1. < Neuroendocrine Tumors (NETs)
Profile picture for dzerfas

Typical Carcinoid Tumor in Lungs

Posted by dzerfas @dzerfas, Jan 17, 2017

I was diagnosed in April 2016 with a Typical Carcinoid Tumor in my right lower lobe, approx. 3 cms. It has remained stable, per most recent CT scan in Dec. I have no symptoms. I am curious if others have been in this situation and if you opted to "watch and wait" or have surgery right away - mine would be a lobectomy of the right lower lobe. Can Typical Carcinoids become Atypical? Blessings to all on this journey!

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

Profile picture for kiholt
kiholt | @kiholt | 3 days ago

Hello, Teresa, how are you?
In answer to your question, no I had no symptoms of anything at all - no coughs, tight chest, shortness of breath - we were regular gym goers in those days and I had no problem with our routines at all and also walked several times a day - and no neuroendocrine symptoms either. So I have no idea how long it would have taken to be detected had we not been given a free chiropractic consultation at a health exhibition and this particular chiropractor liked every new patient to have a full spine - top to bottom - Xray. It was a large almost completely circular mass 3 x 5 x 3 in my right lower lobe. It caused a bit of head scratching as apparently they are quite uncommon - down here at least!

REPLY
Profile picture for pekoe01
pekoe01 | @pekoe01 | 2 days ago
In reply to @jhhaas "@pekoe01 no problem, glad my experience helped you. The hospital sent me home with oxy, and..." + (show)
Profile picture for jhhaas @jhhaas

@pekoe01 no problem, glad my experience helped you. The hospital sent me home with oxy, and it didn’t help. I think maybe I took one pill and it just made me spacey, but didn’t take away the pain and discomfort. When I told my doctor he ordered gabapentin, I did take that for about five days but Stopped because it wasn’t really helping the thing that helped the most was the Tylenol and Advil, but ultimately, a little exercise in the form of light walking, and time, was really all that helped it. I could do just about anything after three or four months, but it really took about six months for me to realize I didn’t hurt anymore, just MINOR inconveniences that were easier to deal with. Be patient, healing will come. Best wishes.!

Jump to this post

@jhhaas Thank you for your encouragement. I experimented with my foot compound which contains gabapentin and lidocaine today. I am not able to take gabapentin due to having afib, so I though it wouldn't hurt to apply the foot compound to my waist and abdomen. I had no sharp nerve pains today! I will continue using it and hope it keeps the nerve pain at bay.

REPLY
Profile picture for ggiinnaa
ggiinnaa | @ggiinnaa | 14 hours ago

Good morning
3 years ago I had an Adenocarcinoma tumor removed from my right upper lobe. At that time I had a small spot removed from my lower right lobe. It was a typical carcinoid tumor. I was ranked as stage 1 A. Every 6 months I have a cat scan to check on a couple of other small lung carcinoids. In 3 years they have not grown. Carcinoids grow very slowly - I am hoping for no growth! If they show growth I will find a carcinoid lung doctor - probably in Boston
Good luck and keep us posted

REPLY
View MoreView Less
Please sign in or register to post a reply.