Timing of Reclast Infusion after your last Evenity Injection.

Posted by rhondat23 @rhondat23, Apr 28 8:12pm

My doctor said I would not receive a DEXA Scan or start Reclast Infusions for one year from my last Evenity Injection. Can you please share what each of your doctors are advising? Thank you!

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@jillgirl

The neurologist calls my condition "exaggerated thoracolumbar kyphosis with a positive sagittal malalignment." After discussion of the pain and problems walking without a walker and difficulty breathing his other questions centered on 'Does this bother you psychologically and how does it affect your social life?' ???
I also have scoliosis. Often children with severe scoliosis have their surgeries much earlier.

I have had so many medical terms thrown my way, both with the bone meds and thoracolumbar kyphosis I now keep a notebook.

I have listed a link to better explain the surgery. The surgery cannot be done with my bones in the current state due the necessary fusions to maintain the rods in correct position. Evenity builds bone the fastest so I must finish the 12 months of injections. Hopefully the next bone med will be tolerated better.

https://www.neurosurgery.columbia.edu/patient-care/conditions/sagittal-imbalance

Treatments------
Because the causes of sagittal balance vary from patient to patient, no two procedures are identical. The overall goal of these operations, however, is the same: to reestablish overall sagittal spinal balance. As the general problem is that there is either not enough lumbar lordosis or too much thoracic kyphosis, surgery is generally planned to add lordosis or reduce kyphosis, or both.

Most surgeries to correct sagittal imbalance can be explained in three parts.

Correct the spinal deformity: This is usually accomplished via an osteotomy or osteotomies. During this procedure, the spine is loosened by removing a bone. The extent and location of removal depend on a variety of factors, such as the location and type of spinal deformity.
Spinal fixation: After the spinal deformity has been corrected, the spine is fixed into its new alignment with metal screws and hooks, which is referred to as fixation. These screws and hooks, each of which attaches to one vertebra (bone in the spine), are then connected with long rods that are shaped to match the new spinal alignment.
Spinal fusion: The surgeon will implant bone graft material, pieces of bone that bridge gaps. The bones will fuse (grow together), helping to make the spine more stable. The long-term success of sagittal imbalance surgery depends on achieving good bone fusion. Note that certain lifestyle factors, including smoking and obesity, inhibit bone fusion.
Treatment o

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@jillgirl I have scoliosis too. But I don't think my bones will ever be healthy enough for a surgery like that. Your kyphosis must be a lot worse than mine. I have fractures in T4, T6, T11, T12, L1, L2 and L5. But I am able to walk quite a long distance. I am visibly bent and have pain, but enjoy a long walk with my daughter in the city and walk about 45 minutes every day. Any chance you would get off the walker without surgery? It sounds very painful. Tai chi has helped me.

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@windyshores

@jillgirl I have scoliosis too. But I don't think my bones will ever be healthy enough for a surgery like that. Your kyphosis must be a lot worse than mine. I have fractures in T4, T6, T11, T12, L1, L2 and L5. But I am able to walk quite a long distance. I am visibly bent and have pain, but enjoy a long walk with my daughter in the city and walk about 45 minutes every day. Any chance you would get off the walker without surgery? It sounds very painful. Tai chi has helped me.

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I wish I could walk, even with the pain I would be having a seemingly normal life. After the fracture I could not walk, with my brace on, from my front door to the end of the driveway without being completely bent over and gasping for air. I am told something must be done due to the angle of the fracture and nerves affected. I have seen three surgeons concerning this fracture and all agree it will get worse.

Yes, I have doubts if my bone density will improve enough to withstand the surgery and continue to support the rods. My hopes have improved since starting Evenity, even with all the side effect, I feel my back has gotten stronger, yet the pain remains. My neurologist is head of the medical department of a well known university so trust in my medical team is not another worry I must face. My first visit with him he clearly told me no surgery (with rod support) without improved bone density. My hyperkyphosis will eventually lead to what is known as chin on chest syndrome. A lady with this condition works at a local store and we discuss our spinal problems - and surprisingly she states the pain doesn't bother her much or interfere with her daily life. Her main concerns are her appearance and being stared at.

My career has allowed me to live and work in Japan, Korea, and twice in Germany and I have plans in retirement to visit the staffs and people I got to know. And to see a few countries I missed in my travels, especially Ireland and Scotland. And I would still do this if I could just walk without this off the charts pain and bent so badly I have to walk concentrating on not falling. All I see is the ground when walking. The alternative is sitting at home waiting for my Walmart/Amazon/Target deliveries. I simply cannot face that future without knowing if the surgery could have helped me. One must have hope.
If the neurologist gives the OK, I will have the surgery. And I will continue to deal with the side effects of all these bone meds.

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How long ago were your fractures? So sorry about your situation!

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