Timing of Tymlos Injection-AM vs PM

I had 6 Fractures at once and had vertebroplasty on all 4 weeks ago. 3 weeks on tymlos. So encouraged by your post.

I will add that I recently had my P1NP bone building blood marker checked, and it has increased by 100 percent after three months of a full daily dose of Tymlos.

I didn't even know about the blood test until I read it on here. I feel like I can't find a dr that knows what to do. I made a huge mistake by letting my gyn and then np in the pcp office do my care for years. I really didn't know any better. I was not told things or offered many choices and now I have had to pay the price so to speak. I am desperately trying to find someone that I feel comfortable with and also knows the correct method to use for my treatment. It is so emotional because I really don't know where to look.

Boy, can I relate. I went to an endocrinologist, but even he would not have ordered the baseline P1NP and CTX. I requested those after reading Dr. McCormick's book "Great Bones." Very informative book! Then the endocrinologist suddenly retired without warning and my new one is only in clinic once a week. She did order a 24 hour urine calcium test, which shows I have extremely excessive urine calcium. But because the first endocrinologist didn't get a baseline on that test, we don't know if the Tymlos is to blame or something else. It is frustrating. Some endocrinologists treat osteoporosis, others don't. But that may be where to start your search?

Wow, so similar. I am on prolia also. I went from gyn to an np in the pcp office but both left and had to find a new pcp. Was due my script and no where else would take me without referral. New pcp wrote the script but during this time off which I didn't know I wasn't supposed to be off, I had 6 compression fractures. Got referred to trauma center with fracture prevention specialist. She's actually a PA that supposedly deals with this. I had a referral Nov 29 for endocrinologist and still have no appt scheduled. Don't know if they would be any better. I feel like we all deserve the same health care and we should all have a good dr. I made the mistake once and not going to do it again. Don't even know how to get in with anyone and if they actually KNOW osteoporosis. I have watched videos from drs, read tons of info and I want one of those drs that knows their stuff!!!! I am only 56 and I want someone good since this is a lifetime ordeal. I don't want to look back in a few years and wish I had.... like I do now. So sorry for you.

I started out the same in my small town with a PCP and an Orthopedic Surgeon (they happen to be brothers). Both treated my OP as somewhat of a lost cause. I requested BTM tests, and the specialist wouldn't do it. At the time, my insurance was very limiting. I changed plans, and now have access to high quality care from an Endocrinologist who specializes in OP. She's running every test possible to get the the source of my bone loss. She even asked me if I wanted any other tests run while we're at it. Most importantly, she is encouraging me to choose my own treatment. I had to do a lot of searching to find her, and now I have to drive quite a way for my appointments, but as you said, "I don't want to look back in a few years and wish I had…." I agree with you that we all deserve the same healthcare, and I hope that you can find a doctor who will give you the care you deserve.

In 2021 after a Dexa showed severe op my rheumatologist ordered Prolia. I didn’t have much choice as I had been on Fosamax for years followed by 5 years of Reclast. I was desperate and went along with the plan. Within the 2 years of Prolia I had a femur fx followed by a spontaneous tibia/ankle fx and patella fx. The orthopedic doctor referred me to an op specialist. I started on Tymlos in June. He did order bone marker tests which were low. That doctor was in Phoenix and has now suddenly retired. I’m here in Chicago (my home) and my rheumatologist seems reluctant to continue treating my op. I have an appointment with an endocrinologist in a month. I want someone to order bone marker tests to see how effective the Tymlos has been after 6 months. It’s so frustrating fighting with doctors and the whole system. Am keeping fingers crossed for the endocrinologist appointment.

Good luck to everyone in finding a doctor who will appropriately treat the op.

This is such a prevalent disease, yet so terribly difficult for many of us to get the care and expertise that we need-even in a major city like Chicago. I hope your new endocrinologist will order the bone marker tests.