profile picture for saucy @saucy

I did not have a hiatus hernia! I had Linx surgery!

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@saucy what is Linx surgery?

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Profile picture for tinatoren @tinatoren

Most private clinics only take people with private healthinsurance. If you have that a whole world opens up but I can never get that since Im on disability for fibromyalgia since meny years. There are no neurologists that receive paying customers. You have to have a referral.
I could get some mris and things like a colonoscopy but not much else is offered. We have such a huge health crisis here in Sweden and such a shortage of doctors. The patient safety is threatened.
I've been 90 percent bedridden since December and if I have a condition that could have benefitted from for example steroid treatment it's too late now.
The pain and suffering people are subjected too is unbelievable! The only lucky ones are the standard heartattack or traffic accident kind of injuries which get treatment right away. Unusual diseases or cancer usually get diagnosed way too late.
Primary clinics have a range of standard bloodtests and if you pass those they usually don't want to go further.
Which is insane since 90 percent of early cancers and hundreds of other diseases do not show up on standard blood panels.
I think a lot of countries are struggling now though. I hear stories from US, Australia, Canada and lots of countries about the struggle people have to get medical care. In the US it comes down to what healthinsurance you have.
BUT one important factor that is mostly overlooked is gender and employment.
If you are a man with employment here you will get better help. If you are a woman you tend not to be believed and if you are a retired woman they can bury you in waiting time because the doctors dont have to sign off on sickleave and they don't have to explain to an employer why you're absent for 6 months waiting for a bunch of tests.

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@tinatoren - what you’ve said here is exactly the situation in Canada too:

“ BUT one important factor that is mostly overlooked is gender and employment.
If you are a man with employment here you will get better help. If you are a woman you tend not to be believed and if you are a retired woman they can bury you in waiting time because the doctors dont have to sign off on sickleave and they don't have to explain to an employer why you're absent for 6 months waiting for a bunch of tests.”

My husband merely has to mention something and gets immediate attention and he is given the necessary tests and procedures. I, on the other had, get waved away.

About 18 months ago we were in a car accident. The ambulance driver “strongly advised” that my husband be taken to the hospital. I had a cut on my head which they cleaned up in the ambulance and told me it was not necessary for me to go to the hospital. I knew if I had insisted on going I would get no more treatment anyway. My husband, on the other hand was taken to the hospital, given a thorough body exam including X-rays and CT scan, and they found something that would have gone unnoticed otherwise, because he never had any symptoms. I am relieved, of course, that they found a possible problem in him that we could take care of before it got worse but the fact still remains that I was not taken as seriously simply because I was a woman. We were both in the same car accident, both riding in the front and had the same impact with the car ahead of us. He had no visible injuries but I had a cut on top of my head that was bleeding. Strangely enough, when I mentioned the accident to my physician and asked if I should get a CT scan of my head, she just glanced at my cut (which was scabbed over by then) and said it was not necessary. 🤷🏼‍♀️

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Profile picture for rashida @rashida

@tinatoren - what you’ve said here is exactly the situation in Canada too:

“ BUT one important factor that is mostly overlooked is gender and employment.
If you are a man with employment here you will get better help. If you are a woman you tend not to be believed and if you are a retired woman they can bury you in waiting time because the doctors dont have to sign off on sickleave and they don't have to explain to an employer why you're absent for 6 months waiting for a bunch of tests.”

My husband merely has to mention something and gets immediate attention and he is given the necessary tests and procedures. I, on the other had, get waved away.

About 18 months ago we were in a car accident. The ambulance driver “strongly advised” that my husband be taken to the hospital. I had a cut on my head which they cleaned up in the ambulance and told me it was not necessary for me to go to the hospital. I knew if I had insisted on going I would get no more treatment anyway. My husband, on the other hand was taken to the hospital, given a thorough body exam including X-rays and CT scan, and they found something that would have gone unnoticed otherwise, because he never had any symptoms. I am relieved, of course, that they found a possible problem in him that we could take care of before it got worse but the fact still remains that I was not taken as seriously simply because I was a woman. We were both in the same car accident, both riding in the front and had the same impact with the car ahead of us. He had no visible injuries but I had a cut on top of my head that was bleeding. Strangely enough, when I mentioned the accident to my physician and asked if I should get a CT scan of my head, she just glanced at my cut (which was scabbed over by then) and said it was not necessary. 🤷🏼‍♀️

