Problems 3 months after colon resection surgery: Help

Posted by joyce1 @joyce1, Feb 25, 2017

Three months after colon resection I had a severe stomach this morning and have not had a bowl movement yet. This is the first time this has happened. So far things have been good

@jacob73

I never was offended mate👌🏼. I'm sarcastic myself, it's in my blood I'm English and Jewish. No other way to be I reckon🤣👍🏻.

So I'm 6 days post-OP let me ask you this…how many pain pills is okay to take? My doc upped my dosage from 1 Norco every 4 hours to 2 every four hours. I haven't had any today as I think it slowed my bowels. I went this morning but, there was only about two fists full of poo. That said, all I had was soup, half a slice white bread and one egg. Up until yesterday morning i was going all the time, albeit only a small amount, but at least 7x a day. I understand this is called clumping. One goes a massive amount and then things slow down. Tonight I'm having sponge cake with cooked cinnamon apples. Not sure what else I'll eat to be honest. The pain gets worse as the day progresses. I don't have UC, or Crohn's, or IBD, however I was mostly constipated until 24, then it became 50% constipation, 50% diarrhoea. Might have to ask my GI doc about Linzess. I don't want to do Miralax every bloody day.

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I went home with a bacterial infection which was not addressed until Jsnuary, 2020; my bowels were all messed up. I think someone else might be able to give you a more straight forward answer. My diet was pretty limited (in my choices). I did incorporate apple slices for fiber and juggled back and forth between adding bulk and fiber to foods that would not irritate causing loose stools. I still eat later in the day. 2:30-3:00 pm, so I can pass my stool early evening. I choose todo this eating schedule so I can make appointments during the day and exercise (on treadmill right now! Multitasking!!!). Took me awhile to figure it out, but I’m sure, in time, you will be good to ago. I hope you get other members responding with helpful advice. Take care

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Yes I’m not the typical patient. Anything that could go wrong has gone wrong. The first leak was caused by a staple that came loose at the connection site. The I developed abscesses after each of my surgeries. With the most recent surgery, they aren’t sure. It could have been a small Knick to the bowel or it could be an unknown cause. I do have ulcerative colitis and have had it for 25 years. That causes inflammation in your colon (it’s an auto immune disease). My colon cancer diagnosis was a complete shock as I was very healthy and a fitness fanatic (ran 5 miles a day and attended barre class 5 times per week. Very healthy so I was shocked to hear I had cancer. I was 51 when I was diagnosed and had I not been as physically fit, I wouldn’t have recovered as well as I did. With my most recent hospitalization, I was on a vent for 9 days and in ICU for 12 days. I couldn’t even stand up on my own, but I was determined that I would come home instead of a rehab facility so I forced myself to walk and show them I could do stairs! I have a good friend who had her sigmoid removed because of diverticulitis. She said it took over a year to feel normal. Good luck

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@lisag03

Yes I’m not the typical patient. Anything that could go wrong has gone wrong. The first leak was caused by a staple that came loose at the connection site. The I developed abscesses after each of my surgeries. With the most recent surgery, they aren’t sure. It could have been a small Knick to the bowel or it could be an unknown cause. I do have ulcerative colitis and have had it for 25 years. That causes inflammation in your colon (it’s an auto immune disease). My colon cancer diagnosis was a complete shock as I was very healthy and a fitness fanatic (ran 5 miles a day and attended barre class 5 times per week. Very healthy so I was shocked to hear I had cancer. I was 51 when I was diagnosed and had I not been as physically fit, I wouldn’t have recovered as well as I did. With my most recent hospitalization, I was on a vent for 9 days and in ICU for 12 days. I couldn’t even stand up on my own, but I was determined that I would come home instead of a rehab facility so I forced myself to walk and show them I could do stairs! I have a good friend who had her sigmoid removed because of diverticulitis. She said it took over a year to feel normal. Good luck

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F**king hell, a staple. What awful luck pal. I don't know what to say? You're a tough bird. Good on you! I'm a fighter as well, I bloody love this life–even if it can be right sh*t at times. The world and people are amazing. I'll fight with everything i got to be apart of it as long as i can. Shalom & take care.

