This and That and Talk - My Transplant

JK, I do the majority of my yoga in my living room while watching a YouTube video! No need to go anywhere. Lol

Tim goes to the local hospital for bloodwork. It started as weekly, than went twice a month and in May went to monthly. His normally looks really good, too. I still can't believe it's been a year!

Tim's speech therapist did an assessment on him recently and there was definite improvement in the score. Something's are still a struggle, and they probably always will be, like math, but we can live with them. There are so many things he can still do and that he is improving on doing. I'm so happy with his progress.

Blessings,
JoDee

@jodeej I am so glad to hear from you, I was getting concerned. It sounds as if you have everything possible under control, good for you.
I sincerely hope things will improve for Tim's cognition.
It doesn't seem possible that it's been a year since Tim's transplant. I presume during the intervening year he goes locally to a transplant center for check-ups. I had still been going monthly for lab work but it has been so consistently good that I got a call last week that I can now go bi-monthly.
I really want to try yoga too but I keep putting it off but you make me want to try it even more. I'm not good at new things, I always hesitate, and I don't have anyone to go to it with. One of these days I'll take a deep breath and just go though.
Do be proud of yourself. You are doing a great job.
JK

@colleenyoung @hopeful33250 @rosemarya @contentandwell
Hi all! I have not fallen off the edge of the earth. lol Things have been chaotic at our house.

The fun stuff is that our son got married to his long time girlfriend that we just adore. It was a beautiful day at a beautiful location in Snow Canyon, Utah. A week of family and friends. I loved every minute of it.

My husband, Tim, was medically retired from his job due to his cognition issues. Therefore, I've been buried under many pages of paperwork and phone calls. We won't know the railroad retirement boards decision for 9-12 MONTHS. Until then, he will get disability pay.

Disability was a whole nother fiasco, as our new family doctor abruptly left the practice and we had to find a new one to fill out the needed paperwork. It is done, all is filed and it was approved after several weeks of no pay coming.

So, some days I am struggling to keep my head above water. Others I'm proud of myself for getting done what needed to be handled.

In a few weeks we will be at Mayo for Tim's one year checkup. It's hard to believe that it has been a year already. It has been very eventful!

Thanks for inquiring about me.
Many blessings,
JoDee

@colleenyoung @hopeful33250 @rosemarya @contentandwell
Hi all! I have not fallen off the edge of the earth. lol Things have been chaotic at our house.

The fun stuff is that our son got married to his long time girlfriend that we just adore. It was a beautiful day at a beautiful location in Snow Canyon, Utah. A week of family and friends. I loved every minute of it.

My husband, Tim, was medically retired from his job due to his cognition issues. Therefore, I've been buried under many pages of paperwork and phone calls. We won't know the railroad retirement boards decision for 9-12 MONTHS. Until then, he will get disability pay.

Disability was a whole nother fiasco, as our new family doctor abruptly left the practice and we had to find a new one to fill out the needed paperwork. It is done, all is filed and it was approved after several weeks of no pay coming.

So, some days I am struggling to keep my head above water. Others I'm proud of myself for getting done what needed to be handled.

In a few weeks we will be at Mayo for Tim's one year checkup. It's hard to believe that it has been a year already. It has been very eventful!

Thanks for inquiring about me.
Many blessings,
JoDee

@colleenyoung @hopeful33250 @rosemarya @contentandwell
Hi all! I have not fallen off the edge of the earth. lol Things have been chaotic at our house.

The fun stuff is that our son got married to his long time girlfriend that we just adore. It was a beautiful day at a beautiful location in Snow Canyon, Utah. A week of family and friends. I loved every minute of it.

My husband, Tim, was medically retired from his job due to his cognition issues. Therefore, I've been buried under many pages of paperwork and phone calls. We won't know the railroad retirement boards decision for 9-12 MONTHS. Until then, he will get disability pay.

Disability was a whole nother fiasco, as our new family doctor abruptly left the practice and we had to find a new one to fill out the needed paperwork. It is done, all is filed and it was approved after several weeks of no pay coming.

So, some days I am struggling to keep my head above water. Others I'm proud of myself for getting done what needed to be handled.

In a few weeks we will be at Mayo for Tim's one year checkup. It's hard to believe that it has been a year already. It has been very eventful!

Thanks for inquiring about me.
Many blessings,
JoDee

@jodeej Deep breaths. Shake it all off. Roll your shoulders. Relax as you can. We're here for you!
Ginger

@colleenyoung @hopeful33250 @rosemarya @contentandwell
Hi all! I have not fallen off the edge of the earth. lol Things have been chaotic at our house.

The fun stuff is that our son got married to his long time girlfriend that we just adore. It was a beautiful day at a beautiful location in Snow Canyon, Utah. A week of family and friends. I loved every minute of it.

My husband, Tim, was medically retired from his job due to his cognition issues. Therefore, I've been buried under many pages of paperwork and phone calls. We won't know the railroad retirement boards decision for 9-12 MONTHS. Until then, he will get disability pay.

Disability was a whole nother fiasco, as our new family doctor abruptly left the practice and we had to find a new one to fill out the needed paperwork. It is done, all is filed and it was approved after several weeks of no pay coming.

So, some days I am struggling to keep my head above water. Others I'm proud of myself for getting done what needed to be handled.

In a few weeks we will be at Mayo for Tim's one year checkup. It's hard to believe that it has been a year already. It has been very eventful!

Thanks for inquiring about me.
Many blessings,
JoDee

Hey @jodeej, I was thinking about you tonight. We haven't heard from you in a little while. How are you doing? Did you do anything exciting (or just plain relaxing) for the holiday weekend?

@wildcat I was told that grapefruit juice and pomegranate juice are never allowed with transplant drugs because they can change the strength of the drugs in unpredictable ways. Just curious, were you told pomegranate juice is ok to consume?

This is a very interesting discussion for me. I was told absolutely no grapefruit in any form but pomegranate was not mentioned. When my tacrolimus levels suddenly spiked, there was no obvious cause until I remembered that I had been drinking pomegranate juice. I researched this and found that some doctors in North America ( I recall Minneapolis and Nebraska universities) had found evidence of the this link. My tacrolimus went back down when I stopped the pomegranate juice

My doctors were really interested and asked me to submit a Yellow Card to NICE ( our equivalent of your FDA) which means that they will conduct further studies to see if it should be listed as a known drug reaction.

Needless to say, I never drink or eat pomegranate or grapefruit.

There is no shortage of tacrolimus here as far as I am aware. Prograf is the make of choice certainly in Edinburgh and I am not allowed to take any other brand of tacrolimus. I hope this helps.