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This and That and Talk - My Transplant
As our Mayo Connect community grows, I am constantly meeting organ transplant members on a wide variety of forums with a wide range of issues that are not directly transplant specific. However, because we are all transplant recipients, we have a special connection: a unique journey and best of all - a new life! We don't always need help or advice. Many times we just want to chat with someone like us! That is my purpose in starting This and That and Talk.
Drop in and say 'Hi'. You are welcome anytime.
What do you want t to talk about? What words can you offer to someone who is on the journey? Do you have any questions for another recipient?
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Hi @ckm
I am so sorry to hear about the Histoplasmosis infection. What immune suppression meds and dosages is your husband taking? Is immune suppression reduced now?
My husband had a liver transplant on November 15. He came back quite quickly. He’s 71.
After leaving the hospital we stayed at the Gift of Life house.
When home I ordered some fruit and veggie spray. I kept wiping tables, counter, phones, or ant surfaces. Extra careful everyday cleaning the bathrooms etc
On New Year’s Day my husband couldn’t breathe. We went to the ED in Mankato and they wanted him airlifted to Rochester. He’s still in ICU with a bacterial infection. Histoplasmosis. They are sure he had in his body before the transplant. We all do but being immune compromised started it up. His chest X-rays are still almost all white, on strong antibiotics and high flow cannula oxygen. Anyone have any experience with that? It’s still a high dose. I am wondering how long if someone reads this who is familiar and what the future may look like???
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4 ReactionsI’d be curious if you find out any information from the transplant team if you don’t mind sharing.
I won’t see my team again until October. I’ve tried to do a little more research and I really can’t see any drawbacks unless there are amounts of minerals that would interfere with meds.
I know you have a lot going on right now, I hope all goes well for you.
Considering trying it. I checked with the ALF and they were not aware of any downsides. I need to speak to my transplant team on another matter, and will see if they are aware of any reason to stay away.
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1 ReactionHi @tream01 Interesting that you asked about Green Salt as I’ve been considering this too! I’ve been reading articles about the salt that’s made from dehydrated samphire (sea asparagus) which has a natural salty taste. I’ve had samphire on top of a salad and it really gave that great hint of salt without leaving my mouth all burning.
Here are some of the links to articles I’ve read. You’ve probably seen them too. Not sure some of them are what I’d call credible sources of info…they should be taken with…a grain of salt. Pun intended. But looking at the product, where it’s grown, the nutrients and the theory behind it…why not?
I’m actually going to try this myself. I’m curious, like you, to see if anyone else has tried the Green Salt.
https://www.trygreensalt.com/
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https://www.nytimes.com/2021/08/09/dining/green-salt.html
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https://www.newfoodmagazine.com/article/145168/green-salt-a-healthy-salt-alternative/
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https://www.womansworld.com/posts/health/what-is-green-salt-salicornia-sea-asparagus#:~:text=What%20is%20green%20salt%3F%20Green%20salt%20is%20dehydrated,grows%20in%20salty%20wetlands%2C%20marshes%2C%20and%20sea%20shores.
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Oh and I found this video of a taste test!
Think you’ll try it?
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1 ReactionDoes anyone have any insight on “green salt”? I’ve read that is has a minimal level of sodium and wonder if this could be an acceptable replacement for other salts.
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1 ReactionBack atcha! 💗
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2 ReactionsHi @tasher3433
I love the sunglasses and flip-flop emojis!!....and the celebratory party hat smiley face! We definitely have a lot to celebrate. Thank you so much for sharing. As a two year kidney transplant patient, I get so excited to share experiences with people that understand this phase of the journey (infection, reduction of meds, vampire visits, biopsy or not, etc). Thank you @tasher3433 and please stay in touch as our journeys continue! ❤
😎🩴 Hi! Yes, Cellcept was not agreeable! Myfortic is doing the trick. I’m so happy to hear your CMV is banished from the body! It’s like a weight lifted, knowing that Bean is in prime operating condition. 🥳
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2 ReactionsHi @tasher3433 😊 I totally understand your Las Vegas HEAT! I am writing to you from sunny HOT South Florida where the "feels like" temperature is 103 today....thank goodness for air conditioning! I am happy to hear there is no more sign of infection and it was "nipped in the bud" with less immune suppression! Happily, the same is true with my CMV. Was Cellcept replaced with Myfortic due to tummy issues or was the original medication Myfortic? Is it helping any stomach issues?
And yes, I definitely visit the "VAMPIRE" on a regular basis! I like that expression, very cute! I think I am going to start to use that expression too. 😊