Tulsa Pro and Insurance

I had Tulsa Pro, mentioned my cost above, but am now having a recurrence so not too happy these days. I think one thing I ran into, and maybe it helps somebody if I mention it, but Dr Scionti told me he would take 70 or 75% of prostate out with Tulsa. It appears he only did about 40% in talking to imaging and other places since him. 40% was NOT enough to get all my cancer. If he had done what he told me I would be probably fine. Now he doesn't want to handle me so pooh (putting it kindly) is all I think on that. Anyway, if getting Tulsa, my experience says higher % ablation fraction is a good idea. Again, just bringing it up so anyone else getting Tulsa can opt for higher ablation fraction. Do 70% or whatever, not 40%.

@bjroc Might not be a percentage thing as much as it is getting good margins on it. You can do Tulsa Pro again if you want to do your entire prostate. Tulsa also reduces the chance of spread since it stops blood flow in the area by ablating the blood vessels. Let us know what you decide to do. Good luck.

@ucfron

I am trying to get a second opinion on another tulsa but Dr Scionti said he left too much scar tissue and cavity area (I don't know what he meant) and turned it down for second Tulsa. PSMA shows it is confined to prostate but Scionti wouldn't offer it. Trying to see if somebody else will. No idea at moment what I am going to do.

@bjroc Try Mayo Jacksonville and speak with Dr Pathak or Dr Dora. I believe that is the only other Center in FL that does Tulsa. Of Scionti won’t do it then perhaps no one else will.

I had Tulsa Pro, mentioned my cost above, but am now having a recurrence so not too happy these days. I think one thing I ran into, and maybe it helps somebody if I mention it, but Dr Scionti told me he would take 70 or 75% of prostate out with Tulsa. It appears he only did about 40% in talking to imaging and other places since him. 40% was NOT enough to get all my cancer. If he had done what he told me I would be probably fine. Now he doesn't want to handle me so pooh (putting it kindly) is all I think on that. Anyway, if getting Tulsa, my experience says higher % ablation fraction is a good idea. Again, just bringing it up so anyone else getting Tulsa can opt for higher ablation fraction. Do 70% or whatever, not 40%.

I had Tulsa Pro, mentioned my cost above, but am now having a recurrence so not too happy these days. I think one thing I ran into, and maybe it helps somebody if I mention it, but Dr Scionti told me he would take 70 or 75% of prostate out with Tulsa. It appears he only did about 40% in talking to imaging and other places since him. 40% was NOT enough to get all my cancer. If he had done what he told me I would be probably fine. Now he doesn't want to handle me so pooh (putting it kindly) is all I think on that. Anyway, if getting Tulsa, my experience says higher % ablation fraction is a good idea. Again, just bringing it up so anyone else getting Tulsa can opt for higher ablation fraction. Do 70% or whatever, not 40%.

@jcf58 Thanks, I hope I find something good.

@bobbygene Scionti gives a printout/ sheet of 12 MRI slices before and after. Most slices looks like a lot was taken out, but I think what I see is tissue pushed to opposite side during ablation and it is pressed and non rebounded since slices are immediate post procedure while still sleeping and all. It may look like not much in most slices, or in looking at the MRI's, but I think a lot is just "pressed down" from procedure. I had even told people he did some large percent, but all my MRI's since the Tulsa Pro didn't show that large a decrease in prostate size which I did question him about but didn't get a real answer. I guess it is a complex procedure that pushes tissue on opposite pole of the ablation area. If ablated to the right, tissue on left pushes and is compressed, then looks like not much is there. That tissue in me rebounded a lot, but I think those images and things they show you right after procedure are exaggerated by the effects of the procedure. Basically I get really all that was taken out is roughly 40%, even though at the time the slices look like not much is left, it is in reality compressed and pushed to front back and opposite sides. Don't take those immediate post procedure MRI's too seriously is what I learned.

I just have to move forward, somehow. Very depressing really, but I have a lot of appointments and calls out there. Something good I hope turns up.

@bjroc How long after you precedure are you? When did you learn you are having chemical reoccurrence? What was your PSA levels at 3 mos, 6 mos, etc. Have you had another MRI since the precedure.

@ucfron

I am 30 months or 2.5 years post Tulsa Pro. Just prior to Tulsa Pro my PSA went from 12 to 16 which is high due to BPH + PCa, but that jump made it clear it was going to be a bad biopsy just before Tulsa.

Right after Tulsa Pro my PSA was in upper 2 and lower 3 area, then slowly rose to 4 area, then I had a jump to 7 just before recent February 2026 biopsy, but I had a PSA in Nov '25 that looked like it might be rising, so late '25 got me worried. Anyway, my PSA always jumps and is a clear sign, I suspected in Nov '25 but at Feb '26 biopsy the PSA was clearly jumped up to 7, biopsy was 2/12 cores at 4+3, small areas of cores, small lesions always on me.

My prostate sizes from imaging: Before Tulsa 110cc. Then at one year was 87 cc so you see it didn't go down much. My BPH creates lots of noise, but PSA always jumps on me right before issues found.

Anyway I did AS 2.5 years prior to Tulsa.
Did Tulsa Pro, then got 2.5 years.
Hoping whatever happens here I get all of it out, but of course I ideally want zero side effects but we will have to see ..... I had no side effects on Tulsa Pro, it is a good option, but well I guess they didn't take enough out on me. Just a bit more and I might be fine.