Top MAC doctor/treatment Rochester: Questions to ask at first appt?

Posted by n4seth @n4seth, Apr 2 8:54am

Just recently diagnosed with MAC at Mayo in West Central Wisconsin and unable to get appointment until June probably due to covid 19. From what I have read who and where you receive treatment is vital to successful treatment. Who is the premier/successful doctor at the MAC center Mayo in Rochester?

I'm a pulmonary patient at Rochester and my doctor is Teng Moua. I don't koow how he is rated at Mayo's but when they assigned me to him, they said he was one of the best. (Of course, they probably say that about all — and frankly, I think they are all equally qualified. They rather work as a team and they consult with their colleagues on most everything) I think you will be pleased but please write again after you've been there.

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I also see have been seeing Dr. Moua at Mayo since 2017. I appreciate his knowledge, thoroughness and compassion.

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It's really nice to know someone else using Dr Moua. Am wondering if I could get your email address. Would perhaps like to correspond with you from time to time. I started seeing him in 2015. Will be happy to share my address (if it's allowed on this site)????

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Sure. Please private message me. Looking forward to connecting!

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Has anyone here heard of Dr Thomas at Rochester, Mayo? That’s who I’ve been seeing and feel good about him but have mixed results when trying to communicate through his portal. They seem to have a slower response time than other specialists I see there.

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@marymiller54

Sure. Please private message me. Looking forward to connecting!

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Hi @marymiller54, you'll notice that I removed your personal email address from this discussion. Mayo Clinic Connect is a public forum, thus we recommend sharing personal contact information by using the private message function. Learn how here: https://connect.mayoclinic.org/get-started-on-connect/

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Hi @n4seth, welcome to Mayo Clinic Connect. As @auntnanny mentioned, Mayo Clinic specialists work as teams. No matter which MAC expert you are assigned to, you will have the benefit of a team approach and the collective knowledge of multiple specialists. @windwalker @jkiemen and @jammer can also share about this Mayo approach.
You can also read these related discussions:
– I am new to Mayo and have my first appointment on Aug 5th. https://connect.mayoclinic.org/discussion/i-am-new-to-mayo-and-have-my-first-appointment-on-aug-5th/
– Good MAC Doctor Recommendations https://connect.mayoclinic.org/discussion/good-mac-doctor/

n4seth, How are you feeling? Are you currently taking any medication or therapy for MAC?

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@colleenyoung

Hi @n4seth, welcome to Mayo Clinic Connect. As @auntnanny mentioned, Mayo Clinic specialists work as teams. No matter which MAC expert you are assigned to, you will have the benefit of a team approach and the collective knowledge of multiple specialists. @windwalker @jkiemen and @jammer can also share about this Mayo approach.
You can also read these related discussions:
– I am new to Mayo and have my first appointment on Aug 5th. https://connect.mayoclinic.org/discussion/i-am-new-to-mayo-and-have-my-first-appointment-on-aug-5th/
– Good MAC Doctor Recommendations https://connect.mayoclinic.org/discussion/good-mac-doctor/

n4seth, How are you feeling? Are you currently taking any medication or therapy for MAC?

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No meds, just diagnosed and have appointment with infectious disease dr in June.

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@colleenyoung

Hi @n4seth, welcome to Mayo Clinic Connect. As @auntnanny mentioned, Mayo Clinic specialists work as teams. No matter which MAC expert you are assigned to, you will have the benefit of a team approach and the collective knowledge of multiple specialists. @windwalker @jkiemen and @jammer can also share about this Mayo approach.
You can also read these related discussions:
– I am new to Mayo and have my first appointment on Aug 5th. https://connect.mayoclinic.org/discussion/i-am-new-to-mayo-and-have-my-first-appointment-on-aug-5th/
– Good MAC Doctor Recommendations https://connect.mayoclinic.org/discussion/good-mac-doctor/

n4seth, How are you feeling? Are you currently taking any medication or therapy for MAC?

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Frequent cough and extremely fatigued. Was able to get a 5 mile walk in today. Anxious to have appointment and get started on treatment. Thanks for asking.

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@migizii

Has anyone here heard of Dr Thomas at Rochester, Mayo? That’s who I’ve been seeing and feel good about him but have mixed results when trying to communicate through his portal. They seem to have a slower response time than other specialists I see there.

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I don't know Dr Thomas, but yes, for several months response from my pulmonologist (Teng Moua) has been much, much slower. When I've inquired, his secretary apologizes and says he's on hospital duty and it's been sometimes a week hearing back from him whereas used to hear within 24 hours. He's always very apologetic and I know they do pulmonology and critical care duty in the hospital. I don't know if this is something more new for them or if they are overrun with cases. That's been my experience and I'm just sharing.

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@auntnanny

I don't know Dr Thomas, but yes, for several months response from my pulmonologist (Teng Moua) has been much, much slower. When I've inquired, his secretary apologizes and says he's on hospital duty and it's been sometimes a week hearing back from him whereas used to hear within 24 hours. He's always very apologetic and I know they do pulmonology and critical care duty in the hospital. I don't know if this is something more new for them or if they are overrun with cases. That's been my experience and I'm just sharing.

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Thanks for letting me know this. It has been frustrating and now with this horrible pandemic, I can’t even imagine what they are dealing with. However, it helps to know that I’m not the only one who has been facing this delay over the past several months. Stay safe! Stay well!

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@n4seth

Frequent cough and extremely fatigued. Was able to get a 5 mile walk in today. Anxious to have appointment and get started on treatment. Thanks for asking.

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@n4seth Hello. Welcome to our group! Have you had time to read through some of our older posts? Let me know if you need help navigating around this site. I am here to answer questions also.

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@n4seth Is your appt in June at the Mayo?

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@windwalker

@n4seth Is your appt in June at the Mayo?

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Hi Terri, Thanks for asking. My June appointment is with my pulmonologist at Mayo Clinic in Eau Claire, WI and I now have a phone consult with an infectious disease specialist in Eau Claire on April 13th. One of my questions will be how many of these cases has he treated. I am wondering if I should be referred to Rochester but am desperate to talk to someone about this. So what exactly is your role as Volunteer Mentor?

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@windwalker

@n4seth Hello. Welcome to our group! Have you had time to read through some of our older posts? Let me know if you need help navigating around this site. I am here to answer questions also.

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I have started to look through some of the older posts, but have been struggling to get going. Am working on it!

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