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Ulcerative colitis, gastritis, GERD, reflux
Hi all, first post here.
I was diagnosed with Ulcerative Colitis in 2009, and I had been able to keep it under control with Liadla and Canada. Fast forward 4 years to 2013, I started to get some horrible esophagus spasms/GERD/indigestion...you name it. I tried just about everything over the counter, natural remedies, and even a few prescription drugs, until my doctor finally prescribed me 80mg's of Nexium, which eventually worked. I was able to reduce that amount to 40 mg's a day, even tried a few times going down to 20 mg's a day(over the counter) of nexium.
After a setback with UC, I am now on Humira, Uceris, still on Lialda and Canasa, along with trying different probiotics and glutamine.
Within the past few months, I've been getting a very sour or metallic taste in my mouth. After an endoscopy, 2 months ago, my doctor said there was some mild gastritis going on.
Now, within the past week or two, the bad taste seems to be getting worse and much more consistent, with some minor burning in my throat, along with discomfort in my upper stomach. I can feel things going downhill, and I'm sure my doctor is going to double my nexium intake. Ever since I started the Nexium, my weight has been dropping considerable, and I've had a difficult time putting it back on.
Not sure what to expect in response, I guess, for a long time, I've been worried about the affects of Nexium long term, but at this point, not sure I have a choice.
Was wondering if surgery were an alternative, what's out there, and does surgery eventually eliminate the need for these PPI drugs?
Thanks
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Thank you for the kind comment. Sometimes it seems so lonely trying to sort out these things alone and not having anyone to talk with about the problems. Don't want to become one of those people only known for medical complaints so try to not to burden people I know with them.
Appreciate Mayo gives us this space to share.
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1 ReactionI had nausea daily for months taking one pill of dexilant 60 mg at night. Now taking 30 mg in morning and 30 at night. Nausea has subsided but still bothers me daily, especially in the morning. Any ideas what to do to reduce nausea? Have GERD and Gastritis.
Thanks.
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1 ReactionNo ideas, but just here to say me too. Just finished a bunch of tests and Mayo and waiting for results. Been in 60mg morning and night with both GERD and gastritis. GOOD LUCK!
Thanks for input. GOOD LUCK TOO and please let me know what you find out!
Have you tried Zofran?
Yes. Unfortunately nothing seems to work. Thanks
I have nausea quite frequently due to IBS, which is not fun at all. I have 3 autoimmune diseases, RA, Hashimoto’s, and morphia. The best thing I’ve ever found for the nausea is hemp gummies. They’ve been a miracle and they’re legal almost everywhere. I get them at a health food store. I would start with Delta-8 and then move up to Delta-9 if you need more help. Start with just a third or half gummy because they do cause you to feel some “high” feelings (which I love because I also have depression). Please try them. I have introduced my friends with medical problems to these gummies and they thank me all the time. I don’t sell them or make any money from them if anyone is wondering. I just believe strongly in them. Let us know how they work for you. No nausea for me!
Thanks for the information. Will do!
It seems I am always cold. Yes have Gastritis and Gerd. Crazy sitting with sweatshirt and long pants when 90 plus outside. Yes, can turn down ac but doesn't matter. Ideas? thanks
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1 Reaction@mikejjb123 when I have had gastritis, my stomach hurt and felt cold inside. It a strange feeling indeed. Are you taking medication for the gastritis? It’s an inflammation of the stomach lining that causes all that but I can’t remember if the doctor gave me an antibiotic or something else for it…
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