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Anyone else had thyroid tissue regrowth after a total thyroidectomy?
Hi All. In 2004 I had a total thyroidectomy for nodules that were suddenly growing quite rapidly (non-cancerous). Two years ago I was diagnosed with a neuroendocrine tumor in my terminal ileum which was surgically removed. In the last month, they found two stable tumors in my liver but the CT scan and subsequent PET scan also showed what appears to be thyroid tissue (3+ cm long) in the left thyroid bed. My doctors showed skepticism that I had a total thyroidectomy but I have records to prove it. Has anyone else had thyroid tissue regrowth after a total thyroidectomy? I have a biopsy scheduled in two days. Thanks.
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Thank you for posting. I had no idea this could happen!!!!!
Which thyroid hormone blood test would show this?
Recovering from a recent high dose of RAI. My mouth, throat, gums, lips are so sore and bleeding. Does anyone have any suggestions as to what I can do to alleviate the pain and stop the bleeding? If you had these same symptoms, how long did it take before you felt somewhat human again and could swallow food?
I always wonder if it's necessary to remove ectopic thyroid tissue if it's not showing any signs of cancer. And why is it that a regrown thyroid is seen as something to be removed as well, even when it doesn't show any signs of cancer?
Could it just be that a re-gown thyroid or partial thyroid works or even ectopic thyroid tissue, simply are various ways our body compensates for the initial total thyroid removal? Like someone here said, a lizard that loses its tail just goes and grown another? Why should this be seen as a threat to the patient's health, if no cancer is detected? I'd think it would be great: you might be able to take less levothyroxin or even not have to take it anymore.
So why the repeated surgery to remove thyroid tissue and/or RAI to ablate it? It seems wrong to me.