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Transplant News and Events

Posted by Kristin Eggebraaten @keggebraaten, Feb 20, 2018

Hello everyone!
Many events are held each year and many news stories are published that may interest the transplant community. We thought it might be nice to let people know of some of these events and stories, even if they may not apply to everyone. In this discussion, feel free to post events and news stories that might be of interest to transplant patients, caregivers, or donors.

Of note, be sure that your posts don’t violate any of the rules of Connect – you can find those here: https://connect.mayoclinic.org/community-guidelines/.
Specifically, please be sure you don’t post commercial postings, advertisements or solicitations.

  • Postings such as advertisements for your business, get-rich-quick schemes or solicitations for a charity will be removed. Unfortunately, it is impossible to verify the validity of each and every organization that solicits donations; therefore, to protect you from fraud, we must prohibit solicitations for charities.

What events are you looking forward to?

Interested in more discussions like this? Go to the Transplants Support Group.

edb1123 | @edb1123 | May 4, 2022

Hi, Kristin: I am not familiar with this picnic. Do some of the Mayo Clinic BMT Dept. staff also attend?

My 2-year “rebirthday” from a bone marrow transplant is July 22nd, and I would like to do something special for my BMT team. If they don’t attend the picnic, would it be possible to bring them a cake or something at the clinic? Not sure if you can answer that but any info is appreciated!

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2 replies
Kristin Eggebraaten | @keggebraaten | May 3, 2022

Rochester Transplant Patients - this is the moment you've all been waiting for! We are ready to plan for the Annual Transplant Patient Picnic! While we are still cautious about COVID numbers and concerns about gathering, our outside event will go on this year! See the attached flyer for info. The date of the picnic will be July 31, 2022, and will be held outside at Soldier's Field Park. We will be closely monitoring the COVID situation, and any changes in the event will be communicated through here and on our Facebook page (Transplantation at Mayo Clinic).
Feel free to share this information with all Mayo-Rochester transplant patients! We are excited for some great company and good food!

Shared files

Save the Date (Save-the-Date.pdf)

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Mentor
Ginger, Volunteer Mentor | @gingerw | Feb 23, 2022
In reply to @keggebraaten "Hello everyone! I wanted to let you know that Donate Life has released the images and..." + (show)
@keggebraaten

Hello everyone! I wanted to let you know that Donate Life has released the images and theme for 2022 Donate Life Month in April. This year the theme is "Bee a Donor" and the image is beautiful and attached to this note. For the last 2 years the transplant centers have struggled to celebrate Donate Life month due to COVID and our inability to gather people together. This year appears to be no different. Even though cases are falling, it would still be bad judgement to organize group gatherings on a transplant topic.

What activities have you done for Donate Life month? How do you think transplant centers and others should celebrate the amazing gift of organ donation in April this year?

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@keggebraaten My husband and I have participated in several Donate Life events. I particularly enjoy the large outdoor events that include walks of different lengths, with teams of people representing different transplant centers/groups. There is a wonderful energy as people from so many walks of life are able to see, in-person, how transplants and organ donation affect so many others, from family members to medical professionals.

Unfortunately, I think it is still too soon to promote in-person events unless we can be assured of minimal contact and exposure to COVID, which can't be promised! Too bad there couldn't be a media special like the Stand Up to Cancer specials, or somesuch event!
Ginger

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Kristin Eggebraaten | @keggebraaten | Feb 23, 2022

Hello everyone! I wanted to let you know that Donate Life has released the images and theme for 2022 Donate Life Month in April. This year the theme is "Bee a Donor" and the image is beautiful and attached to this note. For the last 2 years the transplant centers have struggled to celebrate Donate Life month due to COVID and our inability to gather people together. This year appears to be no different. Even though cases are falling, it would still be bad judgement to organize group gatherings on a transplant topic.

What activities have you done for Donate Life month? How do you think transplant centers and others should celebrate the amazing gift of organ donation in April this year?
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1 reply
Kristin Eggebraaten | @keggebraaten | Oct 20, 2021

Calling all kidney patients/caregivers/friends/family!
Mayo Clinic has partnered with the National Kidney Foundation (NKF) to bring you some amazing webinar content. You can sign up for any of the upcoming webinars, including one on 11/21/21 titled "Finding a Living Donor" where our doctor, Dr. Issa and team will talk more about kidney transplant and how to find a living donor. Register today!
https://www.kidney.org/offices/nkf-serving-minnesota
*On right side of page under "Upcoming Events" is a link to the webinar. Click the "register now" link and sign up! Email us at transplant-rst@mayo.edu if you have issues or questions about this webinar.

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Kristin Eggebraaten | @keggebraaten | Mar 25, 2021
In reply to @colleenyoung "Thanks, @keggebraaten. I think @loriBMT and other fellow BMTers and SCTers like @kjjjrader @tedwueste @rwalkie @tmvanla..." + (show)
@colleenyoung

Thanks, @keggebraaten. I think @loribmt and other fellow BMTers and SCTers like @kjjjrader @tedwueste @rwalkie @tmvanla @waveg @duttasujata @edb1123 @mjpm2406 @buckyc71 @javajude @jeaniecm @evett @ckeys @jeremy88 @chickey @mjrussell2 @motherboard @lel @gorjis1 @zellheff @auntieoakley @craigkopcho @bobby2014 and @lakegirl409 will be interested in this Mayo Clinic and BMT InfoNet Symposium.

