Anyone diagnosed with transient epileptic amnesia?

I was diagnosed with TEA 4 years ago.

Hello @albendorf and welcome to Mayo Clinic Connect. I see that @genekranz has joined you to share that they also have experienced a diagnosis with TEA. Another member, @kyoto has also shared receiving the diagnosis. I am hoping they can both share a little with you.

At this point, how are you being treated and what are your main concerns that others may be able to provide support on?

I am experiencing various degrees of chronic headaches. Just curious if they also have these. My seizure was a grand mal seizure where I woke up in the ER. Also wondering what type of seizure they had? Thanks, just want to talk to someone with same issues.

I've been fortunate - no headaches, no hospital admission. I'm sorry to hear about your experience.

My seizures are very mild, and their frequency seems to be pretty well controlled (though not eliminated) with lamotrigine 150 mg twice a day.

I'm going to try to attach some academic papers that I've accumulated over the last few years and might be helpful to you.

Thanks for the information. You’ve done a lot of research on it. I was concerned about the severity of my attacks. I’m going to get a second opinion on my diagnosis and treatment this spring. Amazed at how long it takes to see a neurologist. Hope you are doing well and would like to stay in touch.

Hi @genekranz, I am a carer for someone who has recently been diagnosed with TEA 1 year ago. They are still trying to navigate their diagnosis and we are seeking to reach out and learn from others their experiences on the matter as currently we have not been able to find anyone who shares the same diagnosis. If you or support person are willing to reach out to us and share any insights it would be greatly appreciated!

Hi @albendorf I am a carer for someone who has recently been diagnosed with TEA 1 year ago. They are still trying to navigate their diagnosis and we are seeking to reach out and learn from others their experiences on the matter as currently we have not been able to find anyone who shares the same diagnosis. My client has also been recently experiencing various degrees of chronic headaches which are extremely debilitating for them. If you or support person are willing to reach out to us and share any insights it would be greatly appreciated! Currently we are seeking any information on the diagnosis and learn from everyones experiences.

Be glad to share! I had 2 episodes of TEA and one of TGA. My second TEA episode left me with some memory loss and ongoing varying degrees of chronic headaches. Scans have shown no signs of brain damage or abnormalities. How I get rid of the headaches is to do physical activities such as walking and staying active. Mental activity such as puzzles or reading are helpful also. Good luck and would gladly help out in any other way possible.