Ulcerative colitis, gastritis, GERD, reflux

Posted by barens2 @barens2, May 11, 2017

Hi all, first post here.

I was diagnosed with Ulcerative Colitis in 2009, and I had been able to keep it under control with Liadla and Canada. Fast forward 4 years to 2013, I started to get some horrible esophagus spasms/GERD/indigestion...you name it. I tried just about everything over the counter, natural remedies, and even a few prescription drugs, until my doctor finally prescribed me 80mg's of Nexium, which eventually worked. I was able to reduce that amount to 40 mg's a day, even tried a few times going down to 20 mg's a day(over the counter) of nexium.

After a setback with UC, I am now on Humira, Uceris, still on Lialda and Canasa, along with trying different probiotics and glutamine.

Within the past few months, I've been getting a very sour or metallic taste in my mouth. After an endoscopy, 2 months ago, my doctor said there was some mild gastritis going on.

Now, within the past week or two, the bad taste seems to be getting worse and much more consistent, with some minor burning in my throat, along with discomfort in my upper stomach. I can feel things going downhill, and I'm sure my doctor is going to double my nexium intake. Ever since I started the Nexium, my weight has been dropping considerable, and I've had a difficult time putting it back on.

Not sure what to expect in response, I guess, for a long time, I've been worried about the affects of Nexium long term, but at this point, not sure I have a choice.

Was wondering if surgery were an alternative, what's out there, and does surgery eventually eliminate the need for these PPI drugs?

Thanks

Interested in more discussions like this? Go to the Inflammatory Bowel Disease (IBD) Support Group.

Profile picture for mikejjb123 @mikejjb123

This is odd. For years had chronic morning nausea from my issues of GERD and UC. All of a sudden I wake up to aches and pain in my chest. Went to doctor and it is not my heart. If I take tylenol I feel better. Any ideas what may be going on? Thanks

Jump to this post

I was recently diagnosed with esophagitis and GERD/ reflux . GI ordered Prilosec for several months . The medicine makes me nauseated , jittery and anxious. Also read that PPI have many harmful effects . Anybody have experience with this ?

REPLY
Profile picture for jmedj55 @jmedj55

I was recently diagnosed with esophagitis and GERD/ reflux . GI ordered Prilosec for several months . The medicine makes me nauseated , jittery and anxious. Also read that PPI have many harmful effects . Anybody have experience with this ?

Jump to this post

Hi, @jmedj55 - here are a couple of Mayo Clinic Connect discussions on omeprazole, one older and one newer, that you might check out to see what others have said about this medication:

- Omeprazole questions https://connect.mayoclinic.org/discussion/omeprazole-questions/

Getting Off of Omeprazole: Share your success stories please. https://connect.mayoclinic.org/discussion/getting-off-of-omeprazole/

REPLY
Profile picture for Lisa Lucier, Moderator @lisalucier

Hi, @jmedj55 - here are a couple of Mayo Clinic Connect discussions on omeprazole, one older and one newer, that you might check out to see what others have said about this medication:

- Omeprazole questions https://connect.mayoclinic.org/discussion/omeprazole-questions/

Getting Off of Omeprazole: Share your success stories please. https://connect.mayoclinic.org/discussion/getting-off-of-omeprazole/

Jump to this post

Thank you much! Mike

REPLY
Please sign in or register to post a reply.