Thyroid and Body Pain

Posted by coloradogirl @coloradogirl, Dec 13, 2017

Hi everyone – Wondering if anyone has any experience with chronic body pain and thyroid issues. The list of possible symptoms from being hypothyroid is overwhelming and to be honest, I’m often not sure if what I’m seeing online is a real list based on science or made up by someone trying to sell supplements.

We’ve finally got my medication to the point where I’m no longer hypothyroid, but I still have body aches all the time. It’s better some days and worse others. The last couple of days it’s been quite bad and even my skin hurts.

My doc just finished testing for a whole slew of other auto-immune issues including rheumatoid arthritis and celiac. Everything came back fine, so that doesn’t explain it. I’m wondering if this is really worth pursuing (given that we have a very high deductible and it’s about to roll over) or if it’s just one of the fun parts of being a thyroid patient and I need to just deal. Thanks in advance for any advice / experiences that can help.

@parus

Hi y’all. Been struggling with pain and depression and things became worse when the new PCP person changed my dosage for the Nature-Throid. Even ended up at the cardiologist since this newbie thought my symptoms were my heart-Duh. Certainly did not want to get off on the wrong foot with the newbie so played along and ended up wishing I had been brave enough to speak up for myself. Nature-Throid is different to work with than the synthetic (allergic to name brand and generic). Heart is fine and now there is a cardiologist wondering why I was sent there in the 1st place. I don’t think the newbie won any points with him. I tried to tell the newbie (the PCP I was currently seeing relocated due to family illness) the change in thyroid med dosage was not a good idea-oh well. What does an old, tired, useless person know about such things? Takes a while to get things back on track. She is currently in Haiti helping the needy there. Sure hope she helps them more than she did me. I think her mind was more on her good-will trip than her patients here.
When it comes to the thyroid a lot of quirky things can happen when it is off kilter. My depression and pain are bad enough w/o having the thyroid med mucked with. My theory is, if it is not broke why fix it?? The only med I take and since I was new to her she had to change something-Currently hoping she stays in Haiti!!! Now trying to get my pain and depression back under control in hopes of enjoying Christmas w/ my grandkids.
My apologies as my mood is anything but festive right now.
Be sure the doc you see has their numbers right as being hypothyroid can wreak havoc with your life.
Thanks for a chance to vent.

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Hi @parus and @coloradogirl I am on Acella Natural thyroid, also have hashi’s. I take 2.5 pills a day of the 60mg – What I have found is these pills are very heavy on T3 and light on T4. The endo that I was using made me get off of natural thyroid and go onto synthroid because my T4 was around .7 not even in the normal range and my free T3 was over 5 which made me over the normal range. Well after 3 weeks on synthriod I felt horrible, even worse that the hypo hyper combo of the natural thyroid. No T4 was being converted and I had diarrhea but gained 10 lbs , was so tired most days I could not even get outside. I live alone and have a business so I could not continue this way. So my wonderful endo has not returned my phone calls and I went back onto the defective Natural thyroid. I mean why become a doctor if you can’t even be there when a patient needs you the most. This was the 4th time in 20 years that I tried to go onto synthroid and it never worked before and she knew all of this. Just wondering if either of you have found the natural thyroid is not well balanced? Prior to the last few months the T4 and T3 were always in sync the way they are supposed to be.

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@parus

Hi y’all. Been struggling with pain and depression and things became worse when the new PCP person changed my dosage for the Nature-Throid. Even ended up at the cardiologist since this newbie thought my symptoms were my heart-Duh. Certainly did not want to get off on the wrong foot with the newbie so played along and ended up wishing I had been brave enough to speak up for myself. Nature-Throid is different to work with than the synthetic (allergic to name brand and generic). Heart is fine and now there is a cardiologist wondering why I was sent there in the 1st place. I don’t think the newbie won any points with him. I tried to tell the newbie (the PCP I was currently seeing relocated due to family illness) the change in thyroid med dosage was not a good idea-oh well. What does an old, tired, useless person know about such things? Takes a while to get things back on track. She is currently in Haiti helping the needy there. Sure hope she helps them more than she did me. I think her mind was more on her good-will trip than her patients here.
When it comes to the thyroid a lot of quirky things can happen when it is off kilter. My depression and pain are bad enough w/o having the thyroid med mucked with. My theory is, if it is not broke why fix it?? The only med I take and since I was new to her she had to change something-Currently hoping she stays in Haiti!!! Now trying to get my pain and depression back under control in hopes of enjoying Christmas w/ my grandkids.
My apologies as my mood is anything but festive right now.
Be sure the doc you see has their numbers right as being hypothyroid can wreak havoc with your life.
Thanks for a chance to vent.

