Throat Cancer

Posted by skoshi @skoshi, Jan 20, 2019

Is anyone interested in a support group for Throat cancer patients?

Hi @skoshi, I have moved your message to the Head & Neck Cancer group where you will meet others with throat cancer. Here are a few discussions to get you started:
* Meet others living with Head & Neck Cancer – Come introduce yourself https://connect.mayoclinic.org/discussion/meet-others-living-with-head-neck-cancer-come-introduce-yourself/
* HPV Throat Cancer https://connect.mayoclinic.org/discussion/hpv-throat-cancer/

What type of throat cancer do you have? What treatments have you had?

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I am always interested to hear what others are going through. My husband was diagnosed with esophaguses cancer Aug 2016. He had 4 rounds of very strong chemo and then in Jan 2017 he had a gastric bypass. He has not recovered yet and has been on strictly tube feeding since July 2017. He can’t even swallow his own spit. His throat is filled with scar tissue and last July they removed a stint from his throat and both vocal cords went paralyzed. As of then they placed a trach in so he could breathe. Since then cancer would spur up in various spots, his thighs, then gone, his back, then gone, his voice box and we need to see if it is still there. Waiting for another PET to see if he is cancer free. Is so they are going to try another stint. It has all been overwhelming and very bizarre. So as a caregiver I am always interested in anything and any new medical procedures.

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@colleenyoung

Hi @skoshi, I have moved your message to the Head & Neck Cancer group where you will meet others with throat cancer. Here are a few discussions to get you started:
* Meet others living with Head & Neck Cancer – Come introduce yourself https://connect.mayoclinic.org/discussion/meet-others-living-with-head-neck-cancer-come-introduce-yourself/
* HPV Throat Cancer https://connect.mayoclinic.org/discussion/hpv-throat-cancer/

What type of throat cancer do you have? What treatments have you had?

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I was diagnosed with squamous cell carcinoma of the soft palette-uvula.September 2016. I had 35 Rads and 7 cisplatin. Completed treatment Dec 2016. Have been seeing Dr May every 3 months. Had 2 year check up on January 15. NED!! Now will follow up every 6 months.

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That is great news! Gives me hope for my husband who just had his 2nd 3 month checkup and is still in remisssion! Thank the Lord for looking after all of you.

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@karly

I am always interested to hear what others are going through. My husband was diagnosed with esophaguses cancer Aug 2016. He had 4 rounds of very strong chemo and then in Jan 2017 he had a gastric bypass. He has not recovered yet and has been on strictly tube feeding since July 2017. He can’t even swallow his own spit. His throat is filled with scar tissue and last July they removed a stint from his throat and both vocal cords went paralyzed. As of then they placed a trach in so he could breathe. Since then cancer would spur up in various spots, his thighs, then gone, his back, then gone, his voice box and we need to see if it is still there. Waiting for another PET to see if he is cancer free. Is so they are going to try another stint. It has all been overwhelming and very bizarre. So as a caregiver I am always interested in anything and any new medical procedures.

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Hello @karly

You and your husband have certainly had a difficult time with his cancer and related treatments. You sound like an exceptional caregiver on your husband's behalf. I would also like to invite you to join our Caregiver's discussion group where you might find more support for yourself. Here is the link to take you to the Caregiver's discussions, https://connect.mayoclinic.org/group/caregivers/

As you look through the many discussions there, you will undoubtedly find caregiver's, like yourself, you are doing their best to help someone else. Scott, @IndianaScott, is the moderator of the group and you will find his experiences and his words to be very helpful.

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