Thyroid Problems leading to weight loss

Posted by suzy37 @suzy37, Dec 14, 2018

I have been sick for several years without knowing what the cause was, lost abt. 50 lbs (weigh 69 lbs now) anxiety attacks and panic attacks too at times, bad stomach for yrs which stress aggravates , gas builds up in stomach and chest until I can barely get a breath. I am 81 yrs old and it seems like everything I do makes it worse. I started thyroid pills in August which they just changed the dosage on by half. I had started getting an irregular heart beat which potassium seemed to help,this may have been caused by the too high dosage I was taking.Also the thyroid pills take potassium out of your body so that didnt help. I would like to hear from others who might have similar problems and see how you are coping.

@parus

Would be nice if when I called about thyroid issues I would not be invalidated by helpers who tell me thyroid medication won’t cause these type of problems. Your bloodwork shows you are a little hyperthyroid and blah, blah, blah. Doctor says do blah, blah, blah. The side effects of all thyroid medications are terrible to deal with and I am out of options and nearly needing to take out a loan to pay for it. Not FDA approved so insurance won’t cover. Yes, I am whining again. Due to thyroid imbalance my chronic pain, depression and anxiety are getting hard to deal with. Need to work on my gratitude list.

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@parus It seems like you must be hyper-reactive to this medication, I wonder if there is a different one that might be better for you. I have never had any problems with levothyroxine, nor has anyone I know.
I hate it also when doctors or their nurses basically do not pay attention to your concerns and act as if you are simply wrong! The patient knows what they are feeling, the medical staff needs to remember that.
JK

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@lioness

@suzy37 I wouldn't wait at least call the Dr, sounds like the dosage isn't right for your body Dont hesitate call tomorrow .The longer you wait the harder it will be

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@suzy37 @lioness I agree totally with lioness. Get back to the doctor and make yourself heard. You should not be feeling the way you are feeling.
JK

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@contentandwell

@parus It seems like you must be hyper-reactive to this medication, I wonder if there is a different one that might be better for you. I have never had any problems with levothyroxine, nor has anyone I know.
I hate it also when doctors or their nurses basically do not pay attention to your concerns and act as if you are simply wrong! The patient knows what they are feeling, the medical staff needs to remember that.
JK

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@Contantandwell Great big Amen to this ,be your on health advocate

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@contentandwell

@parus It seems like you must be hyper-reactive to this medication, I wonder if there is a different one that might be better for you. I have never had any problems with levothyroxine, nor has anyone I know.
I hate it also when doctors or their nurses basically do not pay attention to your concerns and act as if you are simply wrong! The patient knows what they are feeling, the medical staff needs to remember that.
JK

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@contentandwell Aftet years of taking Synthroid and the Levothyroxine I became allergic to it. I take the generic of Armour. Cannot get it stabilized so all of the changes in dosage has me messed up. Insurance will not pay for the Armour. I am hypersensitive to so many medications now. Age I suppose. I did get through the holidays without anyone knowing how much of a mess I am. I no longer trust those in the medical profession or the primary care bunch. I am going to talk with the pain specialist at my next appointment as to some alternatives for pain. The scoliosis is worse. Sorry to be complaining.

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@parus

@contentandwell Aftet years of taking Synthroid and the Levothyroxine I became allergic to it. I take the generic of Armour. Cannot get it stabilized so all of the changes in dosage has me messed up. Insurance will not pay for the Armour. I am hypersensitive to so many medications now. Age I suppose. I did get through the holidays without anyone knowing how much of a mess I am. I no longer trust those in the medical profession or the primary care bunch. I am going to talk with the pain specialist at my next appointment as to some alternatives for pain. The scoliosis is worse. Sorry to be complaining.

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@parus. I’m surprised that insurance does not pay for Armour Thyroid, it’s been around forever, or at least since the 1960s.

I hope that the pain specialist can give you some relief.
JK

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@contentandwell

@parus. I’m surprised that insurance does not pay for Armour Thyroid, it’s been around forever, or at least since the 1960s.

I hope that the pain specialist can give you some relief.
JK

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@contentandwell Thank you for the encouragement. Insurance was paying some until the dosage kept changing in 1 months time. One month I was taking 3 different strengths. A lot of guess work and going by the numbers from bloodwork and not how I feel. Doctors and their numbers. The helpers they have do the best they know how. At least they are working! I have asked to be back in the care of the doctor I started with in this group. I could work with him and his staff and my BP was not above the norm. Seems it is all going to clinic and about the money not the patients.

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In veterinary medicine there is a syndrome called "sick euthyroid" where the thyroid levels are off but not because of primary thyroid issues. It is because of another illness affecting the body. We do not treat the thyroid levels, but rather search for the underlying disease process. Perhaps this is a problem in humans as well? Something to discuss with your doctor? If the doctors say that your symptoms are not typical for levothyroxine reactions, then perhaps they need to be looking deeper for another non-thyroid problem? Just my veterinarian thoughts……

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@sepdvm

In veterinary medicine there is a syndrome called "sick euthyroid" where the thyroid levels are off but not because of primary thyroid issues. It is because of another illness affecting the body. We do not treat the thyroid levels, but rather search for the underlying disease process. Perhaps this is a problem in humans as well? Something to discuss with your doctor? If the doctors say that your symptoms are not typical for levothyroxine reactions, then perhaps they need to be looking deeper for another non-thyroid problem? Just my veterinarian thoughts……

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@sepdvm I have oft thought I would be better off with a DVM. I approached this with a specialist I was referred to and he told me I was making it up and forgetting to take my thyroid medication and wanting more testing that was not necessary. So much for that.