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@doxyjune I take Nature-Throid which is the generic of Amour. I cannot take the synthetic medication. What I take is more difficult to regulate than the synthetic. It is not uncommon for someone who has taken the synthetic (Synthroid or its generic) to have problems with it. I am allergic to to the Synthroid as well. Also not uncommon with one taking thus for many years. I am sorry you are having these difficulties. I am now so fearful of my current PCP I will not go back at the time. I need to have my thyroid levels checked. I am going to request to be once again referred to a specialist as the Nature-Throid is more difficult to regulate. I have gained 20 lbs and not a happy camper. I was dubious when the doc changed the dose, but did as I was told. My own fault for not being assertive enough. Trying to get the weight back off is difficult due to chronic (sometimes severe) pain. It can be very discouraging. Keep us posted as you can. My pain is worse due to an incorrect dosage and once again being hypothyroid. Very discouraging is it not?

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@parus

Hi y’all. Been struggling with pain and depression and things became worse when the new PCP person changed my dosage for the Nature-Throid. Even ended up at the cardiologist since this newbie thought my symptoms were my heart-Duh. Certainly did not want to get off on the wrong foot with the newbie so played along and ended up wishing I had been brave enough to speak up for myself. Nature-Throid is different to work with than the synthetic (allergic to name brand and generic). Heart is fine and now there is a cardiologist wondering why I was sent there in the 1st place. I don’t think the newbie won any points with him. I tried to tell the newbie (the PCP I was currently seeing relocated due to family illness) the change in thyroid med dosage was not a good idea-oh well. What does an old, tired, useless person know about such things? Takes a while to get things back on track. She is currently in Haiti helping the needy there. Sure hope she helps them more than she did me. I think her mind was more on her good-will trip than her patients here.
When it comes to the thyroid a lot of quirky things can happen when it is off kilter. My depression and pain are bad enough w/o having the thyroid med mucked with. My theory is, if it is not broke why fix it?? The only med I take and since I was new to her she had to change something-Currently hoping she stays in Haiti!!! Now trying to get my pain and depression back under control in hopes of enjoying Christmas w/ my grandkids.
My apologies as my mood is anything but festive right now.
Be sure the doc you see has their numbers right as being hypothyroid can wreak havoc with your life.
Thanks for a chance to vent.

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@parus When my endocrinologist moved away my PCP took over my thyroid and diabetes care. I think I will find another endocrinologist or go my old one again, he’s about an hour away. If you are on Medicare you should easily be able to just switch to going to a specialist. I too really do not trust my PCP, I have discovered he doesn’t know as much as he thinks he does. I think your situation, being a bit more difficult than typical, definitely warrants going to a specialist. If you are not on Medicare a referral from your PCP should be given. If not I would change PCPs.
We all at times are not as assertive as we should be.
JK

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@parus

Hi y’all. Been struggling with pain and depression and things became worse when the new PCP person changed my dosage for the Nature-Throid. Even ended up at the cardiologist since this newbie thought my symptoms were my heart-Duh. Certainly did not want to get off on the wrong foot with the newbie so played along and ended up wishing I had been brave enough to speak up for myself. Nature-Throid is different to work with than the synthetic (allergic to name brand and generic). Heart is fine and now there is a cardiologist wondering why I was sent there in the 1st place. I don’t think the newbie won any points with him. I tried to tell the newbie (the PCP I was currently seeing relocated due to family illness) the change in thyroid med dosage was not a good idea-oh well. What does an old, tired, useless person know about such things? Takes a while to get things back on track. She is currently in Haiti helping the needy there. Sure hope she helps them more than she did me. I think her mind was more on her good-will trip than her patients here.
When it comes to the thyroid a lot of quirky things can happen when it is off kilter. My depression and pain are bad enough w/o having the thyroid med mucked with. My theory is, if it is not broke why fix it?? The only med I take and since I was new to her she had to change something-Currently hoping she stays in Haiti!!! Now trying to get my pain and depression back under control in hopes of enjoying Christmas w/ my grandkids.
My apologies as my mood is anything but festive right now.
Be sure the doc you see has their numbers right as being hypothyroid can wreak havoc with your life.
Thanks for a chance to vent.

