Tinnitus and brain tumor

Posted by EES1 @ees1, Sep 10, 2018

Meningioma, cavernoma, leukocytoclastic Vasculitis, osteoarthritis, abnormal EKG (enlarged left anterior descending artery-Calcium scoring test soon). Now high-pitched tinnutus. All diagnosed in past 15 months. I think the Grim Reaper is laughing.

Interested in more discussions like this? Go to the Brain Tumor Support Group.

I also have ES finally diagnosed more than 20 years after a fall where the right side of my head hit a concrete floor. Looking forward to eval by Neurosurgeon in a month and hope surgery will ease symptoms significantly. Will post info from eval in March. No doctor mentioned anything about ES until the VA doctor sent my films for consult on a pinched nerve in my neck. Hope you all find answers tinnitus and ear pressure issues are so annoying!

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@de9g

After many, many years of pressure in right ear, headache on right side, constant tinnitus and episodes of dizziness when turning my head quickly. Then graduating to coughing, losing voice, neck pain and pulling sensation to the right side of my face, a neurosurgeon finally measured the length of my styloid process and determined I have Eagle Syndrome. I could not have imagined all of these years the ringing, whooshing and piercing tone in my ear actually had a name. I feel for everyone commenting above because I was referred to mental health specialists several times, have had several tubes in my right ear and have had three firm misdiagnoses and at least two doctors insinuate I was making things up. Well, on to the next step and hopefully pain free days ahead.

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@de9g you may wish to join Connect members talking about Eagle's Syndrome here:

- Eagle's Syndrome https://connect.mayoclinic.org/discussion/eagles-syndrome/

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@colleenyoung

@de9g you may wish to join Connect members talking about Eagle's Syndrome here:

- Eagle's Syndrome https://connect.mayoclinic.org/discussion/eagles-syndrome/

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Thanks for link. Saw once then could not find again.

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Curious about tinnitus and acoustic neuromas - Will an MRI be effective in detecting a tumor? I have symptoms that correlate with this diagnosis. Thank you!!

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@katahdin

Curious about tinnitus and acoustic neuromas - Will an MRI be effective in detecting a tumor? I have symptoms that correlate with this diagnosis. Thank you!!

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Hi @katahdin, welcome to Mayo Clinic Connect. Perhaps you could tell me a little bit more about your symptoms so I can connect you with other members like you. It sounds like you have a suspicion that you might have an acoustic neuroma because you have developed symptoms like tinnitus. Is that right? According to Mayo Clinic, magnetic resonance imaging (MRI) with contrast dye is the preferred imaging study used to diagnose acoustic neuroma. See more here: https://www.mayoclinic.org/diseases-conditions/acoustic-neuroma/diagnosis-treatment/drc-20356132

What other symptoms do you have? Have you seen a specialist about your symptoms?

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@colleenyoung

@de9g you may wish to join Connect members talking about Eagle's Syndrome here:

- Eagle's Syndrome https://connect.mayoclinic.org/discussion/eagles-syndrome/

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Do you have a list of Specialist who are experienced with Eagle Syndrome?

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@de9g

Wow, I wonder what the success rate is for this gadget... If surgery on my styloid process does not clear the tinnitus I will research further. Thanks.

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What Dr are you using for styloid surgery.

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Hi Eastmas1, Here's how to get a list like this https://www.mayoclinic.org/search/search-results?q=eagle%20syndrome

1. Go to Mayo Clinic's website https://www.mayoclinic.org/
2. Enter the search term "Eagle Syndrome"

You can sort the results to see physicians, locations and researchers who specialize in Eagle syndrome. It is also good to know that at Mayo Clinic doctors work as a team. That means you will have the input and knowledge of multiple specialists attending to your care.

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Eastmas, I recommend that you contact Mayo Clinic by phone to ask about physicians and our teams specializing in Eagles syndrome. They will be able to answer your questions more specifically than I can. Here are the numbers for all 3 Mayo Clinic locations in AZ, FL, MN. http://mayocl.in/1mtmR63

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Thank you. What phone number. I understand that the Mayo Clinic has more than one location. I have been trying to get an answer for well over a year.

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