This and That and Talk - My Transplant

Posted by Rosemary, Volunteer Mentor @rosemarya, Apr 9, 2017

As our Mayo Connect community grows, I am constantly meeting organ transplant members on a wide variety of forums with a wide range of issues that are not directly transplant specific. However, because we are all transplant recipients, we have a special connection: a unique journey and best of all - a new life! We don't always need help or advice. Many times we just want to chat with someone like us! That is my purpose in starting This and That and Talk.

Drop in and say 'Hi'. You are welcome anytime.

What do you want t to talk about? What words can you offer to someone who is on the journey? Do you have any questions for another recipient?

Interested in more discussions like this? Go to the Transplants Support Group.

@taarthi

Thanks everyone! Does the Kidney biopsy require overnight stay at the hospital? I had a 24 hour stay for my first kidney biopsy.

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My biopsies took about 3 hrs.
and I did not have to stay in the hospital. I was in Rochester for a length of time during both biopsies, but not because of them.

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Thanks everyone! Does the Kidney biopsy require overnight stay at the hospital? I had a 24 hour stay for my first kidney biopsy.

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@taarthi

Do they do a kidney biopsy after 90 days of kidney transplant? I had a kidney biopsy 15 years ago during my initial diagnosis and it was awful! I really hope I never get to have another biopsy again but I saw online that it is a norm to do a kidney biopsy after a kidney transplant. Is that true?

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@taarthi - At Mayo Clinic, our post-kidney transplant patients could be scheduled for biopsy at 4 months, 1 year, 2 years, 4 years, 5 years, 7 years, and 10 years after transplant, depending upon the patient's situation. These biopsies show the doctors the inner workings of your kidney to be sure it is functioning correctly, and biopsy is one way to diagnose possible rejection. Not all clinics may have the same schedule, but I would definitely recommend doing what your team thinks you should do. I know it can be uncomfortable and even a bit painful to some people, but it's much better than the alterative of losing a kidney to rejection or non-function.

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@taarthi my husband had to have a biopsy on his liver after his transplant. They did a topical on his stomach before they did it. All the nerve endings for the liver had been cut so he didn't feel anything. I'm assuming it would be the same for a kidney.
Blessings,
JoDee

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In reply to @cmael "@taarthi" + (show)

I had a kidney biopsy shortly after transplant due rejection which was treated successfully. I also had one in August as part of my 4 month follow up. Neither one was particularly painful. They do treat the area with Lidocaine or something similar before.

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@taarthi

Do they do a kidney biopsy after 90 days of kidney transplant? I had a kidney biopsy 15 years ago during my initial diagnosis and it was awful! I really hope I never get to have another biopsy again but I saw online that it is a norm to do a kidney biopsy after a kidney transplant. Is that true?

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Do they do a kidney biopsy after 90 days of kidney transplant? I had a kidney biopsy 15 years ago during my initial diagnosis and it was awful! I really hope I never get to have another biopsy again but I saw online that it is a norm to do a kidney biopsy after a kidney transplant. Is that true?

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@gaylea1

@contentandwell it's wonderful to have such great support. I'm sure your husband and children are happy to see you doing well.

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@gaylea1 it has been great. I didn’t realize until after my transplant that because I was so miserable for about 6 weeks prior my husband thought he was going to lose me - I gained about 35 pounds of fluid.
My transplant was in September and for Christmas not only did my son, daughter, and her fiancé (now husband) totally prepare dinner for us and company, but they gave me a beautiful gift.
JK

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@contentandwell

@gaylea1 Your children certainly are devoted to you, that's wonderful.

My husband took the reins and was here with me most of the time, but since my HE episodes were pretty distinct he did not need to be here all of the time. He works two days a week and continued to do that, and I was able to continue driving, shopping, and going to my health club. I even drove back and forth to our place on a lake in the summer of 2015 but I told my husband before the summer started in 2016 that I was no longer comfortable driving for a long distance which surprised him. Prior to an HE episode, I could feel it coming on so being close to home I would just get right back here.

My daughter did come and stay with me once when my husband went off to visit our son who was at that time living in CA. Since they both live a distance they did what they could do and I discouraged them from doing anything more since my husband was handling things very well.
JK

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@contentandwell it's wonderful to have such great support. I'm sure your husband and children are happy to see you doing well.

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@gaylea1

@contentandwell My children didn't leave my bedside for 3 weeks when I went into my first HE episode that almost killed me. They slept on a cot beside me and took turns watching me so that I wouldn't be alone. They hold my Power of Attorney for personal care and had every doctor and nurse explain what and why procedures were done. I was in no condition to understand anything going on. When I was released from hospital my daughter took me to her house for 4 months as I started to walk and eat again. They talk to me every day and keep tabs on me. I can't imagine waking up without them there. They have put aside time from work to be with me post surgery leaving their jobs and homes. I will forever be grateful to them. They are my gems.

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@gaylea1 Your children certainly are devoted to you, that's wonderful.

My husband took the reins and was here with me most of the time, but since my HE episodes were pretty distinct he did not need to be here all of the time. He works two days a week and continued to do that, and I was able to continue driving, shopping, and going to my health club. I even drove back and forth to our place on a lake in the summer of 2015 but I told my husband before the summer started in 2016 that I was no longer comfortable driving for a long distance which surprised him. Prior to an HE episode, I could feel it coming on so being close to home I would just get right back here.

My daughter did come and stay with me once when my husband went off to visit our son who was at that time living in CA. Since they both live a distance they did what they could do and I discouraged them from doing anything more since my husband was handling things very well.
JK

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