What helped your seizures: Treatment Center? Neurologist? Home care?

I’m sorry that you haven’t been able to get relief from your seizures. It’s a very difficult situation to deal with. My seizures have been focal which occasionally would generalize.

For me it maybe was slightly easier for the neurologist to know what drugs to try. I had surgery for a meningioma that caused a stroke. The combination of tumor, stroke and surgery left me with a “scar on the brain” according to him. He tried Keppra and kept increasing the dose. I kept having seizures, but milder and milder as the dose increased. Finally the phlebotomist who drew my blood for the Keppra titer volunteered that she had epilepsy and regular Keppra did not control her seizures, but extended release Keppra did. I asked my neurologist about Keppra XR and he agreed to try it and it worked. Best wishes as you go forward.

@methel I stopped meds in 2012 as I had no luck with drugs I tried over about 8yrs. What are the drugs you are on & what type of seizures do you have. Glad they have worked for you. Take Care

@lisalucier
just did a repost to her and her son. added that things can get better and possibly a better message. thank you for letting me know. have a blessed day today.

Hi @27angel
What wonderful news to start the new year! I'm so happy to hear this.
Have you already scheduled an appointment with a neurologist or epileptologist?
Crossing my fingers for you!
Chris

Now that i had that horome imbalance I had to make sure its under control. Finally I return back to epiletologist and neurololgist see I studied Medical terminolgy these words should be remembered. So now after the 25th I return for testing, etc. Communication socially has been helpful. 24hr is also helpful. Wlaking is helpful. Talking is helpful. Hygiene really comforts me. massages seem to be great. I will be back with a new plan of care due to memory, stability, congnitive, and keyboarding, agression really agressive. This is the testing I notice very frustrating.

Great new I have my insurance now I can get tested and diagnosis. I still waiting to see how bad it is before I ger the care I need to bring my memory back. I have been around a good support system I was working with the mental stress with attending meeting where people experience life outside of there understnding. Not having control over things in life can be irritating so I just working with the clinic and emergeny room for now as always I will leave the words uncorrected to see if my brain is returning so bare with me. Happy New Year working with health all 2026

thank you

@randallshields56
I do something similar, Randy. Since my seizures start with an aura, I have time to raise my hand and say "seizure." When my husband isn't next to me, I can usually walk to his home office and catch his eye. He's learned to recognize that look instantly – he knows what's coming. My seizures are mostly focal, starting with an aura and evolving to focal impaired awareness seizures (or complex partial seizures, as they were once called).
When that happens, my husband holds my hand and hugs me. He says I sometimes hug him back. Having that physical connection during a seizure really brings me comfort. Afterward, he takes me to bed and stays with me until I can speak again.
I'm curious – what do your family members do when a seizure is starting to help ease the experience for you?
Chris

thank you again, seems like we get some of every generation in here to get
to know each other better and help better.

thank you with the helpful.