Uncontrollable Burping and Belching

Posted by jammins @jammins, Dec 8, 2018

Anyone experiencing uncontrollable burping and/or belching? This seem to be a rear condition that no GI exam air specialist has been able to find a cause and subsequently a solution. Any help from someone with the experience would be greatly appreciated.

@rozy288

@dfulwyler so you didn’t see surgeon about gallbladder surgery? You holding off on that ? Do you live in FLA ? I’m 3 hrs south of Mayo Clinic Jacksonville . I hear they both ( Cle Clinic, Weston) and Mayo make you redo all the tests again , even if you recently had them done . My gosh the deductible plus 20 percent on all this tests will be so much $$$$ . I’m kind of scared of that . It’s like your left to suffer or you go broke trying to figure out what’s wrong 😑 and how to fix it ! How much do you burp a day ( I’m in 2000-3000 range). If my gut is empty or digesting food ,. It’s always churning and the belches are huge and wet but not acid @jammins what are yours like ? Have you figured out what it was and does it still happen since 2018 @jammins ? Thanks Rosemary

Jump to this post

Not been offered the option of GB surgery. I am, finally, getting a referral to Mayo in MN. I live in WA state. I have Medicare and a secondary insurance so my coverage should be good. I belch on an empty stomach and with digesting food. My digestive system churns a lot. The ejection factor on my HIDA scan is higher, 83%. SIBO breath test was borderline for methane this last time. Took a course of riflaxim & neomycin. Doing a follow up breath test. All other tests have been normal range.

Get Outlook for Android

________________________________

REPLY
@clutch

So @rozy288 , you are still waiting on Mayo? Did they offer you the wait list or did you keep calling and asked for it?

Jump to this post

@jammins They called me at Mayo Clinic Jacksonville last week and I finally got an appt after 9 weeks on the waitlist.It’s not til Sept 5 th so over 2 more months but it’s a Televisit w/ a Gastro Dr. they set me up with . Not sure of anything passed that yet , I googled him . I’m going to cancel the Cle Clinic televisit ( in Weston, FL ) now .
I’d rather go to Mayo and this Dr. has great credentials and did his Residency and fellowship there . I’ll keep you posted . You do same ok ✅? Rosemary
@gastrogirl @clutch @dfulwyler

REPLY
@rozy288

@jammins They called me at Mayo Clinic Jacksonville last week and I finally got an appt after 9 weeks on the waitlist.It’s not til Sept 5 th so over 2 more months but it’s a Televisit w/ a Gastro Dr. they set me up with . Not sure of anything passed that yet , I googled him . I’m going to cancel the Cle Clinic televisit ( in Weston, FL ) now .
I’d rather go to Mayo and this Dr. has great credentials and did his Residency and fellowship there . I’ll keep you posted . You do same ok ✅? Rosemary
@gastrogirl @clutch @dfulwyler

Jump to this post

God bless! Hoping I can get in before winter sets in.

Get Outlook for Android

________________________________

REPLY
@rozy288

@jammins I deep wet belch over 3000 x a day & night . Constantly churning gut , so loud it wakes me up . The burps always taste the same . Like sewer water . I’ve had every test you can do done ✅ and everything holistic done ✅ last 7.5 years. This has ruined most all of my 50’s . I’ve gone to 5 Gastro Dr’s . Sure I have Gastritis , Class B GERD , Small Hiatal hernia , Esphogitis. That’s what tests have said . I’ve tried all the PPI ‘s they make . Everything OTC and herbal and pre and pro biotic . No one can tell me why , I can’t eat anything ( and I eat so clean ) without suffering every single time .
I’m now on antidepressant and anti anxiety meds because this has gotten to me mentally. I can’t even enjoy a dinner out w/ my husband. I’m sick all the time .
I have televisit consult w/ Cleveland Clinic Young Gastro Dr end of July . Most Drs say I’m a medical mystery and they can’t do anything for it . I live on Ultra Pepto daily .
I’ve been on waitlist for Mayo Clinic Jacksonville for 9 weeks . I doubt they will call me . Since you posted this in 2018 , what’s happened to you since ? Who did you see and did you get the answers and diagnosis and treatment. I’d love to know if you can share w/ me . Desperate here , Thanks , Rosemary

Jump to this post

This sounds exactly like what my mother is going through right now. Has anything helped? PLEASE let me know. We're desperate.