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@contentandwell (would that I were). I do have medicare. Fearful of the new PCP and hesitant to ask to be referred back to the endo doctor. The new PCP sent me to the cardio doctor. He asked me “why” I was there. I told him because I was referred there. He shook his head and said your heart appears fine. I felt humiliated because I told the new PCP it was a thyroid problem. By the time I saw a specialist my breathing was fine. I ended up telling him, “but them books and all they do is eat the covers”. The most appropriate way I could say I did not need to see him. My heart is fine-medically.

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@parus

Hi y’all. Been struggling with pain and depression and things became worse when the new PCP person changed my dosage for the Nature-Throid. Even ended up at the cardiologist since this newbie thought my symptoms were my heart-Duh. Certainly did not want to get off on the wrong foot with the newbie so played along and ended up wishing I had been brave enough to speak up for myself. Nature-Throid is different to work with than the synthetic (allergic to name brand and generic). Heart is fine and now there is a cardiologist wondering why I was sent there in the 1st place. I don’t think the newbie won any points with him. I tried to tell the newbie (the PCP I was currently seeing relocated due to family illness) the change in thyroid med dosage was not a good idea-oh well. What does an old, tired, useless person know about such things? Takes a while to get things back on track. She is currently in Haiti helping the needy there. Sure hope she helps them more than she did me. I think her mind was more on her good-will trip than her patients here.
When it comes to the thyroid a lot of quirky things can happen when it is off kilter. My depression and pain are bad enough w/o having the thyroid med mucked with. My theory is, if it is not broke why fix it?? The only med I take and since I was new to her she had to change something-Currently hoping she stays in Haiti!!! Now trying to get my pain and depression back under control in hopes of enjoying Christmas w/ my grandkids.
My apologies as my mood is anything but festive right now.
Be sure the doc you see has their numbers right as being hypothyroid can wreak havoc with your life.
Thanks for a chance to vent.

Jump to this post

@parus “I felt humiliated because I told the new PCP it was a thyroid problem. By the time I saw a specialist my breathing was fine. I ended up telling him, “but them books and all they do is eat the covers”. The most appropriate way I could say I did not need to see him. My heart is fine medically.” WOW! I wish I could take credit for saying that! I saw a doc yesterday whom I expected to be my local whiz on my stuff. She said she had talked to one of my other doctors about my issues, and that fellow said I really did not have proof I had the problem. He(the other doctor) is a nincompoop who I dismissed after a 10 minute conversation based on 50 year old research which he said was the “latest in the field”. I really don’t want to look for another doctor. I hear the closest is about 800 miles away, very difficult for local communication.

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@parus

Hi y’all. Been struggling with pain and depression and things became worse when the new PCP person changed my dosage for the Nature-Throid. Even ended up at the cardiologist since this newbie thought my symptoms were my heart-Duh. Certainly did not want to get off on the wrong foot with the newbie so played along and ended up wishing I had been brave enough to speak up for myself. Nature-Throid is different to work with than the synthetic (allergic to name brand and generic). Heart is fine and now there is a cardiologist wondering why I was sent there in the 1st place. I don’t think the newbie won any points with him. I tried to tell the newbie (the PCP I was currently seeing relocated due to family illness) the change in thyroid med dosage was not a good idea-oh well. What does an old, tired, useless person know about such things? Takes a while to get things back on track. She is currently in Haiti helping the needy there. Sure hope she helps them more than she did me. I think her mind was more on her good-will trip than her patients here.
When it comes to the thyroid a lot of quirky things can happen when it is off kilter. My depression and pain are bad enough w/o having the thyroid med mucked with. My theory is, if it is not broke why fix it?? The only med I take and since I was new to her she had to change something-Currently hoping she stays in Haiti!!! Now trying to get my pain and depression back under control in hopes of enjoying Christmas w/ my grandkids.
My apologies as my mood is anything but festive right now.
Be sure the doc you see has their numbers right as being hypothyroid can wreak havoc with your life.
Thanks for a chance to vent.