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@parus

@contentandwell Thank you for the encouragement. Insurance was paying some until the dosage kept changing in 1 months time. One month I was taking 3 different strengths. A lot of guess work and going by the numbers from bloodwork and not how I feel. Doctors and their numbers. The helpers they have do the best they know how. At least they are working! I have asked to be back in the care of the doctor I started with in this group. I could work with him and his staff and my BP was not above the norm. Seems it is all going to clinic and about the money not the patients.

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@parus I can understand the problem when the dosage changes. I have had that problem also. One time the dose of one of my prescriptions was increased so the drug store could not fill it because it was not time! The doctor had to write a whole new prescription and that had to be justified to insurance. It was a real nuisance.
Hopefully, you can get this ironed out and your insurance will kick in again.
JK

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short back ground : been on synthroid or levothyroxin for over 15 years Was originally put on it by psychiatrist due to depression and low energy.
Fast forward to last summer. A year ago, I went to the Dr for my eye. It wasn't acting right,, seemed to be more closed. They said nothing was wrong. EVERY Dr appt I mentioned my eyes.. they were doing strange things. The answer was finally – to to the optometrist. SO, I went last week,, NOTHING wrong with my eyes. But, they are getting big. My friend said she doesn't like looking at them anymore. My eyes have always been the family joke – Terri and her squinty eyes. I ruin every photo!
About a month after that I was at my Dr's for shaking. Thyroid was off.. lowered dose, next visit,, thyroid was off… the other way.. BIG swing. she finally sent me to endocrinologist. she just kept lowering my dose as labs were off. Then, 1.5 weeks ago, I wake up with TERRIBLE shakes.. my BODY was shaking, not just my arms and legs. I was out of control. Very scary. Went to ER. At that time, we were not thinking thyroid as I JUST had a lab draw a week and a half before that and synthroid was lowered to 50 mg. Long story short… it was all Thyroid.. hyper.. all symptoms of hyper accelerated. Call to my endo. office in a bigger town said to stop taking my synthroid, labs were off.. ok,, wow. Stop!?? ok…

I have been really sick since then,, bad symptoms of hyper. And, I have been so stressed out, I blew my epidural I got last month… neck and shoulders back to pins and needles. Asked on another line,, and the answer back was :struma ovari – NEVER heard of this.
My Endo will not order any more labs, or tests until the synthroid is out of my body. ( I understand that). I am wondering IF I need to go to my primary and get my ovaries checked. 3 years ago they said I had fibroids… well,, wonder IF that was wrong… and it is this..?? also,, 2-3 years ago during a ultra sound for something else, they found a small nodule on my thyroid. Too small to worry about.. and I don't get another ultrasound for it till Aug.
And,, just to throw this out there: during physical therapy,in the last 2 weeks, when the therapist does ultrasound on the left side of my neck, I get a big reaction.. I cough, but the 'tickling' is not in my throat.. but on the side. Ultrasound does NOT do this on my right side.
Question is, do I go against my endo's 'orders' and get my ovaries checked by my primary?
Labs drawn are not complete thyroid labs,, just the basics.
Free T3 – 7.6 Free T4 – 2.1 TSH reflex to FT4 – 0

advice???? I am generally a patient person, but waiting 6 weeks is hard. today I finally had a good day – didn't feel 'sick', but still shook,, ( I'll take that)

I should also ad, that I have been thru an extreme amount of stress since Jan 9.

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Hi @mcmurf2 that must be so frustrating to have these symptoms with no answers. You may have noticed I moved your post to this existing discussion on thyroid problems in order for you to see what others have said about thyroid issues. Simply click VIEW & REPLY in your email notification to find your post.

I wanted to tag fellow Connect members @parus, @contentandwell and @suzy37 as they all have mentioned thyroid problems and may be able to offer you support.

Back to you @mcmurf2, how long did you doctor say until the synthroid will be out of your system?

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@ethanmcconkey

Hi @mcmurf2 that must be so frustrating to have these symptoms with no answers. You may have noticed I moved your post to this existing discussion on thyroid problems in order for you to see what others have said about thyroid issues. Simply click VIEW & REPLY in your email notification to find your post.

I wanted to tag fellow Connect members @parus, @contentandwell and @suzy37 as they all have mentioned thyroid problems and may be able to offer you support.

Back to you @mcmurf2, how long did you doctor say until the synthroid will be out of your system?

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ok,, thanks for guiding me to the right spot.!!! My Dr said she could not give me an answer as for how long. She will just retest in 6 weeks. I have had just about 24 hours of NO sick feeling.. .. still shake.. but I'll take it.. I have actually gotten out to one of my gardens and did some work today. I am happy. Now, IF I can just get back to the horses… but I don't want them to feel me shake.. They may misunderstand and things could happen…… soooooooooooo I wait…

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