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Tymlos-Timing, travel and meds, Oh My!
Am about to start Tymlos this weekend and first off wanted to thank the contributors to this board. Have read through many threads and all quite helpful! I have a few more questions:
1. Timing and other Meds:Y’all seem to be all over the place on timing, lol! Some are morning, some night, maybe 1-2 midday. I’m leaning toward morning. But my other Meds, big question. I am on long term low dose prednisone and will be for life. As any of you with autoimmune diseases know, quite important to take Pred first thing in the morning. For me it kicks in about an hour or so after I take it. It’s also a jump starter. After that I feed pets, have decaf, and eat breakfast around 8-9 (get up around 6-7). I then take other meds then (needed with food). Then workout and then just before lunch HRT because interferes with meds. I also have restless leg syndrome, can cause bad sleep so often need to take sleep meds. One of my current autoimmune issues causes bone pain, but I just plow through as much as I can, but also worse at night, thus the sleep meds. Though I have autoimmune diseases, I am fit, active. I’m also small, but healthy.
Given all this, any thoughts on timing? I think I’d ideally like to try after breakfast and just before workout. Anyone done this? Taken, then about 1/2 hour later do your workout? I lift and do cardio.
2. Travel: I do international travel, one reason doc wanted me to use Tymlos as it travels better. I am not worried about it for domestic travel but I do a lot of international trips and long hauls. What do you all use for carrying the med, the pens and the sharps container? The sharps deal they sent me is big! I’m usually on an international trip for 3-4 weeks at a time. Any ideas here? Do I haul the sharps container over, from place to place and then back with me to the US (I assume so). I’m usually team carry on so space is a premium for me. Any travel products that work for you?
Thanks for any ideas. This board has been a lifesaver. BTW I am (ok with doc) starting slow and working up.
Cheers
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@ccps101 I just brought it back with me so I didn't have to worry about finding somewhere to dispose of it abroad (but I know there are many pharmacies and public restrooms that have them if you need to dispose of them while away). Since it's just the small pen needle's it takes ALOT of them to fill even a small travel sharps container so it never neared getting full. When I've gone for just a few days, I sometimes didn't even bother with the sharps container and just put them under the pen in my Tymlos travel pen holder and then added them to my Sharps container when I returned.
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2 Reactions@calofmichigan “Rotating sites between thigh and abdomen.”
Can you share more about this, especially with regard to injecting in the thigh? Do you notice a difference in side effects by injecting in either place or are they still the same?
It’s great that you’re still building bone by administering this way! I would love to have this option, I really would. I’d feel so much better about taking it.
Wishing you strong and beautiful bones as you continue treatment! ✨
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3 Reactions@beachesanddreams
Yes! So about halfway up the thigh, on top, as with the abdomen, I swab it with an alcohol wipe VERY FIRMLY 8-10 times, grab a bunch of skin and fat between thumb and forefinger in that area and plunge the needle in while holding it. I do this so I don’t feel the injection. I have a very low tolerance for pain. I learned this in nursing so I could give a painless shot to people, especially children.
Sometimes I’ll hit a tiny blood vessel and it will bleed and bruise a little, but so what? It'll be gone by the next time you inject that site.
I haven’t noticed any side effects from giving the shot in any location. I do find the thigh is less painful than the abdomen.
My bone health professional doesn’t seem too concerned. The results are what matters, and mine are good. Ten months to go.
Best of luck!
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2 Reactions@calofmichigan “The results are what matters.” You are so right. And as a nurse, I trust implicitly all the information you have provided here. Thank you again for your detailed and thorough explanation.🙏🏻
Wishing you a sweet Valentine’s Day! 💝
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2 Reactions@beachesanddreams
And you too! It was certainly my pleasure to be of help.
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