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Treatment Center Options - Aggressive Prostate Cancer
Hello - my BIL (61) had his first PSA done a couple of months ago with a 7.1 result. MRI and biopsies showed Gleason 9 with PNI and swollen pelvic lymph node. PSMA CT scheduled for next week. Urologic oncologist said very bad cancer. Can anyone recommend a treatment center that may be better than your standard local oncology team - Mayo Clinic? MD Anderson? Johns Hopkins? Thanks
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@jeffmarc is he a urology oncologist?
@johndavis60 my husband is seeing a dr at Mary Bird in Metairie. Not sure we’ll stick with him. I’m i in interested to find out about others in the event we look for a second opinion.
@gemini27
Dr. Sartor is a Genito urinary oncologist.
@jeffmarc awesome. Question for you- how important do you think a center of excellence is? MD Anderson is a 5 hour drive so it’s doable. But if an excellent Dr like Sartor is so close (lil over an hour), I wonder about the difference in care/approach.
@gemini27
I ask Rick Davis at ancan.org About your question. He’s been helping people for 15 years with advice about treatment. You could come to a meeting at ancan.org.org For more information.
Rick’s Adviice
Sartor is as good as anyone at MDA.
That said, he has a bias to radionuclide therapy and also to trials. Any patient should be cognizant of academic conflict of interest.
I also think Dr. Efstathiou is the best GU MO in the region, even though she's at Houston Methodist.
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1 Reaction@jeffmarc… I put husbands info into chatgpt. He’s had radiation and still on ADT (18 months plan). Undetectable now. Dr not checking PSA for 6 months. All meets minimum guidelines. He’s never discussed any of these decipher results other than said will have to be monitored closely after finishing ADT. Or never mentioned researching clinical trials. I’m starting to research other doctors. Your contact gave Dr Sartor at Tulane and MD Anderson is doable. Just wanted to share why I’m thinking we should consider other options.
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Oh, I tried to send a pic of summary doesn’t look like it posted?
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@gemini27
If you’re willing to go to Houston, you would be better off seeing
Dr. Efstathiou is the best GU MO in the region, even though she's at Houston Methodist.
I know a lot of people that have Used her as their main oncologist and are extremely pleased with her. She really knows what she’s doing. She Will spend a lot of time with you and explain things in English you can understand..
I was and continue to be very happy with my Urologist at Hopkins Dr. Christian Pavlovich and my RO at Thomas Jefferson Hospital Dr. Michael Greenberg. Hope that helps
@jeffmarc I am approx approx 5 months dx with prostate cancer gleason 7 3+4 and 1 biopsy 4+3 woth cribiform glands. After doing my own thorough research was able to get in a trial at Memorial Sloan Kettering for a monoclonal antibody treatment started 9/23 along with ADT started 9/2 . So far so good. Monoclonals are the way to go when it cones to killing cancer.
@richiec
Are you referring to Provenge? That’s really the only Monoclonal antibody Available for prostate cancer itself, Unless you are involved in a clinical study. When you have Proveng it does not lower your PSA. It’s something you should have when your PSA is low and it will hopefully prevent the cancer from getting worse. Unfortunately it isn’t such a panacea.
Provenge extends survival for men with advanced, asymptomatic or minimally symptomatic metastatic castration-resistant prostate cancer (mCRPC), with an average survival benefit of 4.1 months in clinical trials compared to placebo.