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Thanks for all your replies!
It really sounds like Canada isn't the promised land I thought it was. I used to dream about moving there but Healthcare seems worse than ours! I'm sorry to hear about how much you have to struggle just to get a doctor. Here we can choose our primary clinic according to law but we cannot choose which doctor in the clinic will see us. I've already tried tried 2 clinics and I'm on my 3rd.Problem here is that most clinics have foreign doctors often not fluent in Swedish and often way too authorative with low respect for women plus not well educated. I often know a lot more about my illnesses than doctor do because I do so much research. I want a doctor to be respectful of my input since I ve lived with my body for 60 years and I know it better than the doctor. I want to be able to have an intelligent conversation and not be told I Google too much. Doctors are not gods and they don't know everything. I'm very sceptical to medications in general and I prefer an integrative approach. Very little research ha been done on why some people have a genetic makeup that makes them intolerant to medications. They just want to prescribe pills. I have had bad reactions to most medications, probably also because of my compromised microbiome and inflammation. I have severe Rosacea and many signs of inflammation in my body but my crp is 5 so it doesn't show.
I really hope the find something fixable with my head cause this is unbearable. I need to know also if there's evidence of a possibility of a reaction to the Prilosec and nexium. I know that I have a very severe problem with my reflux and if I can't take ppis then I am doomed because I really really can't take pepcid. That is what worries me the most right now. My stomach is so very bad but Im so afraid to try Prilosec and get a massive seizure or something. I took 5 pepcid over 2,5 days and quit yesterday and today my head pressure is off the charts. I started jerking my head again. If that is because of pepcid which I wasn't even on when this started then I'm afraid I could die if I tried Prilosec. I'm just so scared.
Thanks for being so kind. We could talk on msn if you want a friend in Sweden

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Profile picture for tinatoren @tinatoren

Thanks for all your replies!
It really sounds like Canada isn't the promised land I thought it was. I used to dream about moving there but Healthcare seems worse than ours! I'm sorry to hear about how much you have to struggle just to get a doctor. Here we can choose our primary clinic according to law but we cannot choose which doctor in the clinic will see us. I've already tried tried 2 clinics and I'm on my 3rd.Problem here is that most clinics have foreign doctors often not fluent in Swedish and often way too authorative with low respect for women plus not well educated. I often know a lot more about my illnesses than doctor do because I do so much research. I want a doctor to be respectful of my input since I ve lived with my body for 60 years and I know it better than the doctor. I want to be able to have an intelligent conversation and not be told I Google too much. Doctors are not gods and they don't know everything. I'm very sceptical to medications in general and I prefer an integrative approach. Very little research ha been done on why some people have a genetic makeup that makes them intolerant to medications. They just want to prescribe pills. I have had bad reactions to most medications, probably also because of my compromised microbiome and inflammation. I have severe Rosacea and many signs of inflammation in my body but my crp is 5 so it doesn't show.
I really hope the find something fixable with my head cause this is unbearable. I need to know also if there's evidence of a possibility of a reaction to the Prilosec and nexium. I know that I have a very severe problem with my reflux and if I can't take ppis then I am doomed because I really really can't take pepcid. That is what worries me the most right now. My stomach is so very bad but Im so afraid to try Prilosec and get a massive seizure or something. I took 5 pepcid over 2,5 days and quit yesterday and today my head pressure is off the charts. I started jerking my head again. If that is because of pepcid which I wasn't even on when this started then I'm afraid I could die if I tried Prilosec. I'm just so scared.
Thanks for being so kind. We could talk on msn if you want a friend in Sweden

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@tinatoren I agree with you 100%!

Yes we certainly can talk further on problems with healthcare, etc. on Messenger. I have sent you a private message. This way, we can keep this thread on topic so you don’t miss out on other useful information from other members on your original question.

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Profile picture for tinatoren @tinatoren

Does anyone struggle with a gnawing burning pain just above belly button, often a little to the right where the head of pancreas connects with duodenum?
The pain radiates to a dull pain in a belt that wraps around my back when I stand. I cannot be up with food in my stomach because the pain becomes unbearable! Lately also nausea after eating but not every time. Lots of rumbling. I have reflux and a hiatal hernia plus IBS and slow gallbladder.
I've suffered many years from pain above bellybutton that has come and gone but since December it has been constant and I've been more or less bedridden. I get some relief a while after eating that lasts one or 2 hours but sometimes that becomes nausea instead and it feels like I ate a soap. To me it feels like my stomach but I have never ever found a single person with esophagus or stomach problems that manifest above belly button. My pain is not under breastbone or heartburn.
For 10 years I have tried to verify what organ causes the pain but failed and now Im stuck in bed with no visual finds on endoscopy (haven't gotten biopsy back yet). No explanation on abdominal mri just asymptomatic gallstones and some fat deposits in liver and pancreas.
I never have cramps and I don't suspect small or large intestine. I would just like to find someone who have that pain pattern

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Profile picture for lz5b00 @lz5b00

I have had acute abdominal pain since April 2011 and it has escalated over the months.. The pain begins early morning, remains unrelenting and escalates throughout the day. It is sharp at times and gnawing most of the time. It radiates down from my sternum and to the lower left of my abdomen. My family doctor nor GI specialists cannot find the cause. I have had CT scans, ultrasound, video capsule endoscopy, colonoscopy, blood tests, push endoscope, H pylori tests, ova stool test for parasites and MRI, to name a few. EVERY test result has been returned as "unremarkable"--no cause found. I am currently taking Paxil 25mg, Nexium and Oxycodein for the pain. Nothing has helped me determine the source of this pain. I am reaching out to this community to see is anyone has a similar experience.

