I have found this forum so helpful and I pass a lot of information on to my sister who also has MAC and who has not had to go on medication yet. One of the troubling symptoms for her, that I don't have, is tingling and numbness in her hands and legs, especially at night. She has restless leg syndrome but this is much worse, according to her. She also has some muscle pain and burning sensation in her shoulders and neck. This all started around the time that she was sick and was diagnosed with Mac. She's been tested for every possible disease/syndrome but all the test results come back negative.
Has anyone experienced anything like this?
Thanks in advance.