Want to connect with people dealing with hypnic headaches

@mlpults - Hi! I also looked up Indomethacin and did not like what i read….I don’t want to take anything daily plus too many side effects … it also said not to lay down for 15 minutes after taking the pill so I guess you don’t take it at night??? and it’s most common side effects are everything that I despise such as nausea, vomiting, diarrhea, constipation, heartburn stomach, discomfort, and indigestion.. everything I avoid if possible. I guess we all find what works for us. Fiorcet may stay in the system longer, but I have absolutely no side effects and I only take it when I have my head pain.

@mlpults looked up Fiorcet, and to me it’s iffy because of the barbiturate and addiction . Also it stays active in the body over 23 hours. Not good if you have to take it often. Indomethicine stays around 5 hours. And it does make me sleepy after about an hour.

@mlpults hi all fellow sufferers 😬

I go to bed around 10:30 -11:00 most nights and it wakes me about 3 hours later. Between 2:00 and 3:30. If really tired and I go down at 9:30 , then it comes at 12:30-1:00.
I keep a record on the wall calendar with red masking tape for a headache, blue for sumatriptan .
I think it’s getting worse. Average 2 to 3 nights per week with no headaches. The rest I’m up for at least 2 hours with a headache. Sometimes it lasts all night and into the day . And then I take a sumatriptan. I’ve tried taking melatonin before bed, and it seems to make it worse. So I don’t see a cure, I’m not the only one . It could be worse. But duchess926 your post reinforces that…..my cure is 20 -30 minutes of light to medium exercise gets rid of it usually. Good luck all. It’s been 11 years. I’m 71.

@duchess926 - you've posted here in a Mayo Clinic Connect discussion on hypnic headache, so I think you are in exactly the place you wanted to be.

If you want to see all the posts you have ever made, go to the icon that looks like the outline of a person at the top right of any page on Connect and click on it. That will take you to a menu that includes "My Profile." Click on that. Then on the left menu, click on "Comments." You will then see every post/comment you have ever made on Mayo Clinic Connect.

You mentioned going to a neurologist for your headaches. Have you been to a neurologist who specializes in headache?

@lisalucier - Hi…i posted a comment on Hypnic Headaches but not sure where it went??? I would like to join in the community for Hypnic Headaches…

@mlpults hi all fellow sufferers 😬

I go to bed around 10:30 -11:00 most nights and it wakes me about 3 hours later. Between 2:00 and 3:30. If really tired and I go down at 9:30 , then it comes at 12:30-1:00.
I keep a record on the wall calendar with red masking tape for a headache, blue for sumatriptan .
I think it’s getting worse. Average 2 to 3 nights per week with no headaches. The rest I’m up for at least 2 hours with a headache. Sometimes it lasts all night and into the day . And then I take a sumatriptan. I’ve tried taking melatonin before bed, and it seems to make it worse. So I don’t see a cure, I’m not the only one . It could be worse. But duchess926 your post reinforces that…..my cure is 20 -30 minutes of light to medium exercise gets rid of it usually. Good luck all. It’s been 11 years. I’m 71.

Hi, @kjs1255, and welcome to Mayo Clinic Connect. So that you can connect with others discussing hypnic headache, I've moved your post here:

- Want to connect with people dealing with hypnic headaches https://connect.mayoclinic.org/discussion/trying-to-connect-with-people-dealing-with-hypnic-headaches

Hoping members like @kmsb @taterjoy @leannestork in this discussion can empathize with your situation and provide some support and ideas. I also thought members like @lisafl @dawn_giacabazi @cherylsd @lulu1962 @lauriedr @shaylala @bernese53 @gussie @kdubois might like to join this discussion. These members may have thoughts on managing hypnic headache with avoiding food triggers or standing upright. They also may have tips and tricks of their own for headache management.

kjs1255 - how are your hypnic headaches affecting your sleep this month? Are you waking up with them frequently?