This and That and Talk - My Transplant

They monitor it and every year the creatine level and gift clearance got worse by a few points but after 20 years the clearance had gotten real bad ..so it’s all about the numbers .. but I think now more then back then when I had my liver transplant I was on high doses of prograf and imuran and prednisone .. today I don’t think they start you and leave you on such high doses..they tapered them down to 1/4 of what o was taking and I’m good with that but it was to late on my kidneys .. so we all have to monitor our own blood test also .. we know our bodies more then anyone and if something doesn’t feel right ask and get checked .. all in all I think if you watch your creatine level it will go up but point that out to the doctors or ask ..I would like to thank everyone for all the messages and advice and tips so greatly appreciated..
Thank you Rose

Hi, I had my liver transplant last September but I started lifting after 4 months. They told me I must make some exercises to return back my muscles. I like to share the post-transplant experience. Best lucks and have a nice weekend. Jasem

@threerrr3, I am happy that you will soon receive your kidney. Your sister is an angel on earth.

I have both a transplanted liver, and kidney. I got them both at the same time from same donor. What you said about medications being hard on our organs is something does concern me. Was your kidney monitored after your liver transplant? When did you (or doctors)first notice that your kidneys were affected? How did they know?

Hi, I had my liver transplant last September but I started lifting after 4 months. They told me I must make some exercises to return back my muscles. I like to share the post-transplant experience. Best lucks and have a nice weekend. Jasem

@threerrr3 congratulations on your upcoming transplant! When my husband's had his liver transplant last July he was on lifting restrictions for 4 months. He is still careful now with lifting if he is turning with the weight.
Best of luck and blessings,
JoDee

@threerrr3,
As I read through the recommendations by other transplant patients, I can sense that you are going to be the best prepared patient in the transplant department! I like all of these suggestions because they don't add bulk to your suitcase. One small item that I found helpful was a package of ear plugs which were handy for getting a nap or some sleep on a busy hospital floor.

@des46893, Pill organizers are the handiest thing ever! When I received my transplant, my husband purchased one in the patient medical supply shop at the hospital. I would like add that an alarm on phone or watch is a good way to keep up with medication schedule.

@danab, Great reminder about the phone charger!

@contentandwell, I could not have used a fleece jacket because it would not have fit over my IV's. I settled for the ever stylish hospital gown and robe (I'm not sure that all hospitals have robes, though) Sometimes a gown frontwards, and another one backwards does work though.

@cmael, I remember being so embarrassed when this happened to me. I wanted to apologize to my nurses, but they said have none of that. I think that the nurses and aide are unsung heroes.

@jolinda, I didn't know there was an option for direction of the incision.

@threerrr3, Will you share this information with your sister?

@threerrr3,
As I read through the recommendations by other transplant patients, I can sense that you are going to be the best prepared patient in the transplant department! I like all of these suggestions because they don't add bulk to your suitcase. One small item that I found helpful was a package of ear plugs which were handy for getting a nap or some sleep on a busy hospital floor.

@des46893, Pill organizers are the handiest thing ever! When I received my transplant, my husband purchased one in the patient medical supply shop at the hospital. I would like add that an alarm on phone or watch is a good way to keep up with medication schedule.

@danab, Great reminder about the phone charger!

@contentandwell, I could not have used a fleece jacket because it would not have fit over my IV's. I settled for the ever stylish hospital gown and robe (I'm not sure that all hospitals have robes, though) Sometimes a gown frontwards, and another one backwards does work though.

@cmael, I remember being so embarrassed when this happened to me. I wanted to apologize to my nurses, but they said have none of that. I think that the nurses and aide are unsung heroes.

@jolinda, I didn't know there was an option for direction of the incision.

@threerrr3, Will you share this information with your sister?

Hi everyone I had explained before about having a liver transplant 20 years ago . It will be 21 year March 8 and on this years anniversary I will be getting a kidney transplant... my sister is donating and we are all set to go on March 8 .. but I was wondering since it’s been awhile since my last transplant there .. is there anything I would need to bring from home and stuff not to forget ? I’m getting kinda nervous cause I haven’t really heard anything from my coordinator and time is coming so fast .. so any recommendations .. we have an apartment rented and all is set for that but wondering what to even bring to the hospital that I would need ? Slippers and thing ? Thanks just need a little help and assurance

Hi everyone I had explained before about having a liver transplant 20 years ago . It will be 21 year March 8 and on this years anniversary I will be getting a kidney transplant... my sister is donating and we are all set to go on March 8 .. but I was wondering since it’s been awhile since my last transplant there .. is there anything I would need to bring from home and stuff not to forget ? I’m getting kinda nervous cause I haven’t really heard anything from my coordinator and time is coming so fast .. so any recommendations .. we have an apartment rented and all is set for that but wondering what to even bring to the hospital that I would need ? Slippers and thing ? Thanks just need a little help and assurance