Liked by lisag03

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Think I'm going to add magnesium tablets to my daily regimen. I did this prior to surgery. I only had to use miralax after heavier meals. I'm only 8 days post op, but things are way different. I go like 5 times a day, but the output isn't as much🤔.

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My husband lost three feet of colon in a resection ten years ago. Stage IIIa colon cancer. Like some of you here he had frequent loose to runny stools ever after. Doctors seemed to think it just goes with the territory and didn't give it much thought.
Ran across a new dr. who checked his gut flora a.k.a. microbiome(?) and it was not right.
She told me to get 'Align' probiotic 14 day package and it did the trick. About $30.00 at small town pharmacy. If you try it be sure to check the expiration date (my pharmacist told me so)
Husband doesn't have to take it all the time, about every 4 to 5 months his stools start getting a little sloppy and I get another box and presto chango all is well again.
Seems he can't maintain healthy gut flora no matter what he eats. Don't know why – was it the re-section or the frequent PET scans following.

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@burnt2acrisp

My husband lost three feet of colon in a resection ten years ago. Stage IIIa colon cancer. Like some of you here he had frequent loose to runny stools ever after. Doctors seemed to think it just goes with the territory and didn't give it much thought.
Ran across a new dr. who checked his gut flora a.k.a. microbiome(?) and it was not right.
She told me to get 'Align' probiotic 14 day package and it did the trick. About $30.00 at small town pharmacy. If you try it be sure to check the expiration date (my pharmacist told me so)
Husband doesn't have to take it all the time, about every 4 to 5 months his stools start getting a little sloppy and I get another box and presto chango all is well again.
Seems he can't maintain healthy gut flora no matter what he eats. Don't know why – was it the re-section or the frequent PET scans following.

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Thank you for that great piece of info. I decided that after my re-section, I would be dealing with a change in bathroom habits. I take a probiotic, but I will consider the brand you mentioned. I hope your husband continues to do well. I’m sure there are many of us on this site that will find your information very helpful.

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@virgo1952

Thank you for that great piece of info. I decided that after my re-section, I would be dealing with a change in bathroom habits. I take a probiotic, but I will consider the brand you mentioned. I hope your husband continues to do well. I’m sure there are many of us on this site that will find your information very helpful.

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May I ask the name of the probiotic that you mention and is it a pill or liquid? Thank you.

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@colleenyoung

Hi Joyce,
I’m so sorry to hear that you are experiencing such pain 3 months after your colon resection. I’m bringing @starrlight @sallyg @nannytart and @travelgirl into this discussion to see if they have some advice to share. It is painful to not have had a bowel movement. How long has it been since you’ve had one? Are you drinking plenty of fluids?

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Drink at least a quart a day. Drinks with no sugar, but has electrolytes help a ton. I take opioids for pain, but that causes constipation. I find orange juice helps with potty issues. God bless, I am 5 years bouncing with constipation and found still softener after every meal helps
Doctor said it is too much, but his rear end isn't in pain as mine is. Like God said, he will help those who also help themselves.
Best Wishes, and keep those little things that perk you up going.

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@1943

One year after colon resection have frequent diarrhea and hard to clean hemrhoids . Just the opposite of constipation. Also bm several times a day

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I go 6 to 7 times a day. Sore but does not fully explain the pain I live with daily. 3 bath tub soaks daily help a ton.

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I might have missed it. But after 14” were removed from my colon due to diverticulosis I had to go back for several sessions where they would stretch out the colon with balloon treatments. Where the colon is stapled back together causes a narrowing of the colon hence the balloons to stretch it back out.

