Undecided choice of drugs for Osteoporosis

Posted by peace44 @peace44, Oct 10, 2023

I am 80 years old women and have borderline osteoporosis which affects my entire body. My doctor wants me to take Prolia and the Rheumatologist wants me to take Reclast. I’m unhappy with both choices as the side effects are great and I do not tolerate new drugs well. I am very undecided and am considering doing not taking annty drugs for this condition. I have never had a fracture and I’m very active Any opinions or advice.

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@glojo

You do not sound like an “anti-drug wacko” and you are not alone in your reluctance to go down that path. Like all of us, you are trying to roll the dice and make the best decision for yourself. I have paralysis by analysis at the moment, reading everything and listening to all views. When/if I do start medication, I know there is phenomenal advice here, and the resources are priceless. I saw the life-saving benefits of drugs when my husband nearly died from leukemia 14 years ago, and what would we do without antibiotics and other amazing drugs. It’s difficult when you haven’t yet fractured and can’t see the evidence of disease. Windyshores is wise here. I highly value your opinion. You are blazing the trail for us. Thank you! For now, as foolish as it might be, I choose to wait a bit longer, roll the dice a few more times, continuing to read and over-analyze, always keeping the drug option on the table. I won’t close any windows And as for lifting weights, that is different for each individual. It is probably best to work with an experienced personal trainer. This is the best decision I have made so far and worth every penny.

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Sounds like we are walking the same path. And i am definitely not anti drug. My husband had Parkinson’s and the drugs made his last years so much easier than it would have been without them. I too am rolling those osteo dice a little longer. My endocrinologist did say that he understood my reluctance and seemed ok with me trying a year of an intense natural approach. I had been half hearted about it but my score still went from -3.4 to -3.3. I just want to see what happens if i really work at it. If the next scan is still awful i will seriously consider the Evenity.
Is your trainer a specialist in osteoporosis? Maybe i should try to find one instead of trying it on my own.

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@sandrajhunt

Sounds like we are walking the same path. And i am definitely not anti drug. My husband had Parkinson’s and the drugs made his last years so much easier than it would have been without them. I too am rolling those osteo dice a little longer. My endocrinologist did say that he understood my reluctance and seemed ok with me trying a year of an intense natural approach. I had been half hearted about it but my score still went from -3.4 to -3.3. I just want to see what happens if i really work at it. If the next scan is still awful i will seriously consider the Evenity.
Is your trainer a specialist in osteoporosis? Maybe i should try to find one instead of trying it on my own.

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He is not an osteoporosis expert, although he is fast becoming one! He is highly educated, works out of a hospital rehab setting, so he’s experienced with older folks. The most important thing is that he listens to me….when I am in doubt about some movement, he adjusts it, but he also challenges me when I need a bit of encouragement to progress to a higher level of difficulty or increased weight. His program is always functional-movement oriented and always explains the why and how of each exercise. We moved VERY gradually, so over 18 months, I feel like I have come a long way, but everything was at a safe pace. It’s hard to find someone without a recommendation. I think you wrote that you had seen a physical therapist?? Might ask them. I started this whole process with physical therapy for a sore back (not a fracture) and she was good about proper form and helping me with that issue. Once I felt confident, I moved on with the trainer. Call your local hospital to see if they have any programs like this one. Local Ys usually have trainers on staff. It’s not cheap, but worth it if you find someone you trust.

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I probably need to add here that although I’ve done this work for 18 months, as well as added various supplements and nutrition upgrades, my DEXA still showed a substantial decline in my lumbar….now -3.7, although my hips are holding steady at -2.3, probably because it’s easier to target that area than it is the spine. Regardless, I feel like the process has made me so much stronger overall, which is good for general health, hoping it protects me if I fall.

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@sandrajhunt

I hesitate to say anything about my reluctance because i know i sound like some kind of anti-drug wacko. They apparently work well for a lot of women. On others….not so well. Some women have little to no side effects. Others have awful side effects. Doctors don’t seem to know anything for sure. I talked about my osteoporosis to three doctors and they all urged drugs. It struck me as very odd that they all said the exact same thing..”you could have a fracture just sitting down too hard in the toilet.” I would assume those are words they heard from a pharmaceutical salesperson. I know they urge drugs as well. They make 14 billion dollars a year from osteoporosis drugs. My Dexa scan showed -3.3 in my lower spine so i know that’s bad. The decision is extremely difficult for some reason. But we each have to decide what is best for each of us. You mentioned caution with using weights. Can you elaborate?

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My 84 year old mom sat down on the bed and broke her hip! It’s true, but don’t know how common. That is one of the reasons I just started on evinity, that, and I don’t know what else to do.

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@sandrajhunt

I hesitate to say anything about my reluctance because i know i sound like some kind of anti-drug wacko. They apparently work well for a lot of women. On others….not so well. Some women have little to no side effects. Others have awful side effects. Doctors don’t seem to know anything for sure. I talked about my osteoporosis to three doctors and they all urged drugs. It struck me as very odd that they all said the exact same thing..”you could have a fracture just sitting down too hard in the toilet.” I would assume those are words they heard from a pharmaceutical salesperson. I know they urge drugs as well. They make 14 billion dollars a year from osteoporosis drugs. My Dexa scan showed -3.3 in my lower spine so i know that’s bad. The decision is extremely difficult for some reason. But we each have to decide what is best for each of us. You mentioned caution with using weights. Can you elaborate?

