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Ulcerative colitis, gastritis, GERD, reflux
Hi all, first post here.
I was diagnosed with Ulcerative Colitis in 2009, and I had been able to keep it under control with Liadla and Canada. Fast forward 4 years to 2013, I started to get some horrible esophagus spasms/GERD/indigestion...you name it. I tried just about everything over the counter, natural remedies, and even a few prescription drugs, until my doctor finally prescribed me 80mg's of Nexium, which eventually worked. I was able to reduce that amount to 40 mg's a day, even tried a few times going down to 20 mg's a day(over the counter) of nexium.
After a setback with UC, I am now on Humira, Uceris, still on Lialda and Canasa, along with trying different probiotics and glutamine.
Within the past few months, I've been getting a very sour or metallic taste in my mouth. After an endoscopy, 2 months ago, my doctor said there was some mild gastritis going on.
Now, within the past week or two, the bad taste seems to be getting worse and much more consistent, with some minor burning in my throat, along with discomfort in my upper stomach. I can feel things going downhill, and I'm sure my doctor is going to double my nexium intake. Ever since I started the Nexium, my weight has been dropping considerable, and I've had a difficult time putting it back on.
Not sure what to expect in response, I guess, for a long time, I've been worried about the affects of Nexium long term, but at this point, not sure I have a choice.
Was wondering if surgery were an alternative, what's out there, and does surgery eventually eliminate the need for these PPI drugs?
Thanks
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Hi, new to this whole format. Been reading your stories and can't believe there are so many of us suffering with these issues. I've had a sensitive digestive system most of my life. The last 20 years in and out of doctors offices, tests, meds I know are bad for me but I've been forced to take them. Sometimes they help. I even had a hiatal hernia repair along with a Nissan Fundiplication 2 years ago all to no avail. Can't remember the last time I laid flat in a bed or didn't have chest pain, gut pain, Bloating and wicked gas! I'm so sick GERD and feeling sick. I too exercise, don't drink or smoke or do drugs and am considered in good shape. Well at least on the outside I can fake it, my insides suck! I have sores in my mouth and a coated tongue again from a dry mouth at night. Yes I wear a strap to keep my mouth closed but it's still like the Sahara desert in there. Have a doctor's appointment in a couple of weeks and will be asking if it's possible I may have Sjogrens syndrome. Seems lack of saliva can maybe be causing some of this. I'm desperate to find a reason. Thanks for letting me vent.
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1 ReactionI have or have had all except IBS.
I took or take the following:
1. SIBO - antibiotic treatment from GERD doctor.
2. Pain, nausea upper quadrant- gallbladder surgery
3. Bloating/constipation- Atrantil, Gas-X, probiotics
4. GERD - PPI 40 mg. Also sleep with wedge
5. Chest discomfort/swallow- diagnosed with presbyesophagus. It's a hypomotility contraction issue - take 20 mg of amitriptyline at night. Doing alot better including GERD.
6. Dry eyes, mouth, & nose - Tested positive for COVID and has made everything worse. Being tested for Sjogren's. I was already on Cequa, warm compressions. and moisturizing eye drops on a daily basis
Wow! your problems are much more severe than mine. I have been treated for SIBI, Candida and excess histamine growth although none of the providers I have seen - mostly functional medicine types- have come up with a clear Dx. My itching is generally confined to my scalp and forehead. I had to give up booze because it made me itch really bad. Two weeks ago the APRN was seeing told me that she had no idea where my itching came from. I only know that my diet of oatmeal and blueberries for breakfast, eggs, egg whites and toast for lunch, a protean shake mid afternoon and some kind of chicken and veggies for dinner helps me from going nuts.
Another person who contacted me suggested taking the True Test Patch Test. Expensive- $1500- though mostly covered by insurance. It takes 5 full days with patches placed over the entire back torso for 5 days. After the test his eczema (three different types) has been in remission for five years and his Chronic Lymphocytic Leukemia disappeared without treatment over 15 years ago without explanation or any treatment or change of diet. Also recommended the Yeast Connection handbook by Dr. Crook resulting in he's eliminated dozens of positive contact allergens. I am going to try the TTPT. Good luck.
Take care 💅