Tymlos cost
Hello! I just was recommended Tymlos from my Endo. Can anyone tell me how much or if it is covered by insurance? I have Blue Cross Blue Shield Federal. TIA.
Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.
Connect

@oopsiedaisy
You have been through so much frustration with docs and insurance! I pray you will find a good fit doc-wise and have smooth sailing from here on out!
-
Like -
Helpful -
Hug
1 Reaction@oopsiedaisy
Like you, Cigna said no to Tymlos for me (I had been on it for five months), but yes to generic Forteo. I will receive my first pen later this week. How has your experience on it been?
I wish I had good news but I stopped taking the generic Forteo last week because I developed severe joint pain. It was so bad I was no longer able to exercise; even walking hurt. This is very unusual for me as I've been exercising 5-7 days a week since 2012.
I've been off now for about 5 days and the joint pain has almost gone. I still have a bit in my left knee.
I've read that this is a common side effect in approximately 10% of patients.
Will be visiting my doctor to discuss soon.
The Tymlos didn't cause this issue at all but I did have some other milder side effects. I'm getting weary of all the changes to medications and dealing with insurance companies and specialty pharmacies.
I may take a break until my next DEXA and see where I'm at. Now that I've been off the Fosamax for a year hopefully I will get back to building some bone.
I hope the Forteo works for you and thank you for asking!
-
Like -
Helpful -
Hug
2 ReactionsI am sorry that I missed this earlier. Thank you so much for your kind thoughts.
@oopsiedaisy
Oh no! I am so sorry the Forteo didn’t work for you. I understand your frustration with insurance, changes, etc. The whole thing just blows my mind. I had no idea all this kind of stuff was taking place. It’s hard to believe that our health decisions can be so influenced by insurance companies rather than doctors!
-
Like -
Helpful -
Hug
2 ReactionsLooking for advice on how to pay for Tymlos. I’ve been on it for over a year. My insurance considers this a specialty drug and they will pay only 50%. The cost of the drug is $2700 a month. I had a coupon from the Tymlos website (Radius) that contributed $7500 per calendar year. That covered a good part of last year but it is now used up for this year so I’m looking to have to pay over $1300 out of pocket every month, going forward. Radius Health as an option for low income people (which I am), but it will only help those who have no insurance at all. Any suggestions or thoughts would be most welcome. I cannot cover $1300 a month and do not want to switch to another medication because honestly, I’m scared to death of all the “next step options”, and, I’m still benefiting from Tymlos. Thanks everyone🙏🏻
There is a savings card (not Radius Assist) on the Tymlos Web site for people not in Medicare who are under other insurance, but I have no idea if it will work for you.
https://tymlos.com/access-and-savings/