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As much as dislike drug reps, I would think that doctors discovered fragility fractures from experience with patients.

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@sandrajhunt

I hesitate to say anything about my reluctance because i know i sound like some kind of anti-drug wacko. They apparently work well for a lot of women. On others….not so well. Some women have little to no side effects. Others have awful side effects. Doctors don’t seem to know anything for sure. I talked about my osteoporosis to three doctors and they all urged drugs. It struck me as very odd that they all said the exact same thing..”you could have a fracture just sitting down too hard in the toilet.” I would assume those are words they heard from a pharmaceutical salesperson. I know they urge drugs as well. They make 14 billion dollars a year from osteoporosis drugs. My Dexa scan showed -3.3 in my lower spine so i know that’s bad. The decision is extremely difficult for some reason. But we each have to decide what is best for each of us. You mentioned caution with using weights. Can you elaborate?

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@sandrajhunt, I just have to comment regarding spontaneous fracture due to osteoporosis. The comment from your physician is accurate. I have severe osteoporosis and last year I had a fractured tibia and ankle after walking several miles, which was considered “overuse “, and required surgery. 2 weeks later I was getting up from a chair and fractured my patella which required surgery. These were both spontaneous fractures second to osteoporosis. So it happens and impacts quality of life.

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@sandrajhunt

I hesitate to say anything about my reluctance because i know i sound like some kind of anti-drug wacko. They apparently work well for a lot of women. On others….not so well. Some women have little to no side effects. Others have awful side effects. Doctors don’t seem to know anything for sure. I talked about my osteoporosis to three doctors and they all urged drugs. It struck me as very odd that they all said the exact same thing..”you could have a fracture just sitting down too hard in the toilet.” I would assume those are words they heard from a pharmaceutical salesperson. I know they urge drugs as well. They make 14 billion dollars a year from osteoporosis drugs. My Dexa scan showed -3.3 in my lower spine so i know that’s bad. The decision is extremely difficult for some reason. But we each have to decide what is best for each of us. You mentioned caution with using weights. Can you elaborate?

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sandra, only the sane experience that reluctance.

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@sandrajhunt

I hesitate to say anything about my reluctance because i know i sound like some kind of anti-drug wacko. They apparently work well for a lot of women. On others….not so well. Some women have little to no side effects. Others have awful side effects. Doctors don’t seem to know anything for sure. I talked about my osteoporosis to three doctors and they all urged drugs. It struck me as very odd that they all said the exact same thing..”you could have a fracture just sitting down too hard in the toilet.” I would assume those are words they heard from a pharmaceutical salesperson. I know they urge drugs as well. They make 14 billion dollars a year from osteoporosis drugs. My Dexa scan showed -3.3 in my lower spine so i know that’s bad. The decision is extremely difficult for some reason. But we each have to decide what is best for each of us. You mentioned caution with using weights. Can you elaborate?

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Hi,
My DEXA scan was also -3.3 -- they suggested Tymlos - trying to wrap myself how and
should I inject myself for 2 years, without proven results.....and then how do you hold on
to the results that perhaps you have I have attained. just starting to walk without my cane, but
I still lift weights (very slowly) on my bench (have one in home). I felt that if I could do 5 reps
4x a week, it would help. It has, I feel stronger, yes my back and sciatic and leg ache, but I know I have gained strength in my upper body and the mind set is much better. Keep moving is my motto, if you don't you will be underground.

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@karensm

Hi,
My DEXA scan was also -3.3 -- they suggested Tymlos - trying to wrap myself how and
should I inject myself for 2 years, without proven results.....and then how do you hold on
to the results that perhaps you have I have attained. just starting to walk without my cane, but
I still lift weights (very slowly) on my bench (have one in home). I felt that if I could do 5 reps
4x a week, it would help. It has, I feel stronger, yes my back and sciatic and leg ache, but I know I have gained strength in my upper body and the mind set is much better. Keep moving is my motto, if you don't you will be underground.

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@karensm feeling strong does not necessarily correlate with bone strength. I am very cautious about lifting anything but I have fractures. I had excellent gains on Tymlos, going from severe to borderline osteoporosis in spine. The injections are easy, tiny needles, just like brushing my teeth. You can adjust the dose and ramp up if you have troublesome side effects.

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@ymv

@sandrajhunt, I just have to comment regarding spontaneous fracture due to osteoporosis. The comment from your physician is accurate. I have severe osteoporosis and last year I had a fractured tibia and ankle after walking several miles, which was considered “overuse “, and required surgery. 2 weeks later I was getting up from a chair and fractured my patella which required surgery. These were both spontaneous fractures second to osteoporosis. So it happens and impacts quality of life.

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Were you taking Bisphosphonates?

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