Treatments for long term incontinence after RP

Posted by jsh327 @jsh327, 5 days ago

I am posting this on behalf of @phl6953, Replies should be sent to @phl6953. A simplified Chinese translation (Google Translate) is pasted below the English language version

@phl6953 I underwent radical surgery for prostate cancer on January 7, 2023. Unfortunately, my prostate cancer reached the nerves outside of the prostate, so they were not saved during surgery. I have been suffering from urinary incontinence ever since. What is your experience with treatments that successfully stopped or greatly reduced incontinence?

As background, I will be 71 next month. My health has always been good, I swim in public water almost every day, 365 days a year. I have been doing Kegel exercises of three sets a day - morning, afternoon, and evening - of 20 minutes each with 10 second muscle hold and then 10 second muscle relax. In August 2023, I started receiving a treatment of magnetic vibration to the perineum. By February 2024, I woke up with very little leakage and only woke up 1-2 times per night. Unfortunately, in March after having alcohol, I started to have more leakage.

Please help with advice based upon your experience.

@phl6953 我于 2023 年 1 月 7 日接受了前列腺癌根治手术。不幸的是,我的前列腺癌扩散到了前列腺外的神经,因此在手术中未能挽救。从那时起,我就一直受到尿失禁的困扰。请问您在成功阻止或大大减少尿失禁的治疗方面有什么经验?

作为背景,我下个月就 71 岁了。我的健康状况一直很好,一年 365 天几乎每天都在公共水域游泳。我一直在做凯格尔运动,每天早、中、晚各做三组,每组 20 分钟,肌肉保持 10 秒钟,然后肌肉放松 10 秒钟。2023 年 8 月,我开始接受会阴部磁振治疗。到 2024 年 2 月,我醒来时已经很少漏尿了,每晚只醒 1-2 次。不幸的是,三月份喝酒后,我的漏尿现象开始增多。

请根据您的经验提供建议。

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

I was 73 when I had RP surgery. My doctor told me he had to cut wide on one side in order to remove my cancer. I was incontinent for 10 months. I did Kegels and other abdominal strengthening exercises. After a year, I was 95% continent. However, four months later I had to have surgery to remove two hernias. I had a relapse and it took five months to become continent again. I’m 100 continent now and usually need to get up once or twice a night.
Hang in there. There is hope. I’d also suggest to review what you’re drinking and eating.

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@jerryegge

I was 73 when I had RP surgery. My doctor told me he had to cut wide on one side in order to remove my cancer. I was incontinent for 10 months. I did Kegels and other abdominal strengthening exercises. After a year, I was 95% continent. However, four months later I had to have surgery to remove two hernias. I had a relapse and it took five months to become continent again. I’m 100 continent now and usually need to get up once or twice a night.
Hang in there. There is hope. I’d also suggest to review what you’re drinking and eating.

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Thank you for your reply.
My basic diet is rice.
Add low-sugar vegetables and fruits.
Leaking urine makes me feel nervous.

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@jerryegge

I was 73 when I had RP surgery. My doctor told me he had to cut wide on one side in order to remove my cancer. I was incontinent for 10 months. I did Kegels and other abdominal strengthening exercises. After a year, I was 95% continent. However, four months later I had to have surgery to remove two hernias. I had a relapse and it took five months to become continent again. I’m 100 continent now and usually need to get up once or twice a night.
Hang in there. There is hope. I’d also suggest to review what you’re drinking and eating.

Jump to this post

您的“其他腹部强化练习”是什么内容,很想知道,我可能就是缺乏其他腹部强化练习。是否有专业的指导视频?

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@jerryegge

I was 73 when I had RP surgery. My doctor told me he had to cut wide on one side in order to remove my cancer. I was incontinent for 10 months. I did Kegels and other abdominal strengthening exercises. After a year, I was 95% continent. However, four months later I had to have surgery to remove two hernias. I had a relapse and it took five months to become continent again. I’m 100 continent now and usually need to get up once or twice a night.
Hang in there. There is hope. I’d also suggest to review what you’re drinking and eating.

Jump to this post

您的“其他腹部强化练习”是什么内容,很想知道,我可能就是缺乏其他腹部强化练习。是否有专业的指导视频?
What is the content of your "other abdominal strengthening exercises"? I would like to know, but I may just lack other abdominal strengthening exercises. Is there a professional instructional video?
The above English is translated by my mobile phone translation machine!

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Abdominal exercise ideas: I’d suggest to look on YouTube. Look for videos on Pilates.

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@jerryegge

Abdominal exercise ideas: I’d suggest to look on YouTube. Look for videos on Pilates.

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谢谢您的指导!因为我是中国人,对美国的一些事情不会很清楚和理解。麻烦您告诉我:在YouTube中寻找普拉提的视频,“普拉提”是什么?

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@jerryegge

Abdominal exercise ideas: I’d suggest to look on YouTube. Look for videos on Pilates.

Jump to this post

我已经找到普拉提的视频,里面有很多锻炼身体的视频,对腹部的锻炼也很多,真是目不暇接!但看花了眼,不知道选哪一个?请您推荐数个,只要网址就行。谢谢,多有打扰!

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@jerryegge

I was 73 when I had RP surgery. My doctor told me he had to cut wide on one side in order to remove my cancer. I was incontinent for 10 months. I did Kegels and other abdominal strengthening exercises. After a year, I was 95% continent. However, four months later I had to have surgery to remove two hernias. I had a relapse and it took five months to become continent again. I’m 100 continent now and usually need to get up once or twice a night.
Hang in there. There is hope. I’d also suggest to review what you’re drinking and eating.

Jump to this post

@jerryegge 先生,早上好!
由于时差的关系,我与您的交流可能打扰了您,在此表示深切的道歉!
但是您的治疗和康复对我很有启发、借鉴和鼓励,非常感谢您所做的!
请您在YouTube上查找有关您做过的普拉提的腹部锻炼视频,把网址复制后发到这里即可。
衷心感谢!

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今天我患前列腺癌和手术后一个关键点节点。去年元月7日手术,至5月PSA指标0.057,6月决定内分泌治疗,于14日注射第一针。9月14日注射第2针、12月14日注射第3针。PSA指标呈下降趋势,至今年3月14日PSA指标又为0.01。6月14日是我最后一针的半年日,今天检查的PSA指标0.000(ng/ml),参考值(0--4);睾酮T0.2(ng/ml)。参考值(男性1.42-9)。太太知道后很是高兴,现在我就剩下尿失禁!
上帝呀,承救我吧,几时才能够成为一个100%的大陆人!

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