1. < Transplants
Mentor

This and That and Talk - My Transplant

Posted by Rosemary, Volunteer Mentor @rosemarya, Apr 9, 2017

As our Mayo Connect community grows, I am constantly meeting organ transplant members on a wide variety of forums with a wide range of issues that are not directly transplant specific. However, because we are all transplant recipients, we have a special connection: a unique journey and best of all - a new life! We don't always need help or advice. Many times we just want to chat with someone like us! That is my purpose in starting This and That and Talk.

Drop in and say 'Hi'. You are welcome anytime.

What do you want t to talk about? What words can you offer to someone who is on the journey? Do you have any questions for another recipient?

Interested in more discussions like this? Go to the Transplants Support Group.

cmael | @cmael | Jan 20, 2019
In reply to @gaylea1 "@contentandwell @rosemarya My time back home (3 days) didn't last long. Back in the hospital since..." + (show)
@gaylea1

@contentandwell @rosemarya My time back home (3 days) didn't last long. Back in the hospital since last Thurs (today is Sun). My next ERCP is scheduled for tomorrow morning. If the stent can't be inserted internally they will have to place a drain externally or in the worst scenario open me up (again) and surgically correct. That would be 3 surgeries in 2 months. Oh well....whatever it takes to come out on the other side.

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Thinking of you and sending wishes for the best outcome.
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JK | @contentandwell | Jan 20, 2019
In reply to @gaylea1 "@contentandwell @rosemarya My time back home (3 days) didn't last long. Back in the hospital since..." + (show)
@gaylea1

@contentandwell @rosemarya My time back home (3 days) didn't last long. Back in the hospital since last Thurs (today is Sun). My next ERCP is scheduled for tomorrow morning. If the stent can't be inserted internally they will have to place a drain externally or in the worst scenario open me up (again) and surgically correct. That would be 3 surgeries in 2 months. Oh well....whatever it takes to come out on the other side.

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@gaylea1 Oh no! I hope things work out well tomorrow, I will say some prayers for you tonight. I know you must be really dreading the possibility of having another surgical procedure, who wouldn't be?
Despite all, you seem to be maintaining a positive attitude. I firmly believe that really helps. I think being confident of your medical team is key to that too.
Keep us up to date when you are able.
JK

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gaylea1 | @gaylea1 | Jan 20, 2019

@contentandwell @rosemarya My time back home (3 days) didn't last long. Back in the hospital since last Thurs (today is Sun). My next ERCP is scheduled for tomorrow morning. If the stent can't be inserted internally they will have to place a drain externally or in the worst scenario open me up (again) and surgically correct. That would be 3 surgeries in 2 months. Oh well....whatever it takes to come out on the other side.

REPLY
3 replies
JK | @contentandwell | Jan 15, 2019
In reply to @gaylea1 "@contentandwell I am at home now building up strength for the 2nd attempt at the ERCP..." + (show)
@gaylea1

@contentandwell I am at home now building up strength for the 2nd attempt at the ERCP procedure. If this goes well then I can be on the road to recovery. 🤞🤞 fingers crossed!

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@gaylea1 Time for a celebration for being home! That must feel so good. When will the next ERCP attempt be? Does that have to be an inpatient procedure?
JK

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Mentor
Rosemary, Volunteer Mentor | @rosemarya | Jan 14, 2019
In reply to @gaylea1 "@contentandwell I am at home now building up strength for the 2nd attempt at the ERCP..." + (show)
@gaylea1

@contentandwell I am at home now building up strength for the 2nd attempt at the ERCP procedure. If this goes well then I can be on the road to recovery. 🤞🤞 fingers crossed!

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@gaylea, I hope you can get some sleep and Sweet Dreams tonight in your own bed.

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gaylea1 | @gaylea1 | Jan 14, 2019

@contentandwell I am at home now building up strength for the 2nd attempt at the ERCP procedure. If this goes well then I can be on the road to recovery. 🤞🤞 fingers crossed!

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2 replies
JK | @contentandwell | Jan 14, 2019
In reply to @gaylea1 "@contentandwell I will definitely keep you updated. Thanks so much for caring. It meand a lot...." + (show)
@gaylea1

@contentandwell I will definitely keep you updated. Thanks so much for caring. It meand a lot.
Gayle

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@gaylea1 We are all cheering you on. How are things going now? I am so sorry you have to go through this but I am confident that in the end, everything will be great. Keep that positive attitude.
JK

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jeanne5009 | @jeanne5009 | Jan 13, 2019
In reply to @gaylea1 "@rosemarya @contentandwell @jeanne5009 Since my last post I've had the ERCP procedure (scope to insert stent..." + (show)
@gaylea1

@rosemarya @contentandwell @jeanne5009 Since my last post I've had the ERCP procedure (scope to insert stent to unblock bile duct) and it failed. They managed to rattle my pancreas which ended up with me having pancreatitis. The symptons being severe nausea, vomiting and pain. I was unable to hold anything down including my immunosuppresents and other meds. I've been back in hospital since last Thursday waiting for this to be resolved. I will be scheduled for another ERCP to try and get the stent in again. 🤞🤞that it works this time and that I don't get pancreatitis again. Hopefully soon I'll be on the right track. I WILL SURVIVE! Lol...new mantra.

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@gaylea1
Thinking of you..your strength and will are being tested. Prayers for a smooth recovery. Be strong!

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gaylea1 | @gaylea1 | Jan 13, 2019
In reply to @contentandwell "@gaylea1 I didn't have many of your complications, but the diabetes one is pretty common I..." + (show)
@contentandwell

@gaylea1 I didn't have many of your complications, but the diabetes one is pretty common I think due to prednisone. I had to be on insulin for a while until they decreased my prednisone dosage.
I hope the bile duct problem is easily resolved. Looking forward to hearing that that everything is A-ok.
JK

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@contentandwell I will be rescheduled for another ERCP once I recover from the last attempt.

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gaylea1 | @gaylea1 | Jan 13, 2019
In reply to @contentandwell "@des46893 It is good to be aware of the potential problems, but also to keep in..." + (show)
@contentandwell

@des46893 It is good to be aware of the potential problems, but also to keep in mind that those problems are less frequent than having everything go successfully. As you said, GVHD is apparently very rare, and I had not heard of CMV either.
Things went along better than I ever imagined when I had my liver transplant. I thought being older (69 at the time of transplant) that I might have more problems than I did but I was great, very quickly.
@gaylea1 I am sure these bumps in the road will get over quickly and things will be smooth sailing after that. Keep us informed.
JK

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@contentandwell I will definitely keep you updated. Thanks so much for caring. It meand a lot.
Gayle

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