Problems months after colon resection surgery: What Helps?

Posted by joyce1 @joyce1, Feb 25, 2017

Three months after colon resection I had a severe stomach cramp this morning and have not had a bowel movement yet. This is the first time this has happened. So far things have been good.

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@vreimchen74

I am so sorry to hear that you are in such distress. Have ever thought about acupuncture? I am thing about giving it a try to see if it relives any of my pain.

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Actually I have thought about it. In fact a close friend is an acupuncturist and we discussed it. I haven't actually tried it partly because of the COVID restrictions.

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You may be having nerve pain. When your new colon is holding stool it can put pressure on nerves and if there was any nerve damage during surgery, it feels like a hot poker. I was having some really bad pain above my scar and mentioned it to my surgeon at our bi-monthly zoom office visit. He agreed that was probably it. He put me on a nerve pain med called Gabapeten. I used it for a few nights before bed and now I'm not having the pain. I still have alot of pills left so will hold on to them in case it comes back. I take just a teaspoon of Metamucil in the morning and before eating. Seems to help. Also I have loperaminde 2mg which is imodium that helps with loose stool. Good luck I hope you find some relief.

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Hi I have Crohns disease diagnosed at age 12... I've experienced everything to do with IBD... Anything you ask but now I have one major problem.... I have bowel movements every hour about 20 per day... I always used to take loperimide and it helped but a few years ago I could not take it because it makes my small bowel cramp really badly... I'm waiting on a doctors appointment with mh surgeon recently I took a colonoscopy... It showed a obstruction... I'm on the public health system here in New Zealand and while it's free it takes a long time to get seen... If I was in USA my medical insurance would be too much for me to pay... I need something to slow my bowel down.... I feel like a baby and I need a nappy it gets kinda humiliated but I can't let it bother me.... I've heard of metamucil... I have a question and maybe you could help me understand if it could help? How does it feel? Does it slow your bowel without imodium? On other posts I've been listening and following so I guess I've decided to respond now.... I've had multiple comparative diagnosis so I ask anyone following this thread let's talk and see if we can help each other. God bless Martin

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@ron7614

Actually I have thought about it. In fact a close friend is an acupuncturist and we discussed it. I haven't actually tried it partly because of the COVID restrictions.

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That is what is holding me back from making an appointment. I have been vaccinated for covid19.

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@virgo1952

Hello fellow re-section-ers (?). I had a colon resection the end of October,2019; and joined when no one in my area could give me info/answers to what the heck was going on with my body. In addition, I was diagnosed positive for a bacterial infection that I don’t need to expand upon. Only, that it may have extended my healing process. It is now mid February and I am not house bound, doing scheduled eating for better bowel control (generally emptying out in the early evening hours) and back to my daily exercise routine. Not perfect, but so much better. I probably “turned” that corner around two months. It may be different for each of us, but you will know when it starts. Mostly, for me, my eating was limited due to nausea and taste was off. Sweet was my worst. Weight loss, nice but not like this, bowel urges and frequency, with sometimes disappointing outcome (yes, I was a toilet hugger), some pain/tenderness around my incision (learned bearing down was not good)! and low energy. All that has gotten better and I hope it continues as time goes on. The six week recovery that my doctor spouted has turned into a more realistic 3-4 month recovery. So, be patient and take good care of yourself. I find I still experience occasional abdominal pain; but have found drinking citracel helped. Also, gas pills. I hope that is helpful to someone. This information I got from others who reached out to me when I needed help.

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Hello, was the bacterial infection the cause of the pain after surgery? thank you

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Two years after surgery I have painful flare ups on my left side. CT scans and blood work always show no issues but I have a burning on my left side. It’s painful, the first time I felt it was about 3 weeks after surgery they said it was epiglottis appendigritis, fatty tissue tangled in nerves and with weight loss pain would stop. Two years later I still have pain even with weight loss. I’m frustrated with no answers anyone have similar issue? I’ve had colonoscopy, ct, mri, X-ray and bloodwork but no one can give me an answer. The only thing they give me is pain killers and muscle relaxers but all that does is knock me out.