REPLY

EXTREME BELCHING: Although my mother has seen numerous specialists recommended in the Boston area (neurologists, neuroimmunologist and gastroenterologist), so far none of them have a good treatment. She's only been diagnosed with post-viral gastroparesis, BUT very few of the drugs that have been offered have had even a marginal effect on symptoms. The only drug that seems to somewhat work is Ativan, but it doesn't stop it. We are waiting on the results of an autonomic dysfunction test. She's tried different diets, but nothing has worked.

It started in April shortly after her second Covid vaccine, however, I want to be clear that we have no idea if it's related. Moderna is studying her case.

She's been suffering for 5 months and lost 50 pounds. The excessive belching has become so strong that it's now like a scream. She can not sleep and sweating at night is extreme. She can’t leave the house, eat well, and socialize with the people I love. The intense belching episodes continue for many hours (often up to 9 hours), sometimes making it difficult to speak. Leaving her exhausted, dizzy, and in pain. She gets hot flashes too. We're open to any ideas!

REPLY

@stephaniesimoni i had a 1 hr televisit w/ Dr.Koop Gastro Dr at Mayo Clinic Jacksonville. I’m now set up for 3 tests . Some I’ve had before , years ago .
I’ll do the long 1.5 hr Lactulose hydrogen breath test. The entroscopy C scan w/ contrast that concentrates on the small bowel, (small intestine) area , and another endoscopy but this time w/ endo flip .
I go Oct-3-5 th and come home 6 th .
I understand exactly what your poor Mom is going through as I’ve experienced it for almost 8 years, getting worse each year. I too have been to many Gastro Drs and tried everything under sun and got diagnosed w/ chronic gastritis , esophagitis, Class B GERD, small hiatal hernia , diverticulosis. I’ve done everything RX wise and holistic and enzymes , pre and pro biotics , elimination diets . Still I deep wet beach 3000-4000 x a day and esp at night . I can hardly eat anything without gut and intestines blowing up . Yet I’m hungry .
I eat clean and cook at home , healthy meals . I’m not losing weight, although I eat little . I should be 30 lbs lighter by now .
I’m miserable and missed out on most of my 50’s . I will let you know what my results are . I’m praying 🙏 to get my life back . I only take Ultra Pepto and .50 Klonopin as needed . Ambien but only keeps me asleep 3 hrs . I have a war zone in my gut . My burps are wet and taste like sewer water or stomach lining !! Praying 🙏 for your poor mama too . Rosemary

REPLY

Praying for you. Please keep us updated on your health journey. A doctor at John’s Hopkins is taking on her case, I’ll keep you posted of any developments.
Have you tried medicinal marijuana?

REPLY
@rozy288

@stephaniesimoni i had a 1 hr televisit w/ Dr.Koop Gastro Dr at Mayo Clinic Jacksonville. I’m now set up for 3 tests . Some I’ve had before , years ago .
I’ll do the long 1.5 hr Lactulose hydrogen breath test. The entroscopy C scan w/ contrast that concentrates on the small bowel, (small intestine) area , and another endoscopy but this time w/ endo flip .
I go Oct-3-5 th and come home 6 th .
I understand exactly what your poor Mom is going through as I’ve experienced it for almost 8 years, getting worse each year. I too have been to many Gastro Drs and tried everything under sun and got diagnosed w/ chronic gastritis , esophagitis, Class B GERD, small hiatal hernia , diverticulosis. I’ve done everything RX wise and holistic and enzymes , pre and pro biotics , elimination diets . Still I deep wet beach 3000-4000 x a day and esp at night . I can hardly eat anything without gut and intestines blowing up . Yet I’m hungry .
I eat clean and cook at home , healthy meals . I’m not losing weight, although I eat little . I should be 30 lbs lighter by now .
I’m miserable and missed out on most of my 50’s . I will let you know what my results are . I’m praying 🙏 to get my life back . I only take Ultra Pepto and .50 Klonopin as needed . Ambien but only keeps me asleep 3 hrs . I have a war zone in my gut . My burps are wet and taste like sewer water or stomach lining !! Praying 🙏 for your poor mama too . Rosemary

Jump to this post

Prayers…..

REPLY
@stephaniesimoni

Praying for you. Please keep us updated on your health journey. A doctor at John’s Hopkins is taking on her case, I’ll keep you posted of any developments.
Have you tried medicinal marijuana?

Jump to this post

Yes I've tried Medical Marijuana not smoking but THC gummies and oral drops. No it didn't help nor does pure CBD drops. I wish there was just one thing that would help. A Long 7 years. Please keep me posted on your Mom and what they find out. We have similar stuff going on Stephanie. Praying for you guys too.

REPLY
Please sign in or register to post a reply.
  Request Appointment