Traumatic Brain Injury: Come introduce yourself

Hi @totto, you are posting perfectly.

Totto, if you want to ask a question on a specific topic, you can start a discussion
Here's how to start a new discussion:
1. Go to the TBI group page: https://connect.mayoclinic.org/group/traumatic-brain-injury-tbi/
2. Click the grey START A DISCUSSION button.
3. Enter a title, like "What medications work for you?"
4. Write your message.
5. Click POST DISCUSSION.

I'd like to bring in @wendybia from the Brain Injury Alliance. She can recommend other support groups too.

@totto, what is your biggest challenge at the moment? What small steps are you taking on the road to recovery?

Hi Colleen, I am trying to get familiar with how to use all the resources offered by the Mayo Clinic. Is this the main area where I can post questions about TBI and communicate with others living with TBI? Also do you recommend any other support groups to join as related to TBI?

My PT had to do that eye business for weeks - looking at an x in the wall and moving my head up and down, back and forth. Didn’t prove long lasting. There are days when I feel like Im sailing through rough seas all day long. Where did you get the I.D. Card? I’m an ex-Sheriff Deputy and I keep my old badge in my car because I know if I get pulled over for any reason I’ll fail a field sobriety test! A card would sure be usefull!

I have indeed brought it up. First to my primary, then to all my therapy peeps, and the one thing that was helping was the acupuncture. Which Medicare and my car insurance people are now debating.

In Sept 2019 I was on my way home from work when the traffic on I-94 came to a stop due to a car fire ahead. I was stopped when a loaded gravel truck rear ended my car going between 60-65mph according to the police report. My car did a 180 from the passing lane through the drive lane and came to rest in the ditch facing the direction I just came from. The truck hit tre car in front of me did basically the same except into the center ditch. Then the truck continued on into the drive lane and rolled on to the drivers side dumping gravel all over the interstate. I didn’t know the extent of my injury until people around me identified signs and symptoms of concern. Physically I did not appear injured but there was definitely something going on with my head. The first few weeks it seemed that medical providers were so focused on a symptom that they couldn’t step back and look at the big picture and how the collection of symptoms might be connected. Finally, a PA who saw me as a walk-in at my small town clinic reviewed everything since the accident and referred me to a neurologist. That was the first step in the right direction (and continuing to bug until someone listened). Recovery has been slow and frustrating at times. I don’t adapt to change very well, task loading is like rocket science and the one thing I know for sure Is I can’t ‘push through’ like I used to do. I have supportive people in my life who check in with me. I have been working from home (I’m only working 32 hrs because of brain injury) but decided to go back to the office last week because there will be about 4 big (for the new me) changes and I didn’t wast to have them all at once. So I worked 3 days at the office and Friday I was so fatigued I was out by 6:30pm.

Hi Folks, this is Ann from South St Paul--just joined the project yesterday and am SO happy that the computer algorithm put me in the Remote Care group. I just spent a few minutes browsing various posts here and have already found three specific things to try out for dealing with the dizziness. This is going to be a valuable resource. My TBI journey began last Dec. 28, day of a big ice storm in the Twin Cities. I was headed out at 7:30 a.m. as usual, to start my day with an hour of laps in a nearby pool. I slipped on the ice, landing in the middle of the street, knocked out. I came to expecting to be run over. It was very scary to lie in the street, calling for help and have no one come for a long time. Ended up in the hospital for a couple of days, no brain bleed, but a nasty scalp wound, persistent headache, bad dizzies, fatigue, and speech deficits. Speech and physical therapy over the next months helped a lot, but all closed down in March and my progress slowed down too. I'm looking forward, now 7 months out, to discovering things I can do on my own to improve.

Hi Folks, this is Ann from South St Paul--just joined the project yesterday and am SO happy that the computer algorithm put me in the Remote Care group. I just spent a few minutes browsing various posts here and have already found three specific things to try out for dealing with the dizziness. This is going to be a valuable resource. My TBI journey began last Dec. 28, day of a big ice storm in the Twin Cities. I was headed out at 7:30 a.m. as usual, to start my day with an hour of laps in a nearby pool. I slipped on the ice, landing in the middle of the street, knocked out. I came to expecting to be run over. It was very scary to lie in the street, calling for help and have no one come for a long time. Ended up in the hospital for a couple of days, no brain bleed, but a nasty scalp wound, persistent headache, bad dizzies, fatigue, and speech deficits. Speech and physical therapy over the next months helped a lot, but all closed down in March and my progress slowed down too. I'm looking forward, now 7 months out, to discovering things I can do on my own to improve.