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I am sorry to see that you all are experiencing exactly what I am experiencing but I am relieved. I literally left Advent Health Orlando in tears today because of the how my nurse, charge nurse, and admitting MD treated me. I stayed in the hospital two days during this Pandemic to be told I was fine (just constipated) and the tests didn't reveal any reason for my pain level. I was told to take Tylenol, Miralax and Docusate and to slowly resume a diet. I tried to tell the nurse I wasn't comfortable with discharge because I am being sent home with no answers, no instructions, and no medications. What was the point of being hospitalized?
Let me back up…I was hospitalized in October because I had a cecal volvulus. I had a third of my intestine removed…it adhered to my liver. I had a rough couple of days after surgery but everything was going well except for occasional constipation. Well, at the end of Feb. I woke up in excruciating pain (in my right upper quadrant). I ended up having to call 911. I got to the ED and the pain started to subside on it's own without any intervention. I found out I was pregnant at this ED visit so I couldn't get a CT scan. Well the same thing happened this weekend and I ended up in the ED again. The US was fine in the ED but they recommended I stay to get pain managment and a MRI. Well my MRI was fine and from that point on my MD and nurse started treating me like a drug seeking idiot. Can you all give me any insight and even better tell me what to do to stop this from happening again?

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I am 2 months post op . Was dong fairly good until I started waking up with the jitters every morning after a night of no sleep because of nerve pain gong down my legs. Never had that until after surgery. I am really regretting I ever had the surgery. I would rather deal with the Diverticulosis than this. Stinging, burning pain across lower abdomen and uneasy feeling in lower stomach. I go to bathroom constantly and have gone as much as 10 times a day! My urine just flows from me, not much control at all, I am getting really depressed because when you are hurting all the time , you don't want to do anything. I have prayed for the Lord to take this pain from me. Doctor says that everything inside and out is healed and there is nothing I can do to hurt my insides. THEN WHY AM I STILL HURTING ??? He says it is nerve pain and it will subside, but WHEN ? I just want my life back. I am 71 years old , but I have always liked to stay busy and now somedays I don't feel like doing anything but sit. Anybody out there going through this too ??

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@carlyrn

I am sorry to see that you all are experiencing exactly what I am experiencing but I am relieved. I literally left Advent Health Orlando in tears today because of the how my nurse, charge nurse, and admitting MD treated me. I stayed in the hospital two days during this Pandemic to be told I was fine (just constipated) and the tests didn't reveal any reason for my pain level. I was told to take Tylenol, Miralax and Docusate and to slowly resume a diet. I tried to tell the nurse I wasn't comfortable with discharge because I am being sent home with no answers, no instructions, and no medications. What was the point of being hospitalized?
Let me back up…I was hospitalized in October because I had a cecal volvulus. I had a third of my intestine removed…it adhered to my liver. I had a rough couple of days after surgery but everything was going well except for occasional constipation. Well, at the end of Feb. I woke up in excruciating pain (in my right upper quadrant). I ended up having to call 911. I got to the ED and the pain started to subside on it's own without any intervention. I found out I was pregnant at this ED visit so I couldn't get a CT scan. Well the same thing happened this weekend and I ended up in the ED again. The US was fine in the ED but they recommended I stay to get pain managment and a MRI. Well my MRI was fine and from that point on my MD and nurse started treating me like a drug seeking idiot. Can you all give me any insight and even better tell me what to do to stop this from happening again?

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Hi @carlyrn, am I correct in understanding that you are currently pregnant? Were you given any dietary regime to follow to help ease the constipation? Normally, I might suggest getting a second opinion, however that will likely be impossible during this time of the coronavirus crisis. Can you request a tele-consult?

I'd also like to bring other members into this discussion who may have some thoughts and experiences to share, like @astaingegerdm and @virgo1952

@mizreehop1896, like @lisag03 said, 2 months after surgery is not very long. Her friend had her sigmoid removed because of diverticulitis and said it took over a year to feel normal. It is so hard to heal if you can't get proper sleep. Is there anything that helps you sleep better?

