This and That and Talk - My Transplant

@rosemarya , I have had a moderately tough year. Next month will be the 9th anniversary of my pancreas transplant. This year I have been blacking out and falling, very weak and shaky, hospitalized for a workup on syncope, many UTI's, and many medication changes. So life is slow in my house and I am grateful for my good caregiver husband. My mother will be 96 next month and her age is wearing on her, so it is taxing on me to provide the amount of time and comfort for her that I would like. Fortunately she is well taken care of in her nursing home. As always, I do what I can and stop when I can't. Happy Holidays to everyone, and Best Wishes for a Good New Year.

Hi Rosemary,
I am doing good I just graduated from physical therapy on Wednesday of this week and am working on getting rid of the cane that I use slow process but getting better and stronger every day next month I go to Rochester MN for my 9 year post transplant check-up and right heart cath and angiogram which I only have those every 2 years now and I am hoping to be able to do some traveling this coming summer to visit family I have been pretty well other then one time this year when I had to have antibiotics for a little over a month it took me having to go to Rochester MN in October to get me the right antibiotics to help me get better I had a severe UTI so when the other 2 antibiotics didn't work my team told me to come see them and the infectious disease doctor so glad I did as they diagnosed it and gave me the antibiotic to get rid of it I work out at the YMCA twice a week and walk as much as possible to keep going strength from the accident but it is and will still be a slow process of getting stronger again I would like to wish you a merry Christmas and happy New year
@glinda

If you are new on Connect or if you have been hesitant to jump into a discussion, I look forward to meeting you here. The title of this discussion is - "This and That and Talk" - So if you have something on your mind and don't know where to post it - This is it 😀

2019 is soon to become 2020. And the discussions here have been full of so many interesting transplant related happenings and ideas. It has been a while since I have heard from some of you. - @wildcat, @rodney9999,, @jolinda, @luckonetj, @ca426, @cmael, @gaylea1, @jodeej, @charicen, @jeanne5009, @gingerw, @2011panc, @contentandwell, @glinda, @danab, @threerrr3, @almula, @mnemeth318, @des46893, (Let me know if I skipped you, I apologize) )
How are you doing since you last posted here? What is going on in your transplant journey now? What do you look forward to in 2020?

I'll go first to get things started.
For those who don't know me, I received a simultaneous liver and kidney transplant in April 2009 due to Primary Sclerosing Cholangitis. This year I was blessed to celebrate my 10th year since my transplant. I am doing a happy dance because I had my final routine protocol kidney biopsy. I will have, hopefully some extra time during my next annual evaluation to do little sightseeing or shopping!!

If you are new on Connect or if you have been hesitant to jump into a discussion, I look forward to meeting you here. The title of this discussion is - "This and That and Talk" - So if you have something on your mind and don't know where to post it - This is it 😀

2019 is soon to become 2020. And the discussions here have been full of so many interesting transplant related happenings and ideas. It has been a while since I have heard from some of you. - @wildcat, @rodney9999,, @jolinda, @luckonetj, @ca426, @cmael, @gaylea1, @jodeej, @charicen, @jeanne5009, @gingerw, @2011panc, @contentandwell, @glinda, @danab, @threerrr3, @almula, @mnemeth318, @des46893, (Let me know if I skipped you, I apologize) )
How are you doing since you last posted here? What is going on in your transplant journey now? What do you look forward to in 2020?

I'll go first to get things started.
For those who don't know me, I received a simultaneous liver and kidney transplant in April 2009 due to Primary Sclerosing Cholangitis. This year I was blessed to celebrate my 10th year since my transplant. I am doing a happy dance because I had my final routine protocol kidney biopsy. I will have, hopefully some extra time during my next annual evaluation to do little sightseeing or shopping!!

Hi @rosemarya We actually haven't talked about what to do to celebrate! Lol We are going to visit our son and our new daughter-in-law for a couple days before Tim's one year check at Mayo, so we will have to have an anniversary supper with them. 🙂

@jodeej I think if I went to yoga at my club a few times I could probably do it at home but I need that feedback initially. I am not a natural at all.
I am so happy about Tim's progress. Don't worry about math, that's what calculators are for!
JK

@jodeej, I am happy to hear from you. You, your husband, and family have had really busy year since the transplant. I can easily imagine that the wedding was espcially beautiful, and all of you gathered together to celebrate life andlove.

When you get your head above water and feet on the ground, I hope that you will find some time to meet a whole new group of pretransplant patients and their caregivers.

Have you and Tim made any plans to celebtare yout 1st anniversary of his transplant? Tom and I like to go out for a 'special' dinner and we share an iced tea toast!

@colleenyoung @hopeful33250 @rosemarya @contentandwell
Hi all! I have not fallen off the edge of the earth. lol Things have been chaotic at our house.

The fun stuff is that our son got married to his long time girlfriend that we just adore. It was a beautiful day at a beautiful location in Snow Canyon, Utah. A week of family and friends. I loved every minute of it.

My husband, Tim, was medically retired from his job due to his cognition issues. Therefore, I've been buried under many pages of paperwork and phone calls. We won't know the railroad retirement boards decision for 9-12 MONTHS. Until then, he will get disability pay.

Disability was a whole nother fiasco, as our new family doctor abruptly left the practice and we had to find a new one to fill out the needed paperwork. It is done, all is filed and it was approved after several weeks of no pay coming.

So, some days I am struggling to keep my head above water. Others I'm proud of myself for getting done what needed to be handled.

In a few weeks we will be at Mayo for Tim's one year checkup. It's hard to believe that it has been a year already. It has been very eventful!

Thanks for inquiring about me.
Many blessings,
JoDee