Tumor has come back in brain, fighting with IV infusions of Avastin

Posted by bjh369 @bjh369, Oct 27, 2019

Fighting my brain cancer now with Avastin and doc will add back in Tramazolomide.

Interested in more discussions like this? Go to the Brain Tumor group.

Colleen Young, Connect Director | @colleenyoung | Oct 27, 2019

@bjh369, I'm sorry to hear that the glioblastoma multiforme (GBM) has returned. I'm bringing @marcyprof @nursnis and @amherst into this discussion.

As you prepare for new treatment with Avastin (bevacizumab), I thought you might appreciate this indepth Avastin FAQ document from the National Brain Tumor Society http://blog.braintumor.org/files/public-docs/avastin-web-faqs-and-overview-final.pdf

When do you start the IV infusions?

bjh369 | @bjh369 | Oct 28, 2019

Thank you very much for the information. I appreciate it.

bjh369 | @bjh369 | Oct 30, 2019

So far brain swelling is down and no bleeding in brain. That is good.:)

bjh369 | @bjh369 | Oct 31, 2019

Pressure is off brain so no more headaches and doctor Mrugala says no bleeding in the brain so that is good.

Colleen Young, Connect Director | @colleenyoung | Oct 31, 2019

In reply to @bjh369 "Pressure is off brain so no more headaches and doctor Mrugala says no bleeding in the..." + (show)

That sounds like great news, @bjh369. How often are you taking Avastin?

bjh369 | @bjh369 | Nov 3, 2019

In reply to @colleenyoung "@bjh369, I'm sorry to hear that the glioblastoma multiforme (GBM) has returned. I'm bringing @marcyprof @nursnis..." + (show)

Thanks so much for the info. Any info is always welcome.

bjh369 | @bjh369 | Nov 4, 2019

In reply to @colleenyoung "@bjh369, I'm sorry to hear that the glioblastoma multiforme (GBM) has returned. I'm bringing @marcyprof @nursnis..." + (show)

You know I was told by a doctor friend of mine all cancer patients should be deformed…they say it has helped cancer patients in the UK. Have you ever head of this?

bjh369 | @bjh369 | Nov 10, 2019

In reply to @colleenyoung "@bjh369, I'm sorry to hear that the glioblastoma multiforme (GBM) has returned. I'm bringing @marcyprof @nursnis..." + (show)

Go in the 12th for my 3rd infusion of Avastin and now back on tramamolizide. Bloodwork will be done on 12th so I hope body will tolerate medication.

Colleen Young, Connect Director | @colleenyoung | Nov 11, 2019

In reply to @bjh369 "Go in the 12th for my 3rd infusion of Avastin and now back on tramamolizide. Bloodwork..." + (show)

Thinking of you for your appointment tomorrow, @bjh369. Rest well.

bjh369 | @bjh369 | Nov 11, 2019

Got bloodwork at Mayo Clinic Chandler which made sense at least because the clinic is just down the road from us and Mayo Clinic Phoenix is 60 miles away. So that was nice and Dr Mrugala will go over the bloodwork with me tomorrow to see how I'm tolerating all this chemo…..