Anyone had immunotherapy for treating soft tissue sarcoma?

Posted by kenc @kenc, Feb 20, 2025

I have soft tissue sarcoma cancer in my left thigh. Competed radiation therapy, now scheduled for surgery. The oncologist said my age limits my ability for chemotherapy, the surgeon said there is evidence of for good recovery result from immunotherapy. The oncologist first said is an avenue for treatment and said perhaps not, because she believes I have an autoimmune deficiency, because of the Colitis disease I had and was treated via surgery over a decade ago. The colorectal surgeon said no, the intestines were removed and no autoimmune disease exists from that ailment. Has anyone had experience with using the immunotherapy for treating sarcoma cancer?

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@quichewithmayo
Hi there. I was diagnosed with stage 3 indifferentiated pleomorphic sarcoma. Have had consults at UCDavis, UCSF (Dr. Monga & Dr. Murray - surgeon). Last consult scheduled at Stanford next week. Before we knew the exact type, both institutions recommended 5 weeks radiation, 1 month to heal, followed by surgery. Following further pathology, Dr. Monga now recommends immunotherapy for 1 year. I am close to your age - 69. Was the only side effect you had diarrhea, as I can handle that. It’s the risks to thyroid etc etc that concerns me. Any thoughts?

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@czhealth There are different solutions used for immunotherapy. I am being administered Keytruda. So far, no side effects. As with all medications, the risk to benefit has to be weighed before deciding to take the medication. I recommend relying on the advice of your doctor or if doubt seek out another opinion. I am receiving chemo and immunotherapy administered by the Barnes Jewish Siteman Ctr for Cancer treatment. They have a clinic specializing in the treatment of Sarcoma Cancer.

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