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Parus
@parus

Posts: 1283
Joined: Jul 14, 2017

Thyroid Issues

Posted by @parus, Aug 8, 2017

I was doing well in the thyroid area until the PCP I had been seeing left and I was placed w/ another one…I take 1 medication (Nature-Throid) and she has changed the dosage and I am a mess…really a mess. Be patient and let my body adjust is so wrong as I have been down this road before. I am not myself at all. This dosage change has everything in a flare and I am heading into problems again-some medical people just cannot be wrong.
Anyone else experienced this type of problem?

REPLY

Hello @parus,

If you’re comfortable, would you mind sharing a bit more about the thyroid issues you are speaking of? You mention your dosage change has caused a flare, what sort of flare? This might help other members understand that may have had a similar experience.

My apologies. I have fibromyalgia, DDD of the neck/lower back, OA. My symptoms are tightness in my chest, difficulty getting a deep breath, highly agitated/irritable, soooo tired and in a boatload of pain. New PCP only in certain days.
I did make it to PT for my knee this morning, but could not do what I had been doing. I feel like I have sludge throughout my body and also dizzy. See how I am doing in the morning. Something is not right…Was not feeling this way prior to increase in dosage. Body adapting possibly?
Yes, I am whining. Not my usual. Really rather scary. Breathe, just breathe.

@parus

My apologies. I have fibromyalgia, DDD of the neck/lower back, OA. My symptoms are tightness in my chest, difficulty getting a deep breath, highly agitated/irritable, soooo tired and in a boatload of pain. New PCP only in certain days.
I did make it to PT for my knee this morning, but could not do what I had been doing. I feel like I have sludge throughout my body and also dizzy. See how I am doing in the morning. Something is not right…Was not feeling this way prior to increase in dosage. Body adapting possibly?
Yes, I am whining. Not my usual. Really rather scary. Breathe, just breathe.

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First, I wouldn’t consider sharing you concerns whining, so need to worry about that! My first recommendation would be to discuss with your provider as soon as possible. The feeling of sludge throughout your body must be quite alarming and should be brought up with your provider. The changing of prescriptions can bring about changes in the body. I will continue my search for other members discussing thyroid issues, but in the meantime it may be worth contacting your provider.

@parus I agree with Justin. All of us in this community use this venue to express what is going on with us and none of us consider others as whiners – we are all just seeking support and sometimes advice. Contacting your doctor is a good idea, it can put your mind at ease. Keep in touch and let us know how you are doing.

Teresa

@JustinMcClanahan Waste of time to contact provider again…she does not know my history and as to what days she is even there-same medical group, different nurses. I was told to give my body time to adjust to the new dose and get even more upset…blood work again in 2 months. All I know is my pain is much worse w/ the increase as is the depression. Would probably suggest the ER which is not needed and nothing they can do.

Many of us are frustrated/discouraged and there is little we can do. Still say it is a plot to get rid of old and useless people…stated w/ tongue in cheek.

@parus

@JustinMcClanahan Waste of time to contact provider again…she does not know my history and as to what days she is even there-same medical group, different nurses. I was told to give my body time to adjust to the new dose and get even more upset…blood work again in 2 months. All I know is my pain is much worse w/ the increase as is the depression. Would probably suggest the ER which is not needed and nothing they can do.

Many of us are frustrated/discouraged and there is little we can do. Still say it is a plot to get rid of old and useless people…stated w/ tongue in cheek.

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@parus

I am sorry to hear that you feel disenfranchised from the medical people who are meant to be supportive of you. I hope that whatever adjustment is needed to the new dosage of med will begin to happen quickly for you.

Will you keep us posted on how you are doing?

Teresa

Thyroid issues not improving. Attitude negative. More blood work mid-October. The waiting game.

@parus I can only imagine how discouraged you must be. Try to hang in there and if you do not get satisfaction with your current medical provider then do some research and find another. I never choose to go to a doctor who is not full-time. My husband recently lost his PCP and the hospital assigned him to another but he has chosen to not take their recommendation. It seems they recommend doctors who don’t have many patients but often there are good reasons why they do not. Also, if these current problems are related to your thyroid should you be seeing an endocrinologist? My endo moved to a new location so my PCP has taken over that function but I am really not too happy with him so i think I will find a new endo.
JK

@parus. When I was first given Synthroid, my dosage was too high. My heart was pounding and I was agitated with trouble breathing smoothly. I was having mini-panic attacks as well. Just reading your comments brought those feelings back. My PCP told me to cut my pill in 1/2, which I did, and 2 days later I was still having symptoms, although a little bit better. So, I cut my pill in 1/2 again; still having symptoms with 1/4 pill. So, I completely stopped taking the Synthroid. Only then did I feel OK. When they tested me the next time, they discovered that there was an error in my previous test results, and my thyroid was fine. I didn’t need thyroid medication until 7 years later! But my symptoms with the unneeded medication sound like yours.

