Thyroid Problems

Posted by suzy37 @suzy37, Dec 14, 2018

I have been sick for several years without knowing what the cause was, lost abt. 50 lbs (weigh 69 lbs now) anxiety attacks and panic attacks too at times, bad stomach for yrs which stress aggravates , gas builds up in stomach and chest until I can barely get a breath. I am 81 yrs old and it seems like everything I do makes it worse. I started thyroid pills in August which they just changed the dosage on by half. I had started getting an irregular heart beat which potassium seemed to help,this may have been caused by the too high dosage I was taking.Also the thyroid pills take potassium out of your body so that didnt help. I would like to hear from others who might have similar problems and see how you are coping.

Hi, @suzy37, and welcome to Mayo Clinic Connect. I moved your message to the Diabetes & Endocrine System group as I thought you'd meet more members who have gone through similar situations as you here. That sounds very hard going through several years experiencing a lot of weight loss, anxiety and panic attacks, and bad stomach without knowing the cause.

I'd like to introduce you to other members who have talked about thyroid issues who may have some input on your situation, like @shoregal45 @oldkarl @sepdvm @crummens @jcolby @loli.

@suzy37, what was the exact diagnosis your doctor gave, and what thyroid medication did he or she prescribe?

REPLY
@suzy37

I tried to do this last night but evidently did not do it right because it isnt posted so will try again. I am an 81 yr old woman who has been sick for several yrs without knowing the cause. I lost 50 lbs ( weigh 69 lbs now)I have a very bad stomach which acts up and makes me very sick quite often. I get excessive gas built up in my chest to the point I can barely breathe, this gets me up at night and I often walk the floor for hours uunable to sleep. I also have anxiety attacks and panic attacks.
I was diagnosed as hypothroid in Augusr (2018) and began treatment with a thyroid pill and it was found to be too high and dose cut in half this week. i had developed an irregular heartbeat and used potassium to try and help that, it did seem to help and since the thyroid pill takes potassium out of your body that overdose was not helping that any!
I would like to hear from anyone that has a similar problem and see how others cope with this

Thank You !

Jump to this post

@suzy37 Hi Suzy. Your doctor hopefully is testing your thyroid function on your current dose; if not ask them to test you. Taking too much thyroid hormone does cause the symptoms you describe, the anxiety, weight loss, and a racing heart and it puts you into an overactive or Hyper thyroid condition. If you still feel that way on the lowered dose, call your doctor. Your body will tell you if your dose is right. My doctor had me figure out my correct thyroid dose by taking multiple low dose pills to figure out how many pills I felt best on. With the stomach issues you describe, it can also be something like H pylori bacteria overgrowth or gluten intolerance as that causes gas and bloating. You could try eliminating things in your diet to see if you can narrow down a cause, but please do eat healthy and see if you can regain some weight. If you do have gluten issues and if you have had that long term, it does cause damage to the lining of the small intestine that affects absorption of nutrients, so it also could cause malnourishment and weight loss. The problem with gluten and wheat derivatives is it's in almost everything, but simple meals of veggies and meats without grain, pasta, or breads would work. Working with a nutritionist would help you figure out foods that would help you. Think of food as medicine. If you eat the right things, your body gets well. have you seen a doctor about your stomach issues? It also could be acid reflux contributing to some of that as it can irritate your airway. That would be something else to ask about as it is very common. I'm glad you reached out here, and I would encourage you to try to figure out all the reasons for your symptoms and do what you can to correct the issues within your control. Don't just try to cope, but instead advocate for yourself and keep asking questions of your doctors as to why this happens to you. I have gluten problems myself and lots of food allergies. Sleep can certainly be affected by doses of thyroid hormone that are too high, and by too much light exposure (like computer screen time late at night) and caffeine, so it might help to limit light exposure by turning down computer monitors a few ours before your bed time and avoid caffeine after noon. Doctors miss things, but you can help them help you by asking intelligent questions and ask about what might be the causes of your symptoms. Sometimes older people need digestive enzymes to help break down their food for absorption and these are over the counter supplements. You might want to see a GI specialist just to make sure you are doing everything you can for gut health. My elderly mom has a hiatal hernia that limits food passing down her esophagus on the way to the stomach. At her age, surgery is not recommended, but just to eat more often and smaller meals.

