This and That and Talk - My Transplant

I usually schedule my annual checkups in November/December depending on who is in the Transplant Clinic at the time. I have a strong preference as to who I will work with by this time since I have been around there for over 20 years now. I schedule the two together so that I only have to make one trip and also save on the cost for insurance purposes. There is no sense in wasting time or insurance money repeating tests that both transplant followups order. I am all about being a cost effective person when it comes to those resources.

I added a link on my previous post for the Autoimmune Hepatitis conversation. Thanks for sharing.

@charicen, Happy transplant anniversary to you.
Are you able to schedule your annual checkups for the same time?

My original diagnosis was AIH. I was diagnosed in 1985 at the age of 12.

I celebrated my 12-year liver transplant anniversary on May 8 (second liver). My kidney will be 7 years on November 16 this year.

Does anybody here have a history of AIH (Autoimmune Hepatitis)?
There has recently been some activity in Autoimmune Disease Discussion Group and I know that your experience would be helpful there. Would you take a look? (Use the newest to oldest option to find the most recent)
https://connect.mayoclinic.org/discussion/autoimmune-hepatitis-1/?orderby=DESC#chv4-comment-stream-header
Thank you.

I celebrated my 10 year transplant anniversary in April.

It's been quiet here - What's going on with all of you?

Hello @jodeej

I would like to add my thoughts to those of Colleen. As I recall your son was getting married and he planned a destination wedding. I'm sure it was lovely. I would enjoy hearing from you. I hope all is going well for you and your husband.

Hey @jodeej, I was thinking about you tonight. We haven't heard from you in a little while. How are you doing? Did you do anything exciting (or just plain relaxing) for the holiday weekend?

Here is some more information about organ rejection.
https://transplantliving.org/after-the-transplant/preventing-rejection/

@danab You are right that over time and continued good test results the alertness fades somewhat and it has become just one of those things on my daily check-in list.

I think now 14 months post i worry less i guess for me that i never even came close to rejecting and after what seems like a dozen biopsy I don't remember how many and they were all negative so when i do remind myself of that. The other thing to is i remember my team told me that even if they saw a rejection it usually only meant they would increase my meds to take care of it.

@gaylea1 It can be a long process, but you are making progress. I am sorry your recovery has been so difficult and lengthy. Your energy will be back any day now. I am sure of that. I know I didn't have any real problems after my transplant but it did take a while for the energy to get back up there where I wanted to be. I took naps in the afternoon more often than not.

Don't worry about rejection, as long as you take your immunosuppressants. I often think, what would I do without my smartphone to remind me? They are Godsends when it comes to things like this. It's easier for me now because they switched me to a once a day immunosuppressant so I get up at 6:30 to take them, and return to bed, hoping to get some more sleep in before getting up for real at 7:30. I do that so I can take them without food and take a smaller dose. When I started that I went from four mg to 2.5 mg. It's easier too when traveling to take them without food. When we have visited our son in Denver I just get up at 4:30 their time to take them, and since I don't need to take them with food that works out well for me.
JK