1. < MAC & Bronchiectasis

Trelegy Ellipta

Posted by rosa80 @rosa80, May 30 11:55pm

Does anyone have used this inhaler? My pulmonary doctor prescribed me one, after reading all the side effects I don’t feel like using it.

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liz440 | @liz440 | May 31 7:09am

Trelegy is a combo of a LABA, a LAMA and a steroid. Many people here take either a LABA and a steroid or a LAMA and a steroid. I don't think the side effects would be worse than either of these two alone. Maybe one steroid is safer than another though. I took Trelegy briefly and nothing bad happened to me. You probably do need some sort of long acting beta agonist (sp?) or the LAMA to keep your lungs open as much as possible all day. There are quite a number of two medication inhalers that include lamas or labas without the three combo but I don't know which one has the least side effects .

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reneemc | @reneemc | May 31 1:32pm

I use Anoro because it doesn’t contain a steroid

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nana43 | @nana43 | Jun 1 6:07am

I used to take Trelegy (b4 being diagnosis MAC) for Bronchiectasis. I had no side effects and found effective. However, since MAC, I was concerned about using a steroid due to some studies linking the use to additional risk of MAC. I asked doc to change and he put me on Stilito RESPIMAT. Currently been using for over a year with no effects. ALSO, the drug company has a program that allows me to fill the script for FREE. Don’t know how long that will last- but grateful!
Hope this helps! Dee

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1 reply
ginnysc | @ginnysc | Jun 1 7:47pm

I've used Trilogy for a year now, with the only effect being that my voice has become hoarse since I started it.

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janskallerud | @janskallerud | Jun 2 8:29pm

I tried using Trelegy, but after 5 days I was so hoarse that all I could do was whisper. Doctor told me to discontinue use.

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rosa80 | @rosa80 | Jun 3 1:24am

Thank you, I’m not comfortable using it,because when I had advair I had bad brochospasms.

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rosa80 | @rosa80 | Jun 3 1:27am
In reply to @nana43 "I used to take Trelegy (b4 being diagnosis MAC) for Bronchiectasis. I had no side effects..." + (show)
@nana43

I used to take Trelegy (b4 being diagnosis MAC) for Bronchiectasis. I had no side effects and found effective. However, since MAC, I was concerned about using a steroid due to some studies linking the use to additional risk of MAC. I asked doc to change and he put me on Stilito RESPIMAT. Currently been using for over a year with no effects. ALSO, the drug company has a program that allows me to fill the script for FREE. Don’t know how long that will last- but grateful!
Hope this helps! Dee

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Thank you,great info because I have MAC too

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hicopd | @hicopd | 5 days ago

I’ve been on Trelegy since 11/21. So far so good. The only problem was the pharmacy in SF tried to tell me that one Ellipta was 60 doses and I had to tell them over 2 days that no, it was only a 30 day supply. They finally got it straight before I paid so I wouldn’t run out for days 31-60!

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spider109 | @spider109 | 5 days ago

Are you on Trelegy because of your Bronchiectasis diagnosis or a different diagnosis? I take Annoro Elipta but have been trying to get my Dr. to let me try Trelegy but no luck so far. The Annoro has seemed to loose some of it’s effectiveness.

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