Here are some links for information-
https://www.mayoclinic.org/diseases-conditions/hyperthyroidism/symptoms-causes/syc-20373659
https://www.mayoclinic.org/diseases-conditions/celiac-disease/symptoms-causes/syc-20352220
https://www.mayoclinic.org/diseases-conditions/gastritis/symptoms-causes/syc-20355807
https://www.mayoclinic.org/diseases-conditions/gerd/symptoms-causes/syc-20361940
https://www.mayoclinic.org/diseases-conditions/hiatal-hernia/symptoms-causes/syc-20373379

REPLY
@lisalucier

Hi, @suzy37, and welcome to Mayo Clinic Connect. I moved your message to the Diabetes & Endocrine System group as I thought you'd meet more members who have gone through similar situations as you here. That sounds very hard going through several years experiencing a lot of weight loss, anxiety and panic attacks, and bad stomach without knowing the cause.

I'd like to introduce you to other members who have talked about thyroid issues who may have some input on your situation, like @shoregal45 @oldkarl @sepdvm @crummens @jcolby @loli.

@suzy37, what was the exact diagnosis your doctor gave, and what thyroid medication did he or she prescribe?

Jump to this post

I had some palpations/irregular heartbeat when I was diagnosed with hypothyroidism (low thyroid) although it is more common when the thyroid is overactive or too much thyroid pill replacement. It seemed to go away with the treatment and I have had my dose decreased to a very minimal amount. Thyroid levels are monitored yearly and remain normal. The thyroid is a major control center for the body so issues can produce many symptoms. I wonder if your diagnosis was over or underactive thyroid?

REPLY
@suzy37

I tried to do this last night but evidently did not do it right because it isnt posted so will try again. I am an 81 yr old woman who has been sick for several yrs without knowing the cause. I lost 50 lbs ( weigh 69 lbs now)I have a very bad stomach which acts up and makes me very sick quite often. I get excessive gas built up in my chest to the point I can barely breathe, this gets me up at night and I often walk the floor for hours uunable to sleep. I also have anxiety attacks and panic attacks.
I was diagnosed as hypothroid in Augusr (2018) and began treatment with a thyroid pill and it was found to be too high and dose cut in half this week. i had developed an irregular heartbeat and used potassium to try and help that, it did seem to help and since the thyroid pill takes potassium out of your body that overdose was not helping that any!
I would like to hear from anyone that has a similar problem and see how others cope with this

Thank You !

Jump to this post

I just got back my latest TSH results this past week, and like you, my levels were way too low. I have had fluctuations from high to low numerous times, so this is not something new for me! Do make sure you keep getting regular TSH blood checks even after your levels are within normal range. Symptoms can take awhile for patients to sometimes realize there is something not quite right, and by the time you do it can cause the distresses you mention….or the opposite symptoms if TSH levels are high.

Liked by Parus

REPLY
@suzy37

I tried to do this last night but evidently did not do it right because it isnt posted so will try again. I am an 81 yr old woman who has been sick for several yrs without knowing the cause. I lost 50 lbs ( weigh 69 lbs now)I have a very bad stomach which acts up and makes me very sick quite often. I get excessive gas built up in my chest to the point I can barely breathe, this gets me up at night and I often walk the floor for hours uunable to sleep. I also have anxiety attacks and panic attacks.
I was diagnosed as hypothroid in Augusr (2018) and began treatment with a thyroid pill and it was found to be too high and dose cut in half this week. i had developed an irregular heartbeat and used potassium to try and help that, it did seem to help and since the thyroid pill takes potassium out of your body that overdose was not helping that any!
I would like to hear from anyone that has a similar problem and see how others cope with this

Thank You !