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Hi @angel1972, and welcome to Mayo Clinic Connect. You will see I moved your post to an ongoing discussion about pain after colon surgery. This is so you can connect with others like you that have been through similar situations.
Have you found anything at all that gives you some sense of relief?

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I had my total colectomy about 4 months ago. I also am getting those pains. My doctor prescribed gabapentin a medicine for nerve pain. I don't take it often but when I do the pain isn't so severe. You have to take it before bed because it does. make you drowsy. Not sure if that will work but you might want to ask your doctor if that might help. Hope you get some relief.

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@amandaa

Hi @angel1972, and welcome to Mayo Clinic Connect. You will see I moved your post to an ongoing discussion about pain after colon surgery. This is so you can connect with others like you that have been through similar situations.
Have you found anything at all that gives you some sense of relief?

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Hello @angel1972

I would like to add my welcome to you as you have recently posted on Mayo Clinic Connect. As you know, we are not medical professionals, but patients like yourself, who seek to encourage others as we share our experiences with health problems.

I am sorry to hear about the chronic pain you are experiencing. Chronic pain can be tiring, whether you take pain meds or not. It is a very difficult problem for all of us to live with. I'm just wondering what type of doctors you have consulted about this pain. I'm guessing that maybe you've only consulted with GI doctors as the GI tests you have mentioned are all GI-related.

As you have not found any relief, I'm wondering if you have considered consulting with a pain specialist or perhaps a pain clinic? These are usually found in larger research hospitals like Mayo Clinic and/or university medical centers. Here is some information about Mayo's Pain Rehabilitation Center. https://www.mayoclinic.org/departments-centers/pain-rehabilitation-center/sections/overview/ovc-20481691.

If you read this website article you will see that they do help people with abdominal pain. Perhaps this might be a good option for you if nothing else has helped.

If you would like to make an appointment at one of Mayo Clinic's three locations, here is information about appointments, https://www.mayoclinic.org/appointments?

I would encourage you to check into a pain center at Mayo or in your own vicinity, if that is more convenient, and see if they can offer you more help. If you would like some information about members of Connect who have been helped at Mayo's pain rehab center here is a link to that discussion, https://connect.mayoclinic.org/discussion/mayo-pain-rehabilitation-program/

I hope that you find some relief from this problem. I look forward to hearing from you again. As you are able, will you post an update?

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@virgo1952

Hello fellow re-section-ers (?). I had a colon resection the end of October,2019; and joined when no one in my area could give me info/answers to what the heck was going on with my body. In addition, I was diagnosed positive for a bacterial infection that I don’t need to expand upon. Only, that it may have extended my healing process. It is now mid February and I am not house bound, doing scheduled eating for better bowel control (generally emptying out in the early evening hours) and back to my daily exercise routine. Not perfect, but so much better. I probably “turned” that corner around two months. It may be different for each of us, but you will know when it starts. Mostly, for me, my eating was limited due to nausea and taste was off. Sweet was my worst. Weight loss, nice but not like this, bowel urges and frequency, with sometimes disappointing outcome (yes, I was a toilet hugger), some pain/tenderness around my incision (learned bearing down was not good)! and low energy. All that has gotten better and I hope it continues as time goes on. The six week recovery that my doctor spouted has turned into a more realistic 3-4 month recovery. So, be patient and take good care of yourself. I find I still experience occasional abdominal pain; but have found drinking citracel helped. Also, gas pills. I hope that is helpful to someone. This information I got from others who reached out to me when I needed help.

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i had bowel resection jan2019. ,2weeks after got wound infection , had vac pump for 6 weeks , now 1year 4 months still little twings x little sorness , so doc says 6weeks to 3 months /? bowels always good from day 3 and still good , But took me this time to recover ,,
good luck to all xx

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