Jump to this post

@parus if you have Medicare you don’t need a referral from your PCP, you can just go. My PCP does always want to have a report sent to him and if you are seeing an endo that is probably appropriate.
I think I have toenail fungus and I asked my PCP who he would recommend. One of his nurses left me a voicemail telling me his recommendation and that I should see him for follow up 30 days later! I can’t figure out the necessity of that. I doubt that I will bother.
JK

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@parus

Hi y’all. Been struggling with pain and depression and things became worse when the new PCP person changed my dosage for the Nature-Throid. Even ended up at the cardiologist since this newbie thought my symptoms were my heart-Duh. Certainly did not want to get off on the wrong foot with the newbie so played along and ended up wishing I had been brave enough to speak up for myself. Nature-Throid is different to work with than the synthetic (allergic to name brand and generic). Heart is fine and now there is a cardiologist wondering why I was sent there in the 1st place. I don’t think the newbie won any points with him. I tried to tell the newbie (the PCP I was currently seeing relocated due to family illness) the change in thyroid med dosage was not a good idea-oh well. What does an old, tired, useless person know about such things? Takes a while to get things back on track. She is currently in Haiti helping the needy there. Sure hope she helps them more than she did me. I think her mind was more on her good-will trip than her patients here.
When it comes to the thyroid a lot of quirky things can happen when it is off kilter. My depression and pain are bad enough w/o having the thyroid med mucked with. My theory is, if it is not broke why fix it?? The only med I take and since I was new to her she had to change something-Currently hoping she stays in Haiti!!! Now trying to get my pain and depression back under control in hopes of enjoying Christmas w/ my grandkids.
My apologies as my mood is anything but festive right now.
Be sure the doc you see has their numbers right as being hypothyroid can wreak havoc with your life.
Thanks for a chance to vent.

Jump to this post

@oldkarl I see now there was a typo in my comment. “But” out to have been “buy”. There are well-educated doctors. I do realize they see many patients. I see patients as a herd of cattle (more like sheep) being herded to slaughter. They overbook and have 2 to 5 minutes/patient. This is not even a community health clinic. I have come to realize that a PCP is only good for referrals. A whole new world. No one is accountable. We all know as patients we cannot touch the professionals in their ivory towers and white coats. Only choice is to succumb and hope for the best. Anyone with a mental health issue may as well throw in the towel. Discrimination is not only in ethnic circles. Gets to the point one may be better off seeing a vet as animals are treated more humanely. Vets can do euthanasia. If one is outside the box their goose is cooked.
“800 miles is how far it is to the moon-I think.
Will admit I do have a “tude”.

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@parus

Hi y’all. Been struggling with pain and depression and things became worse when the new PCP person changed my dosage for the Nature-Throid. Even ended up at the cardiologist since this newbie thought my symptoms were my heart-Duh. Certainly did not want to get off on the wrong foot with the newbie so played along and ended up wishing I had been brave enough to speak up for myself. Nature-Throid is different to work with than the synthetic (allergic to name brand and generic). Heart is fine and now there is a cardiologist wondering why I was sent there in the 1st place. I don’t think the newbie won any points with him. I tried to tell the newbie (the PCP I was currently seeing relocated due to family illness) the change in thyroid med dosage was not a good idea-oh well. What does an old, tired, useless person know about such things? Takes a while to get things back on track. She is currently in Haiti helping the needy there. Sure hope she helps them more than she did me. I think her mind was more on her good-will trip than her patients here.
When it comes to the thyroid a lot of quirky things can happen when it is off kilter. My depression and pain are bad enough w/o having the thyroid med mucked with. My theory is, if it is not broke why fix it?? The only med I take and since I was new to her she had to change something-Currently hoping she stays in Haiti!!! Now trying to get my pain and depression back under control in hopes of enjoying Christmas w/ my grandkids.
My apologies as my mood is anything but festive right now.
Be sure the doc you see has their numbers right as being hypothyroid can wreak havoc with your life.
Thanks for a chance to vent.

