What helped your seizures: Treatment Center? Neurologist? Home care?
Has anyone improve there seizure symptoms via treatment center, neurologist, or home caregiver. Of the following which one was more effective.
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@27angel I think it took about 6 months before I could get in with mine. It is definitely a process. Hopefully you'll get in soon & get some answers!
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2 Reactionshome caregiver and family, along with prayer and inner strength that i will recover. i set a goal this time again to make it longer than the last seizure and so far am holding my own but god and family strengths. have a blessed day.
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3 Reactions@audo Seeing a epileptologist would come from my primary care doctor. The referral process is taking longer than usual, waiting on Michigan since this where first happens. Everything was going good handling life as it comes, and I pass out after my first born and had a hormone imbalance that led me to get a blood transfusion. It all deadly this is why I trying to do all I hear from those who have life after medical condition since it work before in 2003.
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1 Reaction@keeg1010 Completely understand this epilepsy and cause was not even what I woke up thinking, I was thinking healing, but in order to properly heal you must know the start. I agree maybe tapping into genetics which I was already been there with the bloodline since 1918. If they will not say what I know is within my blood, then I can know it not preexisting. Rather something stressful is happening and its reoccurring. and I will not be able to control what is happening to everything I created with other inventors' superhero's in my adult life. Just because my life is stressful, I guess this would shut me down and seek medical help.
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2 Reactions@absentsenior Glad to hear I had another vital add on to the seizure. The second symptom was hormone imbalance within the reproductive system. So painful the seizure no pain before or after just short-term and long-term memory. Cognitive, balance, sensation, level of voice so stress so my blood unbalance inside the reproductive system. Also respiratory as well blood pressure and temperature was low. Because I can only use what's available which after a first seizure get 24hr care just because you wont recognize your body. I just so happen to be in a facility, hospital, impatient, outpatient clinic food is more closer that makes it better now that I finally on one of the prescription to correct the neurological deficiency. According to six months of hormone treatment I am watched 24hr if something happens vital Ohio Health will impatient until the problem dissolve. Outpatient every three days working on transport due to my own way of life walking enjoying the day ,so yeah these are the three since one month ago things change for a short-term acceptance. Praying for a full recovery
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1 ReactionI too am a patient at Mayo in Phoenix. My Epileptologist is Dr. Draz (Drazkowski). My first appointment at Mayo was also well over an hour. Most importantly, Draz listens to me and encourages me to do my own research. Mayo has all the different varieties of neurologists. I was sent to a Movement Neurologist for my blepharospams. He and Draz worked together to help me. Because of my memory issues he encourages me to record our sessions. I've seen a lot of medical doctors and specialists for various conditions in my life and have never been treated as well by any of them as I have by Mayo.
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6 Reactions@mercuryrose
Congratulations on being seizure free for 2 years! Yes I found that Keppra works well for preventing my focal seizures, caused by “ a scar on your brain” quoting my neurologist.
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4 Reactions@mercuryrose Correct medication would help the focus is seeeing my past history before the treatment to them I already been diagnosed they just seeing is any new treatment since 2003 I keep you posted on this seziure and hormone imbalance. Wayne State University and American Red Cross is a alot to find but to healthcare connected thru that could make history if a cure is available. It worked this long I accomplish much down thru years I posted on Facebook, Youtube, and TIKTOK of the life I lived after 2003.
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1 Reaction@santosha I can understand that a calmer approach is the new treatment for my supposedly diagnosis as science will clear my next move. Rather theraphy or treatment that is the goal I need is to be able to change the game on waiting for the final results. I may have new evidence that calm me down just 12/11/2025 another deadly symptom arrive I dont have paid 24hr asssistance the Van Buren Housing situation oversees and was able to call EMS for care vital very vital. Once my results from my horomones I believe are in then they may be associatee with taking on too much. A lighter schedule could be made with the rest in the future right now just take meds and live thank you. I understand health I am from Michigan which is the most leading hospital so for Ohio Health to know HFHS perfect another relief very stressful trusting a Emergency Room Doctor so for the 4 time things have been corrected.
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2 Reactions@27angel
When my seizures got worse and my memory started to decline, my first reaction was to fight back. But honestly, that approach hurt me more than it helped. The harder I fought against the changes, the more painful they became to accept.
What really helped was learning to accept these changes instead of trying to continue with my life as it once was. That acceptance gave me a sense of peace and helped me find my smile again.
There's a principle in yoga called Ahimsa that was a true game-changer for me. It means "non-violence" or "non-harming"—including toward ourselves. I realized that trying to fight back was actually a form of violence against myself.
Please try to be as gentle as possible with yourself right now, especially while you're waiting to start treatment that will help you feel better.
Chris
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