Jump to this post

I have been having fluctuations in TSH levels for over a year now and this does not help in any other areas. I have tried keeping my diet thyroid friendly (I rely fully on medication). Has been very discouraging 🙁

REPLY
@jenniferhunter

@suzy37 Hi Suzy. Your doctor hopefully is testing your thyroid function on your current dose; if not ask them to test you. Taking too much thyroid hormone does cause the symptoms you describe, the anxiety, weight loss, and a racing heart and it puts you into an overactive or Hyper thyroid condition. If you still feel that way on the lowered dose, call your doctor. Your body will tell you if your dose is right. My doctor had me figure out my correct thyroid dose by taking multiple low dose pills to figure out how many pills I felt best on. With the stomach issues you describe, it can also be something like H pylori bacteria overgrowth or gluten intolerance as that causes gas and bloating. You could try eliminating things in your diet to see if you can narrow down a cause, but please do eat healthy and see if you can regain some weight. If you do have gluten issues and if you have had that long term, it does cause damage to the lining of the small intestine that affects absorption of nutrients, so it also could cause malnourishment and weight loss. The problem with gluten and wheat derivatives is it's in almost everything, but simple meals of veggies and meats without grain, pasta, or breads would work. Working with a nutritionist would help you figure out foods that would help you. Think of food as medicine. If you eat the right things, your body gets well. have you seen a doctor about your stomach issues? It also could be acid reflux contributing to some of that as it can irritate your airway. That would be something else to ask about as it is very common. I'm glad you reached out here, and I would encourage you to try to figure out all the reasons for your symptoms and do what you can to correct the issues within your control. Don't just try to cope, but instead advocate for yourself and keep asking questions of your doctors as to why this happens to you. I have gluten problems myself and lots of food allergies. Sleep can certainly be affected by doses of thyroid hormone that are too high, and by too much light exposure (like computer screen time late at night) and caffeine, so it might help to limit light exposure by turning down computer monitors a few ours before your bed time and avoid caffeine after noon. Doctors miss things, but you can help them help you by asking intelligent questions and ask about what might be the causes of your symptoms. Sometimes older people need digestive enzymes to help break down their food for absorption and these are over the counter supplements. You might want to see a GI specialist just to make sure you are doing everything you can for gut health. My elderly mom has a hiatal hernia that limits food passing down her esophagus on the way to the stomach. At her age, surgery is not recommended, but just to eat more often and smaller meals.

Here are some links for information-
https://www.mayoclinic.org/diseases-conditions/hyperthyroidism/symptoms-causes/syc-20373659
https://www.mayoclinic.org/diseases-conditions/celiac-disease/symptoms-causes/syc-20352220
https://www.mayoclinic.org/diseases-conditions/gastritis/symptoms-causes/syc-20355807
https://www.mayoclinic.org/diseases-conditions/gerd/symptoms-causes/syc-20361940
https://www.mayoclinic.org/diseases-conditions/hiatal-hernia/symptoms-causes/syc-20373379

Jump to this post

Thanks everyone for your input and for the good advice, lots of things to look into here. My Dr says to come back and have another thyroid test last week in January so that will have to wait awhile but other things I can check out , lots of things to consider here, I will look at links too

Liked by Parus

REPLY
@cherriann

I just got back my latest TSH results this past week, and like you, my levels were way too low. I have had fluctuations from high to low numerous times, so this is not something new for me! Do make sure you keep getting regular TSH blood checks even after your levels are within normal range. Symptoms can take awhile for patients to sometimes realize there is something not quite right, and by the time you do it can cause the distresses you mention….or the opposite symptoms if TSH levels are high.

Jump to this post

Thanks Cherriann, appreciate your input

REPLY
@suzy37

Thanks Cherriann, appreciate your input

Jump to this post

Thanks

REPLY
@suzy37

I tried to do this last night but evidently did not do it right because it isnt posted so will try again. I am an 81 yr old woman who has been sick for several yrs without knowing the cause. I lost 50 lbs ( weigh 69 lbs now)I have a very bad stomach which acts up and makes me very sick quite often. I get excessive gas built up in my chest to the point I can barely breathe, this gets me up at night and I often walk the floor for hours uunable to sleep. I also have anxiety attacks and panic attacks.
I was diagnosed as hypothroid in Augusr (2018) and began treatment with a thyroid pill and it was found to be too high and dose cut in half this week. i had developed an irregular heartbeat and used potassium to try and help that, it did seem to help and since the thyroid pill takes potassium out of your body that overdose was not helping that any!
I would like to hear from anyone that has a similar problem and see how others cope with this

Thank You !

