Triple negative invasive lobular breast cancer

Posted by jknows @jknows, May 25, 2023

I have been diagnosed with triple negative invasive lobular breast cancer. I understand most lobular breast cancer is hormone positive. As a result, I am being treated according to a triple negative ductal breast cancer protocol. I am interested to know if anyone has found a unique program that addresses both the lobular aspect and the triple negative aspect of my breast cancer? Is it something they do at Mayo?

Interested in more discussions like this? Go to the Breast Cancer Support Group.

jknows | @jknows | May 26, 2023

Are you receiving treatment at Mayo?

ssmab | @ssmab | May 26, 2023

I was diagnosed in December 2022 with triple negative Invasive Lobular stage 1a in one breast and hormone receptor positive Invasive Ductal stage 1a in the other breast. I had a bilateral mastectomy at Mayo. My margins and lymph nodes were clear and so they didn't think traditional chemo would be of benefit for me. I am considered to be in Remission. If the disease has spread then it's a different story and chemo is in order. I am on Tamoxifen for the hormone receptor positive Invasive Ductal tumor. I am 70 and have osteoporosis so I am having infusions of Zometa (an osteoporosis drug that is also given to cancer patients with metastatic bone disease) every 6 months for 3 years. My oncologist said they found that women who have had breast cancer and have been on Zometa have a higher 10 year survival rate than those who have not had Zometa. When I heard that I was ready to start that infusion! It was considered "Chemo Care" on the information I received when getting my 1st infusion at Mayo. Our diagnosis is scary but with daily prayer and optimistic self talk I am doing really well and I am wishing the best for you! Our mindset has a lot to do with our health so let's really believe in our hearts that we will be survivors! We can and will be!