total knee replacement

Posted by Susie2 @susie2, Nov 16, 2011

I had a failed knee replacement elsewhere, and went to Mayo for a second opinion. I am considering having a knee revision and would appreciate hearing the experiences of those who have had a revision.

I am also considering a knee revision. Was the consult at Mayo helpful?

I am also considering knee revision. Was the trip to Mayo helpful?

Has anyone had a knee revision?

@melslim

Has anyone had a knee revision?

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Hi, @melslim – welcome to Mayo Clinic Connect. So that you can talk to the most members who'd have experience and insights to contribute to your question, I'd suggest posting your question and any background that might be helpful for other members in this ongoing discussion about after knee replacement: https://connect.mayoclinic.org/discussion/after-knee-replacement-surgery/?pg=18#comment-121209

@melslim

Has anyone had a knee revision?

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I had mine 2 months ago, still painful

@franciesusan

I had mine 2 months ago, still painful

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Hi @franciesusan – Welcome to Connect! Sorry about your pain. I have not had a revision, but I did have a TKR in April 2017. In my experience, 8 weeks is still pretty early. At that point, I was still using tylenol during the day and sometimes something stronger to sleep. By 3 months the pain was very much reduced. Hang in there. Is your pain constant? Or does it vary by time of day and/or activity?

I am 6 wks out from bilateral knee replacement. 130 degrees both knees. Pain is tolerable during the day as I am moving well and taking Aleve or ES Tylenol, however, night time is terrible. I can't get any sleep. No matter what I take for pain, I cannot get comfortable, and thus no sleep. My 4 week post op x-rays showed small amount of effusion and demineraliztion–could that be the cause and should I be worried? My surgeon indicated that the effusion will subside and the demineralization will improve with weight bearing.

@hellothere

I am 6 wks out from bilateral knee replacement. 130 degrees both knees. Pain is tolerable during the day as I am moving well and taking Aleve or ES Tylenol, however, night time is terrible. I can't get any sleep. No matter what I take for pain, I cannot get comfortable, and thus no sleep. My 4 week post op x-rays showed small amount of effusion and demineraliztion–could that be the cause and should I be worried? My surgeon indicated that the effusion will subside and the demineralization will improve with weight bearing.

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At 6 weeks and 130 ROM, you’re a rock star! I’m exactly a year out and still having some difficulty. I was told because of my age(53) , it may be a result of being on the younger side that my body keeps trying to repair itself by rapidly forming scar tissue. Sleep and PM nerve pain was one of the biggest difficulties for me. It got better after 3 months. I literally went that long before I slept more than 2-3 hours per night. I actually began to hallucinate a couple times with the lack of sleep.
Using a heavy duty massager every night seems to help, as well as taking a nightly bath. I also was prescribed gabapentin for nerve pain which helped a little…

@golfshrink

At 6 weeks and 130 ROM, you’re a rock star! I’m exactly a year out and still having some difficulty. I was told because of my age(53) , it may be a result of being on the younger side that my body keeps trying to repair itself by rapidly forming scar tissue. Sleep and PM nerve pain was one of the biggest difficulties for me. It got better after 3 months. I literally went that long before I slept more than 2-3 hours per night. I actually began to hallucinate a couple times with the lack of sleep.
Using a heavy duty massager every night seems to help, as well as taking a nightly bath. I also was prescribed gabapentin for nerve pain which helped a little…

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@golfshrink – I’m 54 and 8.5 months out and have been told the same regarding age, difficulty in recovery and scar tissue. Although counterintuitive, the younger you are the harder a TKR recovery seems to be.

In the course of the docs trying to figure out why I still have so much pain, a revision was also briefly considered. But again – due to age- was “ruled out”. I was told by a professor that teaches revisions to find a way to deal with the pain for 10 years before he would consider a revision due to my young age

@melcpa86

@golfshrink – I’m 54 and 8.5 months out and have been told the same regarding age, difficulty in recovery and scar tissue. Although counterintuitive, the younger you are the harder a TKR recovery seems to be.

In the course of the docs trying to figure out why I still have so much pain, a revision was also briefly considered. But again – due to age- was “ruled out”. I was told by a professor that teaches revisions to find a way to deal with the pain for 10 years before he would consider a revision due to my young age

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Hi Melcpa86, only time being young puts you at a physical disadvantage, right?! I know I was in a lot of pain before my double TKR, but it’s hard to remember. The pain I have now is totally different. I had full ROM before on both knees. I never even thought about this being a problem when I did the surgery.
I know after having had one manipulation where my knees had full ROM immediately after, then daily regression thereafter,revision would produce the same results.
I’ve unfortunately been stymied going back to the gym as I’ve developed planter fasciitis in one foot and a torn Achilles in the other. I went to an Ortho yesterday for the Achilles and he said it’s a result of the TKR replacements. I learned to compensate when my knees were not straight and centered. When they fixed that, it shot my tendons in a bad direction. As you would Suspect, I’m now In a Sophie’s choice predicament . I need to keep exercising for my knees, but somehow wear 2 boots and keep my feet up to take care of my Achilles and plantar fasciitis. Lovely!
I keep checking these posts because I’m looking for hope that people have made gains after the 1 year mark. This is my anniversary week. I’m hoping to still make progress. Most physicians are saying at this point, I should be done gaining any more ROM. I’m finding some antidotal evidence that it’s possible on this posts.