My recommendation is to cut your medication in half, or go back to your previous dosage. It’s very scary when your body feels out of control and like you can’t do anything about it. There are times when you have to override your doctor’s advice! It’s your body and you have to take care of yourself. Your doctor can’t feel what you feel. She’s obviously wrong and you need to find another doctor who is more confident and doesn’t need to be “right” at all costs.

Since you didn’t respond to the post previous to mine, I hope you are OK, and maybe have already solved the problem. Best of luck, Gail B Ledesma

@gailb

@parus. When I was first given Synthroid, my dosage was too high. My heart was pounding and I was agitated with trouble breathing smoothly. I was having mini-panic attacks as well. Just reading your comments brought those feelings back. My PCP told me to cut my pill in 1/2, which I did, and 2 days later I was still having symptoms, although a little bit better. So, I cut my pill in 1/2 again; still having symptoms with 1/4 pill. So, I completely stopped taking the Synthroid. Only then did I feel OK. When they tested me the next time, they discovered that there was an error in my previous test results, and my thyroid was fine. I didn’t need thyroid medication until 7 years later! But my symptoms with the unneeded medication sound like yours.

My recommendation is to cut your medication in half, or go back to your previous dosage. It’s very scary when your body feels out of control and like you can’t do anything about it. There are times when you have to override your doctor’s advice! It’s your body and you have to take care of yourself. Your doctor can’t feel what you feel. She’s obviously wrong and you need to find another doctor who is more confident and doesn’t need to be “right” at all costs.

Since you didn’t respond to the post previous to mine, I hope you are OK, and maybe have already solved the problem. Best of luck, Gail B Ledesma

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@gailb @parus Interesting that you say this. I have been on a small dose of levothyroxine for a number of years now. After transplant I was getting such frequent and severe “hot flashes’ that they suggested that I speak to my PCP about lowering my dose of that. I now cut my pill in half and when I had a thyroid test it still seemed like my level indicated that I was close to the borderline of being too high. I asked my PCP if I should drop it entirely and he said no, but I just decided today that I am going to give that a try because I feel hyper all of the time until I basically collapse, and my BP is somewhat high – @ 150 systolic, and in the 60s diastolic. So, we will see what happens when I drop it. My PCP would not approve of my taking this in my own hands but then I don’t think he likes me anyway so what’s one more thing for him to not like me for?
JK

Hi JK, @contentandwell

I so appreciate your sense of humor! Thanks for a smile.

Teresa

@hopeful33250

Hi JK, @contentandwell

I so appreciate your sense of humor! Thanks for a smile.

Teresa

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@hopeful33250 Honestly, I don’t think he likes me. I feel like he abandoned me while I was pre-transplant and I really think he would be quite happy if I changed doctors but until I find a good one that is accepting new patients I will stick with him.
JK

@contentandwell Probably a good decision until you find someone to replace him.

Teresa

@parus

Thyroid issues not improving. Attitude negative. More blood work mid-October. The waiting game.

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Hi, @parus. You’d mentioned in a previous post you were not seeing improvement with your thyroid and were feeling kind of negative. How has your thyroid and your mood been lately? Is your blood work coming up soon?

Well, I was bragging about my thyroid in my last post. I have been on a dose of 112 mcg. for about 1.5 years. I started seeing an endocrinologist last May, and I just saw him a couple of days ago for a 6 month checkup. My TSH, T3 and T4 were tested a couple of weeks before my appointment. He told me to stop taking my Levotyroxin for 3 days as my levels are very high. Then he changed me to 75 mcg. My PCP had just lowered my prescription to 100 mcg the week before. So, I am totally without Levothyroxine today and tomorrow, then I start on the much lower dose of 75 mcg.

I have been having small anxiety attachs for a few months, but I didn’t think too much about them. Also, I asked him about my full flushing and sweating after I eat anything, and he said it’s from too much medication. I’ve been having that for about a year now! Man, thyroids are so important and so touchy if a person who is not completely knowledgeable about them tries to treat thyroid problems.

I highly recommend going to an Endocrinologist if you have diabetes, thyroid, calcium problems. I’m glad my PCP referred me to the one I have now! I’m expecting to feel much better on the lower dose of medication.

I also am taking 1/4 of the Valsartan that I take for high blood pressure. My PCP cut my Valsartan in half to 40 mg. about 8 months ago. But my blood pressure is still quite low and I have been having quite a few dizzy spells. So, I decided to cut the 40 mg. tablets in half, and now I’m taking only 20 mg. I told the endocrinologist, and he looked at my current BP and said to keep taking the 20 mg as my pressure is good. I’m so happy to be taking less and less medicine! For one thing, it’s expensive, and it always messes with your body in some way.

My back is much better now that I’m using ART therapy, so I’m also cutting back on my Tramadol 50 mg. I’m taking it 3 times a day instead of 4 times now. I do notice pain before the 8 hours between pills, but I’m hoping that dissipates over time. If not, that will tell me that I still need it. I notice primarily at night still.

Well, my update is done. I hope everyone is doing better. Thanks, Gail B

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