1. < Head & Neck Cancer

Tonsil Cancer from HPV

Posted by sapphire1158 @sapphire1158, Aug 13, 2023

I discovered I had a tumor on my right tonsil in April and it had moved to one lymph node - I had robotic surgery at mayo and had both tonsils removed - all pathology showed all cancer removed from tonsil after surgery -I had the affected Lymph node along w 40 other lymph nodes removed - thank goodness none of the other lymph nodes were positive for cancer.
I have had 2 blood tests since surgery for HPV both negative I will repeat in 2 months - have had another Ct all good— the 2nd PET scan showed something near surgery site— my surgeon said all ok - just inflammation- am worried about that -
I am not doing radiation or chemotherapy unless something changes-I keep reading that most people have radiation
Just wondering if others have had this w no radiation- one more question- my taste buds r really messed up my mouth is very dry - it’s only been a little over 4 months - just interested to hear other’s experiences- thank you

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sapphire1158 | @sapphire1158 | Mar 19 9:25am
In reply to @hrhwilliam "It’s going to take a while to get used to the fact that everything most likely..." + (show)
@hrhwilliam

It’s going to take a while to get used to the fact that everything most likely will be OK. Those first five years can make you think a common cold or sore throat is cancer. Every ache or pain is cancer. I guess we should just make the best of a second chance to live our best lives.

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The above is soooo true! I have a sinus infection and of course my mind goes to the worse place!
Your insights are very helpful.

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