It's quite the line up of speakers over the week from April 17-23. And it's virtual. So people can attend from the comfort of their own home and attend the sessions that interest them.
- Link to Register: https://www.bmtinfonet.org/2021-celebrating-second-chance-life-survivorship-symposium-0
- Link to the Agenda and Session Descriptions: https://www.bmtinfonet.org/agenda-2021-celebrating-second-chance-life-survivorship-symposium
- Link to How to Attend a Virtual Symposium: https://www.bmtinfonet.org/how-does-virtual-symposium-work-0

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I've been to this conference in person and it's full of great topics that would interest a patient or caregiver. Patients had nothing but great things to say about it in the past, if that helps anyone make a decision to spend their time on this during these spring days ahead.

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edb1123 | @edb1123 | Mar 24, 2021
In reply to @colleenyoung "Thanks, @keggebraaten. I think @loriBMT and other fellow BMTers and SCTers like @kjjjrader @tedwueste @rwalkie @tmvanla..." + (show)
@colleenyoung

Thanks, @keggebraaten. I think @loribmt and other fellow BMTers and SCTers like @kjjjrader @tedwueste @rwalkie @tmvanla @waveg @duttasujata @edb1123 @mjpm2406 @buckyc71 @javajude @jeaniecm @evett @ckeys @jeremy88 @chickey @mjrussell2 @motherboard @lel @gorjis1 @zellheff @auntieoakley @craigkopcho @bobby2014 and @lakegirl409 will be interested in this Mayo Clinic and BMT InfoNet Symposium.

It's quite the line up of speakers over the week from April 17-23. And it's virtual. So people can attend from the comfort of their own home and attend the sessions that interest them.
- Link to Register: https://www.bmtinfonet.org/2021-celebrating-second-chance-life-survivorship-symposium-0
- Link to the Agenda and Session Descriptions: https://www.bmtinfonet.org/agenda-2021-celebrating-second-chance-life-survivorship-symposium
- Link to How to Attend a Virtual Symposium: https://www.bmtinfonet.org/how-does-virtual-symposium-work-0

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Thanks, Lori. I have registered for several of the sessions. Should be very informative!

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Moderator
Colleen Young, Connect Director | @colleenyoung | Mar 24, 2021
In reply to @keggebraaten "Educate, Engage and Empower: A virtual symposium for bone marrow, stem cell and cord blood transplant..." + (show)
@keggebraaten

Educate, Engage and Empower: A virtual symposium for bone marrow, stem cell and cord blood transplant survivors and caregivers hosted by BMT InfoNet. Mayo Clinic is proud to partner with BMT InfoNet to bring valuable information about post-transplant issues to survivors, caregivers and healthcare providers. Register at http://www.bmtinfonet.org/2021symposium Join us April 17-23.

Jump to this post

Thanks, @keggebraaten. I think @loribmt and other fellow BMTers and SCTers like @kjjjrader @tedwueste @rwalkie @tmvanla @waveg @duttasujata @edb1123 @mjpm2406 @buckyc71 @javajude @jeaniecm @evett @ckeys @jeremy88 @chickey @mjrussell2 @motherboard @lel @gorjis1 @zellheff @auntieoakley @craigkopcho @bobby2014 and @lakegirl409 will be interested in this Mayo Clinic and BMT InfoNet Symposium.

It's quite the line up of speakers over the week from April 17-23. And it's virtual. So people can attend from the comfort of their own home and attend the sessions that interest them.
- Link to Register: https://www.bmtinfonet.org/2021-celebrating-second-chance-life-survivorship-symposium-0
- Link to the Agenda and Session Descriptions: https://www.bmtinfonet.org/agenda-2021-celebrating-second-chance-life-survivorship-symposium
- Link to How to Attend a Virtual Symposium: https://www.bmtinfonet.org/how-does-virtual-symposium-work-0

REPLY
2 replies
Kristin Eggebraaten | @keggebraaten | Mar 23, 2021

Educate, Engage and Empower: A virtual symposium for bone marrow, stem cell and cord blood transplant survivors and caregivers hosted by BMT InfoNet. Mayo Clinic is proud to partner with BMT InfoNet to bring valuable information about post-transplant issues to survivors, caregivers and healthcare providers. Register at http://www.bmtinfonet.org/2021symposium Join us April 17-23.

REPLY
1 reply
Mentor
Dana, Volunteer Mentor | @danab | Jan 20, 2021

To all I did check with my prescription plan express script which is Thursday Tricare for life that I get with Medicare part b and I too am a bit young for Medicare but if your declared disable after 2 years you get Medicare no matter what age. So it seems I'm not eligible for the meds thru Medicare but I don't pay much anyway. Thru Tricare express script it's only 10.00 for 90 day supplies. So I haven't bothered trying to call Medicare as to why I'm not eligible as a Heart transplant but I do know it seems for a few government thinks being in renal failure gets you things a lot earlier.
Blessings All
Dana

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