Jump to this post

Thanks Parus, nice to know I am not alone in this

Liked by Parus

REPLY
@suzy37

I tried to do this last night but evidently did not do it right because it isnt posted so will try again. I am an 81 yr old woman who has been sick for several yrs without knowing the cause. I lost 50 lbs ( weigh 69 lbs now)I have a very bad stomach which acts up and makes me very sick quite often. I get excessive gas built up in my chest to the point I can barely breathe, this gets me up at night and I often walk the floor for hours uunable to sleep. I also have anxiety attacks and panic attacks.
I was diagnosed as hypothroid in Augusr (2018) and began treatment with a thyroid pill and it was found to be too high and dose cut in half this week. i had developed an irregular heartbeat and used potassium to try and help that, it did seem to help and since the thyroid pill takes potassium out of your body that overdose was not helping that any!
I would like to hear from anyone that has a similar problem and see how others cope with this

Thank You !

Jump to this post

forgot to mention I was diagnosed with hypothroidism even tho I lost weight, some symptoms of both hypo and hyper but tested as hypo

REPLY
@suzy37

Thanks Parus, nice to know I am not alone in this

Jump to this post

@suzy37 Just had bloodwork done and have gone hyperthyroid again. I know without a doubt I am taking it without fail. I get the feeling they think I am not. Frustrating for sure.

Liked by lioness

REPLY
@parus

@suzy37 Just had bloodwork done and have gone hyperthyroid again. I know without a doubt I am taking it without fail. I get the feeling they think I am not. Frustrating for sure.

Jump to this post

Parus sorry to hear that! Drs can be aggravating thats for sure. mine is uninformative and not very helpful so far.

Liked by lioness

REPLY

I tried to do this last night but evidently did not do it right because it isnt posted so will try again. I am an 81 yr old woman who has been sick for several yrs without knowing the cause. I lost 50 lbs ( weigh 69 lbs now)I have a very bad stomach which acts up and makes me very sick quite often. I get excessive gas built up in my chest to the point I can barely breathe, this gets me up at night and I often walk the floor for hours uunable to sleep. I also have anxiety attacks and panic attacks.
I was diagnosed as hypothroid in Augusr (2018) and began treatment with a thyroid pill and it was found to be too high and dose cut in half this week. i had developed an irregular heartbeat and used potassium to try and help that, it did seem to help and since the thyroid pill takes potassium out of your body that overdose was not helping that any!
I would like to hear from anyone that has a similar problem and see how others cope with this

Thank You !

REPLY
@suzy37

I tried to do this last night but evidently did not do it right because it isnt posted so will try again. I am an 81 yr old woman who has been sick for several yrs without knowing the cause. I lost 50 lbs ( weigh 69 lbs now)I have a very bad stomach which acts up and makes me very sick quite often. I get excessive gas built up in my chest to the point I can barely breathe, this gets me up at night and I often walk the floor for hours uunable to sleep. I also have anxiety attacks and panic attacks.
I was diagnosed as hypothroid in Augusr (2018) and began treatment with a thyroid pill and it was found to be too high and dose cut in half this week. i had developed an irregular heartbeat and used potassium to try and help that, it did seem to help and since the thyroid pill takes potassium out of your body that overdose was not helping that any!
I would like to hear from anyone that has a similar problem and see how others cope with this

Thank You !

Jump to this post

Hi @suzy37, I have merged both of the discussions you started about Thyroid Problems into one discussion to "bring everyone around the same table" so to speak. The discussion appears in both the Endocrine System group and the Just Want to Talk group.I think this way you will benefit from a larger group discussion and get and give support and information from more people.

REPLY

Sue I was diagnosed as hypo , said was real low but now am taking half the amount I started out with. I dont feel right , think it is not working very well but cant tell until I go back in the last week in January.

REPLY
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