Ulcerative colitis, gastritis, GERD, reflux
Hi all, first post here.
I was diagnosed with Ulcerative Colitis in 2009, and I had been able to keep it under control with Liadla and Canada. Fast forward 4 years to 2013, I started to get some horrible esophagus spasms/GERD/indigestion...you name it. I tried just about everything over the counter, natural remedies, and even a few prescription drugs, until my doctor finally prescribed me 80mg's of Nexium, which eventually worked. I was able to reduce that amount to 40 mg's a day, even tried a few times going down to 20 mg's a day(over the counter) of nexium.
After a setback with UC, I am now on Humira, Uceris, still on Lialda and Canasa, along with trying different probiotics and glutamine.
Within the past few months, I've been getting a very sour or metallic taste in my mouth. After an endoscopy, 2 months ago, my doctor said there was some mild gastritis going on.
Now, within the past week or two, the bad taste seems to be getting worse and much more consistent, with some minor burning in my throat, along with discomfort in my upper stomach. I can feel things going downhill, and I'm sure my doctor is going to double my nexium intake. Ever since I started the Nexium, my weight has been dropping considerable, and I've had a difficult time putting it back on.
Not sure what to expect in response, I guess, for a long time, I've been worried about the affects of Nexium long term, but at this point, not sure I have a choice.
Was wondering if surgery were an alternative, what's out there, and does surgery eventually eliminate the need for these PPI drugs?
Thanks
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Sorry you are having so much trouble. You feel tired because your body isn't getting good quality sleep. The question, as you asked, is why all this is happening? My guess is start with a gastroenterologist to scope your esophagus/stomach to see if there are signs of reflux, h pylori, and whatever else they can determine with a scope. Maybe you need a motility test to see how quickly the food goes down. Vertigo may be because of laryngopharengeal reflux, which affects the throat, nose and ears more than the esophagus (ears play a role in balance). You would need to be scoped by an ENT for that. You could do something for yourself while deciding what to do, and that is keep a food diary. You may be sensitive or allergic to different kinds of foods, and see symptoms because of what you are eating. Or you could start on a cleaner diet and see if that helps, for instance a low acid, whole food diet (google Dr. Aviv and Dr. Koufman, ENTs, for more specifics on that). I used to wake up nightly coughing and with a sore throat. That turned out to be LPR. Diet changed helped that. Don't get discouraged if you can't find answers immediately. Good luck!
I would keep a blow by blow journal of heart rate, diet, symptoms pre and post meals. Make a note of body aches, fever or feeling hot or cold. Everything maters. You could have a multi system thing going on. But they always start by ruling out the most obvious causes. Don't become discouraged. You matter.
You definitely want to see your doctor ASAP. You need to get checked for everything from anxiety attacks to vagus nerve problems to intestinal problems.
Do not hesitate.
You should see your pac and then the PAC would probably do some GI test on you see if you need to see a GI doctor after the GI doctor they might send you to eat Mt doctor for your ears nose and throat and then there is something called post post author static it is after you eat where the blood in your stomach doesn't get filled up all the way where it makes you feel dizzy and lightheaded I might need a smaller portions throughout the day
. Have you ever tried to put a wedge under your bed and elevate your bed about 6 in I would see your pac for a suggestions but it can get out you can buy a widget at Walmart are at a local bed store or even at Kohl's I bought mine at I have something called something called pathological acid reflux where it goes where that goes for my stomach back up into my esophagus into my throat there is only a certain test they can do that with is very uncomfortable this stick a tube down your throat into your esophagus into your stomach you got to work for 24 hours but only a GI doctor can do it and I don't know if all GI places have that cuz I needed to get that done at a university hospital. Best of luck young man and hope you get it figured out
I would not eat anything Cassidy like drink orange juice lemonade grapefruit tomato juice or tomato sauce oh and not eat anything spicy or anything hot I'm going to try to avoid that stuff I would not eat any like grapefruits oranges or anything at citrusy caffeine or stuff with caffeine if a smoke try to quit smoking if you drink try to quit drinking. Small meals throughout the day. Try to limit your greasy foods. Hopefully that will help and try to get in what your PAC.
Who is a PAC?
It's like an internist doctor or family medicine. Primary care doctor. What does your physicals and that does that could you started of all your tests and can help you get you figured out what specialist to go to. Keeps all your stuff that coordinated all your medical stuff coordinated.
Family doctor 🏥🏥 internist medicine
Some people get a stricture at the sphincter between esophagus and stomach, called a Schotskys ring, that prevents food from entering the stomach and can cause hiccups, feeling like food is coming back up (or it does), and caused by acid irritation from GErRD. It is treatable by stretching the stricture and works immediately. A GI dr does this. Clues are that chunks like meat, bread get stuck but soft food or liquids go down. Pay attention to what foods make it worse. You need a GI dr, PCP first if referral required.
Have ulcerative colitis and GERD. UC is under control. Quit coffee and caffeine and great for 3 weeks in a row. Woke up about a week ago and 24/7 nausea ongoing. Haven't eaten anything unusual and can't figure anything out. Lost again in my struggles. Any insight would help. Thanks, Mike