Jump to this post

@contentandwell I have a Medicare advantage plan which works better for me. At least it gives the PCP something to do. I understand about your thinking about a follow-up. Insurance does vary in states. Not keeping a follow-up could result in Insurance not paying. You are likely aware of such.

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@parus

Hi y’all. Been struggling with pain and depression and things became worse when the new PCP person changed my dosage for the Nature-Throid. Even ended up at the cardiologist since this newbie thought my symptoms were my heart-Duh. Certainly did not want to get off on the wrong foot with the newbie so played along and ended up wishing I had been brave enough to speak up for myself. Nature-Throid is different to work with than the synthetic (allergic to name brand and generic). Heart is fine and now there is a cardiologist wondering why I was sent there in the 1st place. I don’t think the newbie won any points with him. I tried to tell the newbie (the PCP I was currently seeing relocated due to family illness) the change in thyroid med dosage was not a good idea-oh well. What does an old, tired, useless person know about such things? Takes a while to get things back on track. She is currently in Haiti helping the needy there. Sure hope she helps them more than she did me. I think her mind was more on her good-will trip than her patients here.
When it comes to the thyroid a lot of quirky things can happen when it is off kilter. My depression and pain are bad enough w/o having the thyroid med mucked with. My theory is, if it is not broke why fix it?? The only med I take and since I was new to her she had to change something-Currently hoping she stays in Haiti!!! Now trying to get my pain and depression back under control in hopes of enjoying Christmas w/ my grandkids.
My apologies as my mood is anything but festive right now.
Be sure the doc you see has their numbers right as being hypothyroid can wreak havoc with your life.
Thanks for a chance to vent.

Jump to this post

@doxyjune Correction…Armour is the name brand.

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@parus

Hi y’all. Been struggling with pain and depression and things became worse when the new PCP person changed my dosage for the Nature-Throid. Even ended up at the cardiologist since this newbie thought my symptoms were my heart-Duh. Certainly did not want to get off on the wrong foot with the newbie so played along and ended up wishing I had been brave enough to speak up for myself. Nature-Throid is different to work with than the synthetic (allergic to name brand and generic). Heart is fine and now there is a cardiologist wondering why I was sent there in the 1st place. I don’t think the newbie won any points with him. I tried to tell the newbie (the PCP I was currently seeing relocated due to family illness) the change in thyroid med dosage was not a good idea-oh well. What does an old, tired, useless person know about such things? Takes a while to get things back on track. She is currently in Haiti helping the needy there. Sure hope she helps them more than she did me. I think her mind was more on her good-will trip than her patients here.
When it comes to the thyroid a lot of quirky things can happen when it is off kilter. My depression and pain are bad enough w/o having the thyroid med mucked with. My theory is, if it is not broke why fix it?? The only med I take and since I was new to her she had to change something-Currently hoping she stays in Haiti!!! Now trying to get my pain and depression back under control in hopes of enjoying Christmas w/ my grandkids.
My apologies as my mood is anything but festive right now.
Be sure the doc you see has their numbers right as being hypothyroid can wreak havoc with your life.
Thanks for a chance to vent.

Jump to this post

@parus I find it ironic that many people up here in NH (Manchester area) tend to think of Boston doctors as being cold and impersonal. We have found just the opposite. Today we had to go to MGH for a second opinion on a basal cell carcinoma on my husband’s nose. We saw two doctors, between the two of them they spent about 45 minutes with us, and they were very personable. It was a well worth the second opinion, they concurred with what we had been told by a radiation oncologist up here, and they actually knew the doctor here, he apparently has spent some time at MGH. He is one of the few doctors up here who did impress me.