I think I could almost live with a decreased range of motion if upon standing I no longer felt like I was going to pass out . I’m hoping to make this improve by strengthening my quads, but as I previously mentioned, I’m limited with my new afflictions.
Thanks for your reply…

@golfshrink

Hi Melcpa86, only time being young puts you at a physical disadvantage, right?! I know I was in a lot of pain before my double TKR, but it’s hard to remember. The pain I have now is totally different. I had full ROM before on both knees. I never even thought about this being a problem when I did the surgery.
I know after having had one manipulation where my knees had full ROM immediately after, then daily regression thereafter,revision would produce the same results.
I’ve unfortunately been stymied going back to the gym as I’ve developed planter fasciitis in one foot and a torn Achilles in the other. I went to an Ortho yesterday for the Achilles and he said it’s a result of the TKR replacements. I learned to compensate when my knees were not straight and centered. When they fixed that, it shot my tendons in a bad direction. As you would Suspect, I’m now In a Sophie’s choice predicament . I need to keep exercising for my knees, but somehow wear 2 boots and keep my feet up to take care of my Achilles and plantar fasciitis. Lovely!
I keep checking these posts because I’m looking for hope that people have made gains after the 1 year mark. This is my anniversary week. I’m hoping to still make progress. Most physicians are saying at this point, I should be done gaining any more ROM. I’m finding some antidotal evidence that it’s possible on this posts.

I think I could almost live with a decreased range of motion if upon standing I no longer felt like I was going to pass out . I’m hoping to make this improve by strengthening my quads, but as I previously mentioned, I’m limited with my new afflictions.
Thanks for your reply…

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@golfshrink I’m not at the one year mark yet – so can’t help ya there – but completely get the desperation to get enough movement to get back to some semblance of your former life. My TKR is from a running injury and I used exercise to cope with stress. The Achilles sounds awful to deal with on top of the knee issue. I sincerely hope you find some anecdotal evidence that gives you the hope you are looking for.

At 3 months and 1 week after TKR I am still dealing with a good amount of pain. Always present, usually more of an annoyance at level 1-2, but quite often, and especially at rest and at night, it goes up to a 4, with occasional spikes to 5. I am not taking and meds for this, since OTC products do not really seem to help that much on a once-in-awhile basis, and I don’t want to stress my digestive system, liver, etc. by popping pills. I still have Oxycodone, but not taking that either. Here it is 3.30 AM, I’ve been awake for over an hour with “discomfort”. During the evening I mostly use a heating pad for 1/2 hour to pamper the knee, which helps with falling asleep. Other than the pain, everything else is great. Good flex and extension, 100% of the feeling back around the scar (which was only about 5” long to begin with), scar slowly fading, the “sandpaper” skin area down to nickel size. Just trying to hear from other patients when the pain totally ends!

I am one year out from a total knee revision. Pain is still present and no better than before I had the revision although the tibial portion of my original TKR had become debonded so my knee was very unstable before the revision. It is more stable now, but I am plagued by chronic pain

@maryann1753

I am one year out from a total knee revision. Pain is still present and no better than before I had the revision although the tibial portion of my original TKR had become debonded so my knee was very unstable before the revision. It is more stable now, but I am plagued by chronic pain

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Hi @maryann1753 – I'm sorry to hear about your level of pain – especially a year after the revision. It must be terribly frustrating. Are you doing any physical therapy? I hear people saying that sometimes forcing themselves to be active helps reduce the level of discomfort. I had a TKR in April 2017 and I'm having the other knee replaced next month. Fortunately, I didn't have a lot of pain – certainly by 3 months there was very little discomfort. I'm wondering how long it's been since you've checked back in with your doctor? I believe I would see what advice he might have – and if its not satisfactory, seek a second opinion.

I worked with an experienced personal trainer 3x a week for 6 mos after PT and now see the trainer 2x per week. I went to a respected Ortho surgeon for a 2nd opinion just last week. He told me up to 20% of people have pain following the procedure and encouraged me to do daily leg lifts to continue strengthening the VMO area of the quad muscle. It is very frustrating as I should have my left knee partial redone to a total, but I am very fearful.

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