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@mizreehop1896

I am 2 months post op . Was dong fairly good until I started waking up with the jitters every morning after a night of no sleep because of nerve pain gong down my legs. Never had that until after surgery. I am really regretting I ever had the surgery. I would rather deal with the Diverticulosis than this. Stinging, burning pain across lower abdomen and uneasy feeling in lower stomach. I go to bathroom constantly and have gone as much as 10 times a day! My urine just flows from me, not much control at all, I am getting really depressed because when you are hurting all the time , you don't want to do anything. I have prayed for the Lord to take this pain from me. Doctor says that everything inside and out is healed and there is nothing I can do to hurt my insides. THEN WHY AM I STILL HURTING ??? He says it is nerve pain and it will subside, but WHEN ? I just want my life back. I am 71 years old , but I have always liked to stay busy and now somedays I don't feel like doing anything but sit. Anybody out there going through this too ??

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Hi. You kind of sound like me when I connected with this group. Different circumstances but same surgery. You are not alone with frequent bowel movements and stomach pain. I remember Coleen telling me to be patient and it was early days. I think I got more information and support from this chat group then from local medical facilities. Ask Colleen about a member who also experienced leg pain and numbness. He might have some pointers. Not sure about your pain. Mine was the actual incision healing. The surgeon cut through abdomen muscle. I also think you experience stomach pain with your body adjusting to a new normal. I know taking gas pills and picking foods that were easily digested (noodles, few veggies, chicken, no hot, no spicy), I still can’t eat chocolate☹️ It’s been five months and I have a scheduled eating routine that allows me to have my day and stay regular. What that means for me is still having multiple bowel movements, but not feeling housebound. I eat a lot of fibrous foods (now), but mostly, I drink a lot of water/liquids and exercise daily. Also, Citracil has been helpful when needed. At this point, it’s working and I can live with this. Working towards normalizing my bowel frequency, that just takes time I hope you start feeling better. It was 21/2-3 months before I started seeing a marked improvement .

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@carlyrn

I am sorry to see that you all are experiencing exactly what I am experiencing but I am relieved. I literally left Advent Health Orlando in tears today because of the how my nurse, charge nurse, and admitting MD treated me. I stayed in the hospital two days during this Pandemic to be told I was fine (just constipated) and the tests didn't reveal any reason for my pain level. I was told to take Tylenol, Miralax and Docusate and to slowly resume a diet. I tried to tell the nurse I wasn't comfortable with discharge because I am being sent home with no answers, no instructions, and no medications. What was the point of being hospitalized?
Let me back up…I was hospitalized in October because I had a cecal volvulus. I had a third of my intestine removed…it adhered to my liver. I had a rough couple of days after surgery but everything was going well except for occasional constipation. Well, at the end of Feb. I woke up in excruciating pain (in my right upper quadrant). I ended up having to call 911. I got to the ED and the pain started to subside on it's own without any intervention. I found out I was pregnant at this ED visit so I couldn't get a CT scan. Well the same thing happened this weekend and I ended up in the ED again. The US was fine in the ED but they recommended I stay to get pain managment and a MRI. Well my MRI was fine and from that point on my MD and nurse started treating me like a drug seeking idiot. Can you all give me any insight and even better tell me what to do to stop this from happening again?

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@carlyrn – I’m sorry you are going through these pain episodes- while being pregnant too.
First- you had major surgery in October and lost part of your intestine -in the process the nerve supply probably was interrupted and has not had time yet to regrow. Therefore, it is easy to understand why you have constipation too. Irregular peristalsis. It’s good that the ER tests were normal though. Unfortunate that the staff didn’t treat you well. Are you able to contact your surgeon or gastroenterologist to talk about what’s happening and what else can do to alleviate the constipation?

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