Up here it is more as you describe. I was going to change my PCP because I find him so inadequate but at this point I think I will keep him because I won’t be here if there is anything serious or if he fails to diagnose anything, I’ll be on the road to Boston so why bother to find someone new.
JK

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@parus

Hi y’all. Been struggling with pain and depression and things became worse when the new PCP person changed my dosage for the Nature-Throid. Even ended up at the cardiologist since this newbie thought my symptoms were my heart-Duh. Certainly did not want to get off on the wrong foot with the newbie so played along and ended up wishing I had been brave enough to speak up for myself. Nature-Throid is different to work with than the synthetic (allergic to name brand and generic). Heart is fine and now there is a cardiologist wondering why I was sent there in the 1st place. I don’t think the newbie won any points with him. I tried to tell the newbie (the PCP I was currently seeing relocated due to family illness) the change in thyroid med dosage was not a good idea-oh well. What does an old, tired, useless person know about such things? Takes a while to get things back on track. She is currently in Haiti helping the needy there. Sure hope she helps them more than she did me. I think her mind was more on her good-will trip than her patients here.
When it comes to the thyroid a lot of quirky things can happen when it is off kilter. My depression and pain are bad enough w/o having the thyroid med mucked with. My theory is, if it is not broke why fix it?? The only med I take and since I was new to her she had to change something-Currently hoping she stays in Haiti!!! Now trying to get my pain and depression back under control in hopes of enjoying Christmas w/ my grandkids.
My apologies as my mood is anything but festive right now.
Be sure the doc you see has their numbers right as being hypothyroid can wreak havoc with your life.
Thanks for a chance to vent.

Jump to this post

@parus I have Medicare and supplement F. I am quite certain that I do not need a follow up, at least not with my PCP. I think the Medicare coverage is pretty standard state to state, although I cannot say that for certain but it is a federal program.
JK

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@parus

Hi y’all. Been struggling with pain and depression and things became worse when the new PCP person changed my dosage for the Nature-Throid. Even ended up at the cardiologist since this newbie thought my symptoms were my heart-Duh. Certainly did not want to get off on the wrong foot with the newbie so played along and ended up wishing I had been brave enough to speak up for myself. Nature-Throid is different to work with than the synthetic (allergic to name brand and generic). Heart is fine and now there is a cardiologist wondering why I was sent there in the 1st place. I don’t think the newbie won any points with him. I tried to tell the newbie (the PCP I was currently seeing relocated due to family illness) the change in thyroid med dosage was not a good idea-oh well. What does an old, tired, useless person know about such things? Takes a while to get things back on track. She is currently in Haiti helping the needy there. Sure hope she helps them more than she did me. I think her mind was more on her good-will trip than her patients here.
When it comes to the thyroid a lot of quirky things can happen when it is off kilter. My depression and pain are bad enough w/o having the thyroid med mucked with. My theory is, if it is not broke why fix it?? The only med I take and since I was new to her she had to change something-Currently hoping she stays in Haiti!!! Now trying to get my pain and depression back under control in hopes of enjoying Christmas w/ my grandkids.
My apologies as my mood is anything but festive right now.
Be sure the doc you see has their numbers right as being hypothyroid can wreak havoc with your life.
Thanks for a chance to vent.

Jump to this post

Hi @parus I was on armour thyroid for many years and around 2010 they put out a bad batch of pills. People all over the world were getting very sick. They added a new filler and it was preventing the thyroid getting into the cells. Then I went onto the Acella version. Now I am getting it from Canada, their version is called Erfa. My thyroid problems somehow caused a million other problems including pain in my legs, like a neuropathy. I too gained a ton of weight from these meds. And you can’t lose weight if you are a problem patient. Like my mom and 2 aunts are on synthroid and no weight problems. I eat less than all of them. In this world there are almost no doctors who will work with patients on natural thyroid. It is a sad problem especially since before synthyroid was invented in the 60’s everyone was on natural thyroid. Now they act like it is heroin or some hard core drug. It is from a pig’s thyroid. Just hang in there but I’m getting my new supply from Canada. Good luck.

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