Treatment for NHL: Rituximab & Bendamustine

Posted by chuck218 @chuck218, Tue, Jun 18 6:08pm

will be starting treatment for NHL two days a month for six months. Any tips or things I should be concerned about? Rituximab & Bendamustine

It is important to remember our differences here on Connect. Each member brings their own experiences, background, beliefs, and knowledge to Connect and more often than not, that is the strength of a diverse community. However, it is good to keep the Community Guidelines (https://connect.mayoclinic.org/page/about-connect/tab/community-guidelines/) in mind when posting.

In particular, Section 2 states:
– Be inclusive. Not everyone shares the same religious or political beliefs. Don't impose your beliefs on others.
– Exercise tolerance and respect toward other participants whose views may differ from your own. Disagreements are fine, but mutual respect is a must.

Back to Non-Hodgkin's Lymphoma and Rituxan treatments. @susanlim, you had mentioned in another discussion that you were still in the wait and watch phase, is this still true or are you potentially facing Rituxan or another treatment? @quiteachiver75, if you are comfortable sharing, have you been diagnosed with NHL as well?

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@JustinMcClanahan

It is important to remember our differences here on Connect. Each member brings their own experiences, background, beliefs, and knowledge to Connect and more often than not, that is the strength of a diverse community. However, it is good to keep the Community Guidelines (https://connect.mayoclinic.org/page/about-connect/tab/community-guidelines/) in mind when posting.

In particular, Section 2 states:
– Be inclusive. Not everyone shares the same religious or political beliefs. Don't impose your beliefs on others.
– Exercise tolerance and respect toward other participants whose views may differ from your own. Disagreements are fine, but mutual respect is a must.

Back to Non-Hodgkin's Lymphoma and Rituxan treatments. @susanlim, you had mentioned in another discussion that you were still in the wait and watch phase, is this still true or are you potentially facing Rituxan or another treatment? @quiteachiver75, if you are comfortable sharing, have you been diagnosed with NHL as well?

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Thank you. Agreed.

I am still on watch and wait. A question I had for the group is why do you all seem to have annual CT scans? My doctor is fully opposed to this, saying it subjects the body to unnecessary radiation. The basic protocol I am living with is that in the absence of symptoms or difficult or stigmatizing tumors, that we do nothing except periodic check ups and blood work. I’d be interested in hearing the reasoning behind the annual cat scans.

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@zellheff

Yes that’s right – we did touch base in the spring. Thanks for your reply. I’ll post on how our son is doing. He will be staying with us – we’re calling our place his rehab. Center – and will I’m sure drive him crazy with protocols to avoid infections. From what I’m gathering – video games will be his means of staying sane during this time. I’ve offered to teach him to knit – not interested. 🙂
Hope you continue to do well – it’s good to hear from other folks with this same rare version of Hodgkins.

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Checking in to see how your son is doing (and you as the caretaker)…..

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