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I have been suffering for 10+ years from an undiagnosed abdominal pain. My doctors have just told me anxiety. Usally I feel like I'm going to throw up, but never do. Rarely I get a bad headache and stomach ache and then throw up. Recently I have been feeling really lightheaded and weak, either before or after I eat. The only thing that seems to help that is DPT. My abdominal pain can feel like cramps or in the same area, like pinching, sometimes I want to cry(because I am tired of being in pain), and I havn't had solid stools in 2 or so months. There are foods like milkshakes and pineapple that I have stopped eating because everytime I eat/drink them I get very nausues. But one day I will eat oatmeal for breackfast and 3 days later the exact same thing, and I have to go to the nurse at school it hurts so bad. There are no similarities from journaling my feelings. Does anyone know of any gut doctors or what this might be? I don't want to be in pain forever.

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Profile picture for maggiew3 @maggiew3

I have been suffering for 10+ years from an undiagnosed abdominal pain. My doctors have just told me anxiety. Usally I feel like I'm going to throw up, but never do. Rarely I get a bad headache and stomach ache and then throw up. Recently I have been feeling really lightheaded and weak, either before or after I eat. The only thing that seems to help that is DPT. My abdominal pain can feel like cramps or in the same area, like pinching, sometimes I want to cry(because I am tired of being in pain), and I havn't had solid stools in 2 or so months. There are foods like milkshakes and pineapple that I have stopped eating because everytime I eat/drink them I get very nausues. But one day I will eat oatmeal for breackfast and 3 days later the exact same thing, and I have to go to the nurse at school it hurts so bad. There are no similarities from journaling my feelings. Does anyone know of any gut doctors or what this might be? I don't want to be in pain forever.

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In order to assist, it would be good to offer more details:
-- what have you tried to get relief over these 10 yrs?
-- Have you heard of the FODMAP diet? It is a diet meant to remove mostly carbs from your diet, which ferment and cause gastro symptoms.
-- not reporting diarrhea? That may be helpful.
-- are you sure you do not have constipation? What is frequency of BM's, and consistency.
-- Last time you had a "regular" BM?

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Profile picture for schreib69 @schreib69

In order to assist, it would be good to offer more details:
-- what have you tried to get relief over these 10 yrs?
-- Have you heard of the FODMAP diet? It is a diet meant to remove mostly carbs from your diet, which ferment and cause gastro symptoms.
-- not reporting diarrhea? That may be helpful.
-- are you sure you do not have constipation? What is frequency of BM's, and consistency.
-- Last time you had a "regular" BM?

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- I have gone to many doctors. GI, family doctors, hospitals, etc. I have tried glueten free and dairy free for 2+ months 3 times and no sugar for a month.
- I am currently working on the FODMAP diet, but I seem to have more headaches.
- No constipation.
- I can't remember, but around New Years.

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Profile picture for maggiew3 @maggiew3

I have been suffering for 10+ years from an undiagnosed abdominal pain. My doctors have just told me anxiety. Usally I feel like I'm going to throw up, but never do. Rarely I get a bad headache and stomach ache and then throw up. Recently I have been feeling really lightheaded and weak, either before or after I eat. The only thing that seems to help that is DPT. My abdominal pain can feel like cramps or in the same area, like pinching, sometimes I want to cry(because I am tired of being in pain), and I havn't had solid stools in 2 or so months. There are foods like milkshakes and pineapple that I have stopped eating because everytime I eat/drink them I get very nausues. But one day I will eat oatmeal for breackfast and 3 days later the exact same thing, and I have to go to the nurse at school it hurts so bad. There are no similarities from journaling my feelings. Does anyone know of any gut doctors or what this might be? I don't want to be in pain forever.

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As you have found gut problems are extremely complicated and most docs have no clue, it seems. Here are some basics to check which you may have not done:
-- find out if you have SIBO(small intestine bacterial overgrowth). It has many causes but the most common is bacteria normally residing in the Colon migrates upward into the small intestine. These bacteria react with carbs and other things to cause both hydrogen and methane gas, mostly. These can be sensed. Search on "aerodiagnostics" and buy a test and take this to your MOST trusted doc or better yet an Integrated medicine doc.
-- on line solutions are possible too: Search "digestivehealthinstitute.org"
AND "sibo.info" "sibo.sos"
The on line stuff will educate you and none of this is simple to understand or INexpensive. You must steal yourself for the battle ahead.
There IS hope. Do not give up.

Good luck kiddo.

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Profile picture for schreib69 @schreib69

As you have found gut problems are extremely complicated and most docs have no clue, it seems. Here are some basics to check which you may have not done:
-- find out if you have SIBO(small intestine bacterial overgrowth). It has many causes but the most common is bacteria normally residing in the Colon migrates upward into the small intestine. These bacteria react with carbs and other things to cause both hydrogen and methane gas, mostly. These can be sensed. Search on "aerodiagnostics" and buy a test and take this to your MOST trusted doc or better yet an Integrated medicine doc.
-- on line solutions are possible too: Search "digestivehealthinstitute.org"
AND "sibo.info" "sibo.sos"
The on line stuff will educate you and none of this is simple to understand or INexpensive. You must steal yourself for the battle ahead.
There IS hope. Do not give up.

Good luck kiddo.

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Thanks!

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