What helped your seizures: Treatment Center? Neurologist? Home care?

@27angel

Hello everyone and hope everyone is doing well with the Merry Christmas and, a Happy New Year,
I decieded to spend this year with little to none people to prevent a overwhelming event. I was not sure if I could be with too many people that I always be around. I know not being able to do some task as I wished but I can say I did not have another one and my hormone seem under control as longs a I connect here and with a support group. Groups help improve my memory and help me feel connected with something. I hope everyone continues to allow alot of professionals to share there research. I know drinking one cup of coffee I will leave the words that I misspelled here so that I know how much my neuro side has improve appreciate all of you. Repair, Recovery, and Support.

@27angel I think it took about 6 months before I could get in with mine. It is definitely a process. Hopefully you'll get in soon & get some answers!

home caregiver and family, along with prayer and inner strength that i will recover. i set a goal this time again to make it longer than the last seizure and so far am holding my own but god and family strengths. have a blessed day.

@audo Seeing a epileptologist would come from my primary care doctor. The referral process is taking longer than usual, waiting on Michigan since this where first happens. Everything was going good handling life as it comes, and I pass out after my first born and had a hormone imbalance that led me to get a blood transfusion. It all deadly this is why I trying to do all I hear from those who have life after medical condition since it work before in 2003.

@keeg1010 Completely understand this epilepsy and cause was not even what I woke up thinking, I was thinking healing, but in order to properly heal you must know the start. I agree maybe tapping into genetics which I was already been there with the bloodline since 1918. If they will not say what I know is within my blood, then I can know it not preexisting. Rather something stressful is happening and its reoccurring. and I will not be able to control what is happening to everything I created with other inventors' superhero's in my adult life. Just because my life is stressful, I guess this would shut me down and seek medical help.

@absentsenior Glad to hear I had another vital add on to the seizure. The second symptom was hormone imbalance within the reproductive system. So painful the seizure no pain before or after just short-term and long-term memory. Cognitive, balance, sensation, level of voice so stress so my blood unbalance inside the reproductive system. Also respiratory as well blood pressure and temperature was low. Because I can only use what's available which after a first seizure get 24hr care just because you wont recognize your body. I just so happen to be in a facility, hospital, impatient, outpatient clinic food is more closer that makes it better now that I finally on one of the prescription to correct the neurological deficiency. According to six months of hormone treatment I am watched 24hr if something happens vital Ohio Health will impatient until the problem dissolve. Outpatient every three days working on transport due to my own way of life walking enjoying the day ,so yeah these are the three since one month ago things change for a short-term acceptance. Praying for a full recovery

I too am a patient at Mayo in Phoenix. My Epileptologist is Dr. Draz (Drazkowski). My first appointment at Mayo was also well over an hour. Most importantly, Draz listens to me and encourages me to do my own research. Mayo has all the different varieties of neurologists. I was sent to a Movement Neurologist for my blepharospams. He and Draz worked together to help me. Because of my memory issues he encourages me to record our sessions. I've seen a lot of medical doctors and specialists for various conditions in my life and have never been treated as well by any of them as I have by Mayo.

@mercuryrose

Congratulations on being seizure free for 2 years! Yes I found that Keppra works well for preventing my focal seizures, caused by “ a scar on your brain” quoting my neurologist.

@mercuryrose Correct medication would help the focus is seeeing my past history before the treatment to them I already been diagnosed they just seeing is any new treatment since 2003 I keep you posted on this seziure and hormone imbalance. Wayne State University and American Red Cross is a alot to find but to healthcare connected thru that could make history if a cure is available. It worked this long I accomplish much down thru years I posted on Facebook, Youtube, and TIKTOK of the life I lived after 2003.